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1dazygal

Joined: 11/07/2011

My Story:

I suffer from the following. Fibro and COPD give me the most trouble with migraines a tie. CFID- have unbearable fatigue I have asthma, chronic bronchitis & vocal chord damage. I suffer a very complex headache history which includes sinus, tension, migraines , cluster and a facial type of migraine. I have cervical facet syndrome in my neck from an auto accident at age 12. It's like a constant migraine type pain. I have high blood pressure and low thyroid levels while very low in vit D3 & B12. I suffer from gasteoparesis (sp) and GERD I have had fibro for 13 yrs (2012) Terrible fatigue and memory loss I have a hiatal hernia, and osteoparoses-sp Have broken 23 bones in my feet , at the same time, so my balance is off and I use a cane for walking with 6 herniated disc. My bones hurt like I have RA. Ive now been told DDD and osteo arthritis My lungs hurt to take a deep breathe from scar tissue from a lung infection in 2009. Still fighting it. I have TMJ and clench my teeth to the point of severe headaches. I suffer from extreme dry eye and now they tell me the clear coating over My eye is pitted and they haven't seen this before. Also cataracts & will need surgery soon. I have a sleep disorder Let's toss in some depression and you have a good idea Of my daily struggles. Wishing you well and share a smile we need them 1DAZYGIRL :-)

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Reply: back to square one

How can you not consider a combo that worked for you for long term care? Your fibros not...

SHARE A SMILE WE COULD ALL USE ONE, THAT
INCLUDES OUR LOVED ONES

Posted by 1dazygal

3 Replies | Reply | Watch This DiscussionReport This| Share this:back to square one How can you not consider a combo that worked for you for long term care? Your fibros not...

Reply: Favorite Distractions

I put on my tens unit and do puzzles or watch recorded Discovery channel shows on history,...

SHARE A SMILE WE COULD ALL USE ONE, THAT
INCLUDES OUR LOVED ONES

Posted by 1dazygal

27 Replies | Reply | Watch This DiscussionReport This| Share this:Favorite Distractions I put on my tens unit and do puzzles or watch recorded Discovery channel shows on history,...

Reply: sleep study, etc.

Not sure if this is your cup of tea, but I enjoy history, science bio's very much. I have...

SHARE A SMILE WE COULD ALL USE ONE, THAT
INCLUDES OUR LOVED ONES

Posted by 1dazygal

4 Replies | Reply | Watch This DiscussionReport This| Share this:sleep study, etc. Not sure if this is your cup of tea, but I enjoy history, science bio's very much. I have...

Reply: Doctor troubles

Mpathia. Missed your post to me. Darling if your on the F patch and still in pain it's no...

SHARE A SMILE WE COULD ALL USE ONE, THAT
INCLUDES OUR LOVED ONES

Posted by 1dazygal

29 Replies | Reply | Watch This DiscussionReport This| Share this:Doctor troubles Mpathia. Missed your post to me. Darling if your on the F patch and still in pain it's no...

CUTTING YOUR MEDS IN HALF TO SAVE $$$. ????

I was reading some post I hadn't before and read that one of our cutie pies is cutting her...

SHARE A SMILE WE COULD ALL USE ONE, THAT
INCLUDES OUR LOVED ONES

Posted by 1dazygal

0 Replies | Reply | Watch This DiscussionReport This| Share this:CUTTING YOUR MEDS IN HALF TO SAVE $$$. ???? I was reading some post I hadn't before and read that one of our cutie pies is cutting her...

Reply: Tuesday **** Last day of January *** 1/31/2012 ***

Sorry Mimi please tell me court has nothing to do with your disibility benefits ? Either...

SHARE A SMILE WE COULD ALL USE ONE, THAT
INCLUDES OUR LOVED ONES

Posted by 1dazygal

5 Replies | Reply | Watch This DiscussionReport This| Share this:Tuesday **** Last day of January *** 1/31/2012 *** Sorry Mimi please tell me court has nothing to do with your disibility benefits ? Either...

Reply: Tuesday **** Last day of January *** 1/31/2012 ***

My husbands off on another 2day trip. Vegas Baby! My Dana has her surgery Thurs. she's my...

SHARE A SMILE WE COULD ALL USE ONE, THAT
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Posted by 1dazygal

5 Replies | Reply | Watch This DiscussionReport This| Share this:Tuesday **** Last day of January *** 1/31/2012 *** My husbands off on another 2day trip. Vegas Baby! My Dana has her surgery Thurs. she's my...

Reply: No Doctors in RI

Mpathia -there you are!! I'm sorry to hear you lost your companion. My teacup poodle is...

SHARE A SMILE WE COULD ALL USE ONE, THAT
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Posted by 1dazygal

Mpathia -there you are!! I'm sorry to hear you lost your companion. My teacup poodle is very ill and goes for surgery on Thurs. I won't know till then. She's only 4 yrs and my aide dog. She picks up on health issues, say right before I get sick with a migraine and has daddy on the way while I've got my head now in the bucket.

It's very strange. Shell jump up smell my nose and boom she's gone for help. Right as I say what the heck well all hell breaks loose

I just want to say I see your still struggling and I'm sorry you didn't get tons of replies your first post but it will happen. Have to remember everyone is feeling the effects of this illness. I've found they seem to be early risers so morning or the middle of the night are best times to post. They will be at the top of the headers.

