
Reply: Worse than have been in ten years and confused
Hi and Welcome to Our Family... You are not alone in this nightmare... I had the...
Posted by DakotaWilsonFM
Hi and Welcome to Our Family... You are not alone in this nightmare... I had the same reaction to lyrica... It was pretty volitar and nasty for me... and no one would listen... until my gasteroentologist got involved... He actually requested I fire them lol... I did and he helped me find another pain management that has worked with him and together have helped... I have several Dr's and if they don't work together on my multiple illnesses... well lets just say it is a must... lol...
the new pain management tried cymbalta right away and it didn't go well either... so both of them have joined my allergy list...
I hope it goes better for you soon... It is so often a game of trials... They finally put me on tramadol for my FM... but to be honest with you I think a couple of other meds for my MS and Parkinson's also help...
It is sometimes a long haul and yes very depressing but thru the support here and my gracious family and a couple of friends I have left... It is do-able... Please come often and discuss whatever you need...
I try to be here often but sometimes it is just to read... I don't have much strength to sit on the computer alot... but I will be here for you as often as I can... And the others are wonderful here... I will keep you in my thoughts...
take care... soft and gentle hugs... luv... Jan/DakotaView Thread
Posted byDakotaWilsonFM
the new pain management tried cymbalta right away and it didn't go well either... so both of them have joined my allergy list...
I hope it goes better for you soon... It is so often a game of trials... They finally put me on tramadol for my FM... but to be honest with you I think a couple of other meds for my MS and Parkinson's also help...
It is sometimes a long haul and yes very depressing but thru the support here and my gracious family and a couple of friends I have left... It is do-able... Please come often and discuss whatever you need...
I try to be here often but sometimes it is just to read... I don't have much strength to sit on the computer alot... but I will be here for you as often as I can... And the others are wonderful here... I will keep you in my thoughts...
take care... soft and gentle hugs... luv... Jan/DakotaView Thread
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Reply: TGIF**ROLL CALL **8/31/2012 ****New Members too***...
Hi All... I hope you are enjoying 2012... it seems to be flying by lol... I can't...
Posted by DakotaWilsonFM
Hi All... I hope you are enjoying 2012... it seems to be flying by lol... I can't believe the kids are back in school here for almost a month... and they seem to be enjoying it... except my grandson isn't fond of homework... lol... but it is hard to have all these new rules thrown at you when you are fresh out of preschool lol... He loves his play time and recess in kindergarten... but resists all homework... lol... something we may have to involve the teachers help in lol...
My granddaughter on the other hand is loving preschool except for the fact she only goes 3 days and doesn't like her brother going 5 days a week... lol her birthday is 4 days away and she is trying to convince us then she is bigger and old enough to go all 5 days lol... This will be fun..
Well... once again I have been sick... Too sick to function again... but I will try to post about it... I am hoping some of you can help me on the topic...
Right now I need to walk off a cramp in my jerky foot...owee...
take care... soft and gentle hugs... luv... Jan/DakotaView Thread
Posted byDakotaWilsonFM
My granddaughter on the other hand is loving preschool except for the fact she only goes 3 days and doesn't like her brother going 5 days a week... lol her birthday is 4 days away and she is trying to convince us then she is bigger and old enough to go all 5 days lol... This will be fun..
Well... once again I have been sick... Too sick to function again... but I will try to post about it... I am hoping some of you can help me on the topic...
Right now I need to walk off a cramp in my jerky foot...owee...
take care... soft and gentle hugs... luv... Jan/DakotaView Thread
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Fighting Edema so bad it has fluid in my lungs
Since my last diagnosis of Parkinson's Disease my health has gone steady down...
Posted by DakotaWilsonFM
Since my last diagnosis of Parkinson's Disease my health has gone steady down hill.... I have had edema off and on for years and no one knows why... they still don't know why and it is thru out my body and doesn't go away and even has water in my lungs now... My dr is out of town till the 4th... If I get worse just go to ER...
I feel like a catch all... My MS, FM, Parkinson's are flaring... I haven't seen one show up without another one or two forever... I am scared and more anxious then ever... bipolar is just nuts I haven't been this up and down like a yo yo for a long time...
