Hi jford~ Fibro causes so many different symptoms, but the main ones for me are all over body pain and fatigue.I knew it was a real condition bc my step-dad had it, and I saw first hand what it did to him. Mine started with pregnancy. (though I had been having issues for years, it came out of hiding when I was pregnant.)
It started in my knees, and rapidly prgressed to my back and shoulders. Horrible pain, tight muscles, I hurt so bad I couldn't (and sometimes still can't) tolerate a touch, a bra, or a fitted shirt. I get so tired that I can barely function, I feel like I have the flu all the time, without the vomiting. (though I HAVE vomited from pain before)
Since then, it's moved on to the rest of my body, and it feels like a horrible muscle spasm in my whole body. Like cramps x 100 everywhere. Like a charley-horse. Sometimes I can't wash my hair or shave my legs because it hurts too bad to lift my arms or bend over.
I go to bed exhausted, and I wake up feeling even more exhausted. I have 2 small children and a husband and a home to take care of, and it takes everything I have to push myself through each day.
This is just what it's like for me, although I have numerous other associated conditions, the fibro is the worst. I feel guilty because I can't do so many things that I want to do for my kids and husband, and it makes me depressed because I lost 'me'. It's hard to explain what it does because it's so vast and overwhelming.
Right now I'm in so much pain, it feels like someone ran over my lower back with a mack truck. I've taken 2 pain pills, a muscle relaxer, and used biofreeze. It's still terrible. Today is worse than yesterday, but it might be better tomorrow. You never know with fibro. Check out Dr. P's discussions, that will get you started. Good luck.View Thread
Thanks ladies. I'm going to get some Boost to keep around. Great idea. I have a night splint for my TMJ but over the years it doesn't fit like it used to. ( I do also grind). I'll tell my dentist about it when I have my cleaning.
Never taken anything like boniva, thankfully. It's just this rotton fibro and TMJ. I made some egg salad for sandwiches today, lol- pretty easy to chew.View Thread
Have any of you had the issue of being too tired to eat? Or being hungry but just not having the energy to eat? Lately my jaw (tmj) hurts so bad, I can't even stand to eat. I'm too tired to eat anything besides veggies and crackers. All I want to do is sleep. It hurts to chew. I hate this.View Thread
I've found the easiest meal for my husband, and he loves it. Bake a roll of refrigerated buscuits and buy a can of Campbells sausage gravy. Bake biscuits, microwave gravy, done. My kids and I don't eat it but he loves it. He thought I made the gravy it was so good.View Thread
Dinner- Sounds like my MIL who comes to my house and then invites people over for dinner. I'm normally agreeable, but the last time she did it, I told her, " I hope they like grilled cheese and tomato soup." And that's what I made. lol~~ I was in a flare and wasn't thinking straight. But at least she got the point.View Thread
Hi all~ I'm Jen from Ohio. I'm not a new member, and I post once in awhile, but lately I feel the need more than ever to vent and connect with others who understand.
I was diagnosed with fibro about 4 years ago, but I think I've had it for a long time. I'm 36 and wonder if I feel this bad now, how will I function when I'm 60? I'm really scared. I also have interstitial cystitis, carpal tunnel, TMJ, vulvodynia, and nerve pain, among other things. My sister was recently diagnosed with MS, and I have so many of the same symptoms, that I'll be talking with my Dr. in March about that. He's mentioned having an MRI done before, but I have the Interstim implant, so no MRI's. I guess now they CAN do a brain MRI, but have to make sure settings are lower.
I've been trying to get off Effexor, and have been tasking 3 or 4 mgs less per day, so as to taper off of it. That may also be why I'm so worried and fed up with this disease. I've done a bunch of research, and one of my theories to the cause of all these autoimmune disorders may be preservatives, toxins, etc. I went vegetarian in Dec, and have also stopped drinking milk and pop. I've cut back on unnatural personal products over the past few years. I still feel like crap. I don't know what to do.
Mimi- I won't forget to tell him. He's awesome. I will also tell him how much we all appreciate him on here, Dakota. I'll give him a hug for you. He's very tall, it's like hugging a tree. lol
One great thing about his office is the fact that they have respect for their patients' time, and I'm never there very long unless I have a major problem. I have never waited more than 10-15 minutes to see him. Also, he doesn't treat you like a drug-seeker, like so many other doctors do if you complain about pain. Since he has fibro himself, he can totally relate.
I'm glad you got in to see him tla1211- I see him on March 1st. Hopefully you can hold out until the 6th- he'll do what he can to help you.View Thread
Do you (mimi) want me to ask Dr. P when I see him on the first? I can tell him that everyone misses him.
tla1211~ If you live or can travel to the Canton area, I wholeheartedly reccommend getting in to see Dr. P. I started seeing him about 3 years ago, and the level of care and understanding he provides is off the charts. I live almost 3 hours away from Canton, but my family lives in the area and I stay at my mom's when I have appointments with him. His practice is called Ohio Pain and Rehab. Good luck dear.View Thread
It's normal to feel bad for yourself when you suffer everyday. It's good to let it out. You just have to try not to get stuck in that frame of mind. I know it's hard to stay positive, and you're so young, it's probably even harder for you.
Staying conected with people who understand, (like us!) can really help a lot. There are a lot of good tips in the replies above. Try to find what helps you the most. (For me, it's hot baths, pacing myself, getting decent sleep, gentle excercise, and eating whole foods.)
I try to avoid taking pain pills if at all possible, for fear of getting used to them and them not working anymore. I do take 1 or 2 muscle relaxers daily, and a tramadol if needed. I've found that if I let myself get into too much pain before treating it, it gets really tough to get out of it.
I take Effexor, Soma, and Tramadol. I'm in the process of weaning myself off the Effexor, because it makes me dizzy and I don't want to take it anymore. Tramadol makes me kind of jittery, so it's not a good med to take in the evening. Soma makes me tired, so I can only take it in the evening.View Thread
Tramadol is what I take for pain. I live in OH but not sure if there have been any changes here. I guess if they ask me for my ID when I get a refill, I'll know. I only take it as needed, and have had no issues with dependence or addiction. It doesn't make me high, but maybe it does some people. That's the only reason some would abuse it, IMO.View Thread
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