I just put up some web sites I found. I wish I could remember which but on the left side it said how to find a Dr in your area.!!!!! Otherwise just use a search site and type in Drs in was it RI? It should bring up a list. At this point I still say pick any body. Primary, female, arthritis, fibro, nuro and so on. They will see you and since I think you said your town was small, they should know someone. Otherwise with your suffering go to the next biggest town PLEASE! You don't have to say you have fibro. "I'm having terrible body pain, fatigue chronic headaches. I don't know what's going on. I'm desperate"! Just get the appt!

You've gotta get mad and quickly use the energy you get. Leave off pain centers and Drs till later. I'll probaly get creamed on this comment , but they never gave me the help/relief I needed anyway.

Now as for a pet. I don't know what type of dog you had but you need a lover now that's not a lot of weight on you. My dog is paper trained so on bad days I don't have to risk the stairs or worry about her. I cheat most days and throw the toy down the hall till she's beat.

Otherwise, if you like them, a cat would be PERFECT for you. (I'm allergic). There house trained, you could rescue one at whatever age you might want!, and they love to snuggle. Oh Mpathia I can hear it purring next to you on the bed or couch. if you want a dog just search for low energy dogs or good for apt living. You'll get a list. I checked it out for you. It wouldn't hurt to rescue an older dog either. Their lonely also but no puppy stage. I paper trained my Dana in one week. It got me up to early for a month but I love her so much. We are together 24/7.

You could interact and they just love us for who we are. That's perfect when you feel awful

. If you rescue a teenager they'll come fixed w/shots and the fee is lower then if you did on your own.

I'm on a roll but I think you should have a friend. They keep our broken spirit renewed. Oh yes you don't have to walk cats and she/ he could be an indoor kitty. Remember you can't pet fish

If you want to talk more personally we could consider email address.?? I don't do that often but if you think I'm an "Angel" you must have a sense of humor like me!!

I wanna see a positive-I got results- in the next week. I push you to help yourself outta this struggle- you help me.

Sending a soft touch on the shoulder and a smile

I'll be thinking about you.View Thread

SHARE A SMILE WE COULD ALL USE ONE, THAT
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Posted by1dazygal

23 Replies | Reply | Watch This DiscussionReport This| Share this:No Doctors in RI Mpathia -there you are!! I'm sorry to hear you lost your companion. My teacup poodle is...

LOOKING FOR RESOURCES ON FIBRO?

I haven't slept tonight so I thought try something that's helpful. I've seen many newbies...

SHARE A SMILE WE COULD ALL USE ONE, THAT
INCLUDES OUR LOVED ONES

Posted by 1dazygal

I haven't slept tonight so I thought try something that's helpful. I've seen many newbies ask where can I get more info and none of us are past finding something new be it a test or medical society's rethinking this illness. One site put the number at 10million not 5like I've thought the last two years. That may put us past bi- polar disease and the public doesn't know about it. Thats wrong. I'm too tired to put each one under resource so I'm just going to list.

Many explain areas of the body affected by fibro plus give test that can be done to chk these areas plus other resources. I'm not going to dissect each site. Search if you want.

One listed trials being done and one how to find a Dr in your area. In other words a ton of info. Don't stop reading if you just see symptoms because some offer links as you go along.

I'm not typing in www- etc unless it might make a difference, I think if the right pg comes up. Good luck, print it out, hope we all find something to use or learn. NO SPECIAL ORDER

1). Nfra. -(national fibro research assoc.)

2). Nationalfibromyalgiainstitute.org

3). NSF/fibro (sleep foundation)

4). Clinicaltrials.gov

5). NFA (nat. fibro assoc.)

6). LAP (leaders against pain)

7). NFMCPA (nat fibro & chronic pain assoc)

. fmcpaware.org (fibro myalgia chronic pain)

9). American chronic pain association

10). www.fmparternership.org

11). NCFSFA.org

I'm blurry eyed and haven't had just a nap since Sat morning. I hope I made no mistakes in spelling etc. I would print this for reference and when you feel good use a search engine. If I'm off it should be close enough to ask did you mean this?

Id love to help even just one person. Your my support group and have been here for me so often. I just want to thank you all again!

I found some test I'm going to ask to have done, if they can get the blood out of me... I know don't post it drink a ton before going in.

I'm laying here on fire with pain so I must sign off at 4;10a.m. CST. Anybody else keep these hours? Took my 2 Halcion not even drowsy, what a messed up brain. By the way many sites did talk about the brain miss- firing after trauma of some kind be it illness or injury. I had to just start quickly scanning the site to see what was offered vision just to blurry.

Ok buddies have a great week, good weather and spirits!

Sending out a touch on the shoulder and a smile to all

P.S. if you find any sites really helpful please let me know.View Thread

SHARE A SMILE WE COULD ALL USE ONE, THAT
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Posted by1dazygal

15 Replies | Reply | Watch This DiscussionReport This| Share this:LOOKING FOR RESOURCES ON FIBRO? I haven't slept tonight so I thought try something that's helpful. I've seen many newbies...

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