I am staying to myself alot.. and feeling alone and lost at times... yet I know God and my loved ones haven't left my side...
I missed coming here but day after day I couldn't sit long enough to read yet alone use my swollen hands to type...
I always say I will try to stay in better touch... and I truly try... I am sorry if I worry you...
I have been up too long... need to go rest... take care.. be good to yourself and do something good and special for you everyday... believe in yourself and others here..
take care... soft gentle hugs... Love Jan/DakotaView Thread
Posted byDakotaWilsonFM
I feel like a catch all... My MS, FM, Parkinson's are flaring... I haven't seen one show up without another one or two forever... I am scared and more anxious then ever... bipolar is just nuts I haven't been this up and down like a yo yo for a long time...
I am staying to myself alot.. and feeling alone and lost at times... yet I know God and my loved ones haven't left my side...
I missed coming here but day after day I couldn't sit long enough to read yet alone use my swollen hands to type...
I always say I will try to stay in better touch... and I truly try... I am sorry if I worry you...
I have been up too long... need to go rest... take care.. be good to yourself and do something good and special for you everyday... believe in yourself and others here..
take care... soft gentle hugs... Love Jan/DakotaView Thread
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Reply: Guilty for being a burden?
JD and All.. Every morning I struggle to get up out of bed for my coffee and alone...
Posted by DakotaWilsonFM
JD and All.. Every morning I struggle to get up out of bed for my coffee and alone time before getting everyone else up... Everyday fighting the concept that I am a burden... And every night going to bed a winner... Some days I don't know how I do it and some days it comes easy... And some days I need to be reminded that I am a survivor... I have survived 7 bouts of cancer so what am I gonna do now... give up? I think not....
I face multiple illnesses and all seem to easily link and flare together... they hardly ever stand alone... All seem to cause a pain of their own also... I am on 30 some pills a day almost half of them being pain related...
So I watch as my son runs around trying to keep me healthy and a full time management job going... usually working 60 hours a week or more... then caring for his 2 small children... whom I try to help with but more then not it has gotten difficult...
He lives thru his turmoils in life not wanting to talk to me anymore about them for he fears causing a flare or setback with the stress... but I stress just knowing something is wrong...
I am on ssi so at least I can help a bit financially... I have to almost force him to take it tho.. He is just one of my 3 great kids... All 3 have taken turns being with me and helping me... And have given me and still give me unconditional love and support... They are a source of my strength... God is the other source... Without them I know I wouldn't be here...
I pray and meditate for strength and self acceptance every morning... Granted it I can find the human side of me... and be me even tho all the illness has destroyed so much for me... And that is why I go to bed a winner every night... I am bipolar manic depressed also... so it keeps life interesting... I have huge anxiety and big problems with PTSD... And a hermatizing problem... MS, RSD, FM, Parkinsons, Deteriorating bone and disc disease... scar tissue on major nerves... muscles that don't work other then to spasm and jerk... I can hardly walk... but I am still not in my wheelchair 24/7... should be maybe but not ready to give up the fight... lol...
I count y blessings every day... and they are many and yes my being alive is still top of my list...
I am human and do falter... I do get angry... discouraged... depressed I am not the old me... but I am HUMAN...
I still love life and love those lives I touch and those that touch mine...
Be strong... Love yourself unconditionally... accept you as you are... and keep believing in life...
take care... soft gentle hugs... love Jan/DakotaView Thread
Posted byDakotaWilsonFM
I face multiple illnesses and all seem to easily link and flare together... they hardly ever stand alone... All seem to cause a pain of their own also... I am on 30 some pills a day almost half of them being pain related...
So I watch as my son runs around trying to keep me healthy and a full time management job going... usually working 60 hours a week or more... then caring for his 2 small children... whom I try to help with but more then not it has gotten difficult...
He lives thru his turmoils in life not wanting to talk to me anymore about them for he fears causing a flare or setback with the stress... but I stress just knowing something is wrong...
I am on ssi so at least I can help a bit financially... I have to almost force him to take it tho.. He is just one of my 3 great kids... All 3 have taken turns being with me and helping me... And have given me and still give me unconditional love and support... They are a source of my strength... God is the other source... Without them I know I wouldn't be here...
