Mayo Clinic has really helped me a lot. There is a fibromyalgia clinic here that is really one of a kind. All the staff is up to date on the latest research. The clinic has a 3 day outpatient program for fibro patients. They determined that my condition is bad enough that I wouldn't bennifit from the program at this time. Mayo is trully a place of help and hope. The doctors here spend hours with you (instead of say 10 min) to really get to the root of the problem, and all your doctors work together to help you. Anyway here is the schedule for the fibro clinic outpatient program: Day 1-Meet w/ an RN nurse, and a doctor who is an expert in fibro. Day 2- 8 hr. class on learning how to live w/fibro. The focusing is learning strategies that don't involve medication. You recieve books while you're there. Day 3- Personnalized physical therapy session. *More appointments/tests will be scheduled for you if the doctor determines that you need them. The hotels in Rochester are understanding about schedule changes. Address: 200 First Street SW Rochester, Minnesota 55905 Website: www.mayoclinic.orgView Thread
I've been having a lot of trouble with itchiness lately. Two nights ago I went to bed & was doing my relaxed breathing (iwas very relaxed) when suddenly I became very itchy. My chest, arms, & legs became itchy & it got very intense. More intense then I have ever experienced it before. It was this kind of deep burning itchiness that intensified. It felt like I was under attack by invisible fire ants & my skin was melting off. It became so painful that I couldnt lay my arm down on the couch or touch my arm at all, if my skin came in contact with anything it seemed to make it worse. I lathered on a lot of unscented body lotion which really didn't do anything. Anit-itch creams make me more itchy. I had to sit with my arms held above my head until the sensation eased up & I could finally retire to bed. I seem to get the itchy symptom periodically but it is completely random although it usually happens at night. My questions are: Does anyone else experince this burning itchy sensation? Have you found or heard of anything that can help? Thank you very much!!!View Thread
As I'm sure is the case with many of you I have IBS as well as fibromyalgia. In your opinnion which works better the fiber tablet pills or the fiber powder drink? I really need to find something that works!View Thread
I was wondering if anyone has heard of Central Senitization Disorder? The doctors I've seen at Mayo Clinic believe this may be the cause of fibromyalgia of course its still just a theory. My doctor said the the thalmus in the brain is letting all the signals thru instead of flitering so we're more sensitive to things like lights, noises, touch...etc Our senses are heightened due to being in a constant fight or flight mode.View Thread
Sorry yes that was a typo I meant habit. Don't panic though my spasms began when I was going through Cymbalta w/drawl. Its somewhat hard for me to understand but as near as I can tell my doctors belived the spasms was a result of Cymbalta. However now I have been off the Cymbalta long enough that it is no longer in my system but I'm still having the spasms. I can't control the spasms (in my legs, sometimes arms) no matter how hard I try. I've tried not thinking about it too, distracting myself but that also doesn't work. I went to Mayo Clinic and basically they believe the Cymbalta triggered a habit response. So my brain has gotten into this vicious cycle w/the spasms & it cant stop. They said that I need to the Best Program at Mayo where they help people like me break this habit for good. After that I will need some training for my brain too. Its the same thing as the usual physical therapy exercises. Hope that answers your questions.View Thread
It was suggested by a Mayo Clinic doctor that I try Cognitive Behavioral Therapy to try and help turn down the pain signals. Have you seen any positive results from this therapy?
Also, I had a very bad reaction to Cymbalta and have now been off of it for about one month. Continuous muscle spasms in the arms and legs resulted during the withdrawal time. They have improved but have not gone away. Have you seen anyone with this problem? Have you seen them go away on their own?
A Psychologist at the Mayo Clinic thinks the Cymbalta triggered a dysfunctional habitat that needs to be retrained. They have a one week program in the physical therapy dept. to do the retraining. I am trying to get in sooner than my appointment in two months.
Any additional thoughts you have are appreciated. I will check the prior discussions as well. Thank you!!View Thread