
Reply: 1st Year With Fibro
I understand exactly what you feel. When I allow myself to think about how much I've...
Posted by jennagale76
I understand exactly what you feel. When I allow myself to think about how much I've lost, it makes me so sad. I want 'me' back, the one who used to be able to kayak 15 miles and hike 7 miles (barefooted!) with no problem. The one who could stay up late with friends, the one who was strong and independent. I wish I could wrestle with my kids, and play baseball with them and climb trees with them. I wish I could still go to work and be a normal person. It takes everything I've got to get through each day. It's sad. I think a lot of us don't talk about the loss because it's depressing. For me, I try to stay positive because it could be so much worse. But I do feel the loss of myself and I feel guilty about it too. I feel guilty because my husband has to work to support us, and I can't contribute financially. I feel guilty when I'm too sore or tired to play with my kids, or spend private time with my husband. I'm in my mid-30's, and I wonder how I'm going to feel when I'm 60, if I feel this terrible at 36. It's scary and sad.View Thread
Posted byjennagale76
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Reply: Intimacy and FM
Just ease into it. Even when you aren't in the mood, try to talk yourself into it. When...
Posted by jennagale76
Just ease into it. Even when you aren't in the mood, try to talk yourself into it. When you think about what a chore/pain it is, try to remind yourself that it won't take long, and your husband will be satisfied, and you'll probably feel better too, if you let yourself relax enough to 'enjoy' it.
It will bring you closer, especialy him knowing that you don't want to give up and are willing to work on it together. Having an orgasm is a tried and true pain reliever. Take time to relax into it. Communicate to your husband what hurts/ feels good. If he's willing to work with you, it helps. Take a muscle relaxer a head of time. Cuddle. Ask him to rub your back (or whatever is hurting the most). These things have helped us. I'm 36 and have had fibro, vulvodynia, and Ic for 5 years. Married 8.View Thread
Posted byjennagale76
It will bring you closer, especialy him knowing that you don't want to give up and are willing to work on it together. Having an orgasm is a tried and true pain reliever. Take time to relax into it. Communicate to your husband what hurts/ feels good. If he's willing to work with you, it helps. Take a muscle relaxer a head of time. Cuddle. Ask him to rub your back (or whatever is hurting the most). These things have helped us. I'm 36 and have had fibro, vulvodynia, and Ic for 5 years. Married 8.View Thread5 Replies
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Reply: Fibro and MS symptoms
Thank you all for your replies. My sister has had 5 days of 'infusions', of some kind...
Posted by jennagale76
Thank you all for your replies. My sister has had 5 days of 'infusions', of some kind of steroid. She said she feels amazing. She had been sleeping from 5 pm until the next morning every day. Now she has her energy back. I haven't asked her who her Dr. is, but I'll be sure to mention that she needs to look for the best. I have to go over 2 1/2 hours to see my fibro doc, but it's worth it because I get top-notch care, that I wasn't getting where I live. Nancy B.- we live in OH, so we have Cleveland Clinic and Ohio State, luckily. She's been going to her local hospital for now, and I'm not sure what the future plans for her treatment are.
When I see my fibro doc I'll make sure to mention it to him as well. He's located near my sister, and he may know of some good MS docs. (neurologists?)
Thanks so much for all of your responses and info. For now, we're all keeping a positive attitude, but the fear does creep in.View Thread
Posted byjennagale76
When I see my fibro doc I'll make sure to mention it to him as well. He's located near my sister, and he may know of some good MS docs. (neurologists?)
Thanks so much for all of your responses and info. For now, we're all keeping a positive attitude, but the fear does creep in.View Thread
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Reply: Fibro and MS symptoms
Thanks for your replies. Her MS tests were positive. I'm still in shock. My mom is...
Posted by jennagale76
Thanks for your replies. Her MS tests were positive. I'm still in shock. My mom is wondering what the heck is going on with her children!!! There are 4 of us, I have fibro, IC, and various other problems, my older brother is in the process of tests for liver disease, my sister was diagnosed with MS, so that leaves our youngest brother. Hopefully nothing happens to him. I'm so upset! It also makes me thankful for fibro. It could be so much worse.View Thread
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Reply: anyone get rashes?
My face breaks out on the sides of my cheeks and down my neck below my ears. Never...
Posted by jennagale76
My face breaks out on the sides of my cheeks and down my neck below my ears. Never thought it had anything to do with fibro.View Thread
Posted byjennagale76
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Reply: Urinary frequency
I have urinary frequency, but it is due to interstitial cystitis, which is a commonly...
Posted by jennagale76
I have urinary frequency, but it is due to interstitial cystitis, which is a commonly occurring bladder disease in FM sufferers. All of you who have this, or pain with urination may want to google it. Good luck (((((((hugs)))))))View Thread
Posted byjennagale76
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Reply: Do you ever get a break from pain?
No, I never get a break in pain. Some days it's worse and some days it's better, but...
Posted by jennagale76
No, I never get a break in pain. Some days it's worse and some days it's better, but NEVER gone. On my good days I tend to overdo it as well, I feel so good, happy, and motivated I can't help it.
I did have one day this fall that I woke up totally pain free. I was amazed! It only lasted a few hours though. Good luck in finding what works for you.View Thread
Posted byjennagale76
I did have one day this fall that I woke up totally pain free. I was amazed! It only lasted a few hours though. Good luck in finding what works for you.View Thread13 Replies
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Fibro and MS symptoms
My sister is getting a spinal tap today to find out if she has MS. I looked up the MS...
Posted by jennagale76
My sister is getting a spinal tap today to find out if she has MS. I looked up the MS symptoms and most of them are symptoms that I experience daily! I'm scared and wondering if anyone knows how often fibro is mistaken for MS. Or are the symptoms just so similar? Do any of you have fibro AND MS?View Thread
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Reply: Fibromyalgia and ears ringing and fibro fog
I have really bad fibro fog and ear ringing. They both drive me crazy.
Posted by jennagale76
I have really bad fibro fog and ear ringing. They both drive me crazy.View Thread
Posted byjennagale76
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Reply: Persistant UTI and Fibro
Google Interstitial Cystitis. It's a bladder disease that can go hand in hand with...
Posted by jennagale76
Google Interstitial Cystitis. It's a bladder disease that can go hand in hand with fibro.View Thread
Posted byjennagale76
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