I pray and meditate for strength and self acceptance every morning... Granted it I can find the human side of me... and be me even tho all the illness has destroyed so much for me... And that is why I go to bed a winner every night... I am bipolar manic depressed also... so it keeps life interesting... I have huge anxiety and big problems with PTSD... And a hermatizing problem... MS, RSD, FM, Parkinsons, Deteriorating bone and disc disease... scar tissue on major nerves... muscles that don't work other then to spasm and jerk... I can hardly walk... but I am still not in my wheelchair 24/7... should be maybe but not ready to give up the fight... lol...
I count y blessings every day... and they are many and yes my being alive is still top of my list...
I am human and do falter... I do get angry... discouraged... depressed I am not the old me... but I am HUMAN...
I still love life and love those lives I touch and those that touch mine...
Be strong... Love yourself unconditionally... accept you as you are... and keep believing in life...
take care... soft gentle hugs... love Jan/DakotaView Thread
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Reply: Monday, Monday ****8/20/2012 ****
hi all... long time no visit again... been ill for so long and under stress I could...
Posted by DakotaWilsonFM
hi all... long time no visit again... been ill for so long and under stress I could rationally do without... but such is life...
So much to tell.. so much to read again... I just met someone online and gave them our address here and hope she visits and joins us... she is going thru a tough spell with nausea so hopefully soon... I m praying...
I will try to write a message about my new problems going on...
for now I have to rest a little... Have learned I must listen to this old body or else... I am trying at least...
send a few prayers and thoughts of good wishes my way... appreciate them and you.... sorry if you were worried..
Gentle and soft hugs... love Jan/DakotaView Thread
Posted byDakotaWilsonFM
So much to tell.. so much to read again... I just met someone online and gave them our address here and hope she visits and joins us... she is going thru a tough spell with nausea so hopefully soon... I m praying...
I will try to write a message about my new problems going on...
for now I have to rest a little... Have learned I must listen to this old body or else... I am trying at least...
send a few prayers and thoughts of good wishes my way... appreciate them and you.... sorry if you were worried..
Gentle and soft hugs... love Jan/DakotaView Thread
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Reply: TGIF****ROLL CALL *** New members too 7/27/2012 **...
good to see u again squarley... take care and feel better soon... hi to everyone......
Posted by DakotaWilsonFM
good to see u again squarley... take care and feel better soon...
hi to everyone... I am coming out after a sun stroke... fell asleep in the sun in the early am and woke up very ill... 105 and in the sun... dr says I am going to be ok... just need rest yeh right... going to try to get more today... need to get inside i am outside now and it is getting warm again... nice breeze tho and in shade lol... just some fresh air... and got a diagnosis of definite rsd flare and swelling is finally going down lost 10 pounds in 2 days... but need to rest more for that to continue too...
am holding in there... under some personal stress right now could use some prayers... thanks... stress not good for me especially with all the flares going on... rsd... ms... parkinsons... and now our favorite fm... may it never fail lol...
so I am going in to rest... have a great weekend...
soft hugs and luv... jan/dakotaView Thread
Posted byDakotaWilsonFM
hi to everyone... I am coming out after a sun stroke... fell asleep in the sun in the early am and woke up very ill... 105 and in the sun... dr says I am going to be ok... just need rest yeh right... going to try to get more today... need to get inside i am outside now and it is getting warm again... nice breeze tho and in shade lol... just some fresh air... and got a diagnosis of definite rsd flare and swelling is finally going down lost 10 pounds in 2 days... but need to rest more for that to continue too...
am holding in there... under some personal stress right now could use some prayers... thanks... stress not good for me especially with all the flares going on... rsd... ms... parkinsons... and now our favorite fm... may it never fail lol...
so I am going in to rest... have a great weekend...
soft hugs and luv... jan/dakotaView Thread
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What a life... Gotta love it...
Happy Monday to us all... I had a wonderful weekend even tho my x- dil wanted to...
Posted by DakotaWilsonFM
Happy Monday to us all... I had a wonderful weekend even tho my x- dil wanted to make it anything but that... We had a wonderful birthday party for my grandkids and I lived thru them.. I must admit I am very grateful to say I had a little help from a long lost friend to make that happen... When I was texted by some unknown number I didn't recognize... someone inviting me to a magical coffee date lol... no... no secret love... something that helps us feel better... lol... I automatically just said no... then she came back with is this Jan from blah blah... I am blah blah... remembering her right away... but never hearing this certain tone in her voice... I was dieing to see her...
She drove in and isn't the person she use to be... she use to have siezures left and right... drawing her very soul out of her... depressed, anxious, and angry... giving up on life and love... she walked away from everyone who cared about her... hasn't returned my phone calls in months... I gave up and now I can thank her for my first night with so little pain I didn't want to sleep...
She hasn't had a siezure in 9 months... insted of taking multiple pills a day she is down to one siezure pill... and insted of fighting life she is back to fighting for life...
Has her first grandbaby... a new fiancee... a business she loves because she uses the product and it has helped her... and she is all excited about being able to turn around and help others...
She handed me a $40.00 supply of coffee... Told me not to worry about it that all she wants is my testimony... I am never one to just jump on the band wagon... but there is something different about me... I didn't get hyper... I didn't get anxious infact I was so relaxed after a couple of cups that I didn't need 2 doses of my anxiety meds I am on 4 times a day... and I haven't needed this mornings dose...
I drank 2 cups of the black coffee while she was here and bought some mocha coffee and drank 2 later... I am happy to say that I sat with a sick friend and I didn't stress and fall asleep... I held up and noticed that my evening pain wasn't there... my pain that was normally a 8 or 9 by 5 or 6 pm was more like a 2... and I hadn't taken my morphine nor my oczycodone... mmm could this really be happening to me...
I won't jump to say this is going to cure me... I have too many problems to be so bold lol... but if I can get the toxins out and still drink my regular coffee lol... I think I can like this...
So between the successful birthday parties... having closed words with the x-dil... who boldly told me it was better for me to be ill then to be resting for being mad at her lol... wasn't mad but told her I was pretty insulted then... I wouldn't wish this on my worst enemy... When I told her that she just looked at me... But maybe I just took it wrong or she just said it wrong...
Well... I hope all had a great weekend... I am going to take this energy and play on the computer... maybe play with my grandchildren... I would love to go swimming but the infection on my legs is still there... getting better but not fast enough for me lol...
take care... love to all... soft hugs... Jan/DakotaView Thread
Posted byDakotaWilsonFM
She drove in and isn't the person she use to be... she use to have siezures left and right... drawing her very soul out of her... depressed, anxious, and angry... giving up on life and love... she walked away from everyone who cared about her... hasn't returned my phone calls in months... I gave up and now I can thank her for my first night with so little pain I didn't want to sleep...
She hasn't had a siezure in 9 months... insted of taking multiple pills a day she is down to one siezure pill... and insted of fighting life she is back to fighting for life...
Has her first grandbaby... a new fiancee... a business she loves because she uses the product and it has helped her... and she is all excited about being able to turn around and help others...
She handed me a $40.00 supply of coffee... Told me not to worry about it that all she wants is my testimony... I am never one to just jump on the band wagon... but there is something different about me... I didn't get hyper... I didn't get anxious infact I was so relaxed after a couple of cups that I didn't need 2 doses of my anxiety meds I am on 4 times a day... and I haven't needed this mornings dose...
I drank 2 cups of the black coffee while she was here and bought some mocha coffee and drank 2 later... I am happy to say that I sat with a sick friend and I didn't stress and fall asleep... I held up and noticed that my evening pain wasn't there... my pain that was normally a 8 or 9 by 5 or 6 pm was more like a 2... and I hadn't taken my morphine nor my oczycodone... mmm could this really be happening to me...
I won't jump to say this is going to cure me... I have too many problems to be so bold lol... but if I can get the toxins out and still drink my regular coffee lol... I think I can like this...
So between the successful birthday parties... having closed words with the x-dil... who boldly told me it was better for me to be ill then to be resting for being mad at her lol... wasn't mad but told her I was pretty insulted then... I wouldn't wish this on my worst enemy... When I told her that she just looked at me... But maybe I just took it wrong or she just said it wrong...
Well... I hope all had a great weekend... I am going to take this energy and play on the computer... maybe play with my grandchildren... I would love to go swimming but the infection on my legs is still there... getting better but not fast enough for me lol...
take care... love to all... soft hugs... Jan/DakotaView Thread
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hi happy happy day... lotsa lotsa pain
When I sang Happy Happy Birthday Baby to my first grandchild who turned 11 today I...
Posted by DakotaWilsonFM
When I sang Happy Happy Birthday Baby to my first grandchild who turned 11 today I felt tears welt in my eyes... Thru all my morning pain the joy of having her here with me made life worth everything again...
It is party time... Grandmother hurts and keeps apologizing and Janet is just like her mother... patiently waiting for the smallest of parties... Tomorrow... I have two parties at the same time and no choice but to be there and at my "best"... the best that this Jan can be anyway... I would laugh at that... lol... but I'm not laughing... I didn't laugh back then either... when my daughter was so understanding.
It is nice to have a couple of friends to fall back on... Now... mine are my SR and JR boys... one is the father and one is the son... and I don't know what I would do without them... I can only imagine trying to get by and my imagination doesn't work that good lol...
When the kids were small I didn't have a lot of people back then to fall back on... but I did always have at least one person... and that means the world to me... So when I find myself in the company of a pair... I am ever so happy...
Today is a sad day and a happy day... and A very proud and loving day... So with all my mixed emotion of past memories... memories in the making and memories to dream of in the future... It is a peaceful yet tremulous day...
I have 4 kids waiting for cupcakes... and it is time to get my feet up again... So I will share the cupcakes if I have to lol... and then maybe rest... maybe let my SR and JR help me out lol... I have been up too long...
Will write more later... take care... soft and gentle hugs...
Love... Jan/DakotaView Thread
Posted byDakotaWilsonFM
It is party time... Grandmother hurts and keeps apologizing and Janet is just like her mother... patiently waiting for the smallest of parties... Tomorrow... I have two parties at the same time and no choice but to be there and at my "best"... the best that this Jan can be anyway... I would laugh at that... lol... but I'm not laughing... I didn't laugh back then either... when my daughter was so understanding.
It is nice to have a couple of friends to fall back on... Now... mine are my SR and JR boys... one is the father and one is the son... and I don't know what I would do without them... I can only imagine trying to get by and my imagination doesn't work that good lol...
When the kids were small I didn't have a lot of people back then to fall back on... but I did always have at least one person... and that means the world to me... So when I find myself in the company of a pair... I am ever so happy...
Today is a sad day and a happy day... and A very proud and loving day... So with all my mixed emotion of past memories... memories in the making and memories to dream of in the future... It is a peaceful yet tremulous day...
I have 4 kids waiting for cupcakes... and it is time to get my feet up again... So I will share the cupcakes if I have to lol... and then maybe rest... maybe let my SR and JR help me out lol... I have been up too long...
Will write more later... take care... soft and gentle hugs...
Love... Jan/DakotaView Thread
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Reply: TGIF****ROLL CALL*** New members welcome****
Hi Hi... TGIF... It as been a long week and now a longer 2 days coming up... today...
Posted by DakotaWilsonFM
Hi Hi... TGIF... It as been a long week and now a longer 2 days coming up... today is my oldest granddaugters.. my first grandchild... named after me Janet... anyway she is 11 today... Tomorrow is Ethan my youngest grandsons 5th birthday so we are celebrating the 2 birthdays together... I almost think it was more work then having hers today and his tomorrow... lol... but I don't have energy for one today so she is being patient... I just hope at least one or 2 of my guests I think I can count on will actually be able to come to the party and take over my role lol... I will greatly appreciate the help... and they know how to cover for me... unlike the ones I feel will beat them to it... then there might be attitude problems... and I may not make it to resting... I may not anyway with them in the same room lol... Don't have to worry about the kids just the adults lol...
Well...Enough I hope you all have a good day... take care and keep smiling... know I am thinking about you all...
Soft and gentle hugs... love... Jan/DakotaView Thread
Posted byDakotaWilsonFM
Well...Enough I hope you all have a good day... take care and keep smiling... know I am thinking about you all...
Soft and gentle hugs... love... Jan/DakotaView Thread
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