I'm so glad this is a place where people actually get it! It's like a great big fibro family. Yesterday I was with friends who were complaining about "one time I had the stomach flu".... I told them I can't be sympathetic to that kinda thing when I feel poorly every day. So its good to know that we can vent here & be understood.View Thread
Its such a relief to know that other fm patients have trouble understanding the condition too. Sometimes I just don't understand why my body isn't responding the way I want it to. I do have a low level of Viatim D and I'm taking a daily supplement for it now. Thankfully I have an appt. w/a rhumatologist this week my regular doc has thrown up his hands in defeat. I gave my best a brochere on fibro & I think that helped her to understand a little better, but you're right its really not worth the effort.View Thread
I have trouble knowing how to explain fibro to my friends. I feel uncomfortable telling them about all my symptoms. Especially my daily struggles (like getting out of bed in the morning & getting something to eat). I feel like it would be too depressing for my friends if I told them everything. I have a bad habit of minimizing my situation w/friends & doctors because I don't want to seem like I'm making too big of a deal out of everything. Some days I can't plaster a smile to my face & prentend that everything is fine. I feel like no one wants to be around me on days like that, which gets lonely. What do you tell your friends? Do you think there is such a thing as oversharing?View Thread
I know how hard it is sometimes to go into the kitched & get something to eat. Some days I don't eat very much not because my appetite has changed but because its too hard to make something. Thank you for sharing that about your cognitive issues. I thought it was just me who had those kind of problems. I would rather have my body stop working right than have trouble using my brain, it is scary. I was playing cards w/my cousin and grandpa one day & I forgot instantly what card was just layed down, I had to ask. They laughed because they thought I was joking , then they realized I was serious. I also have trouble forming words & speaking sometimes when the headaches are really bad. My sentences come out sounding funny even the thoughts I think to myself in my head are out of order. Have you heard of anything that can help with that? I wish you the best of luck w/your fibro problems I hope u are having a good day!View Thread
The lack of understanding from others is my biggest pet peeve. People seem to think that if I go out & do something I can ignore my symptoms & I'll feel better. There seems to be this false idea that if you ignore it then it will go away. Also sometimes my migrains are so bad I can't speak. I have been accused of being negative and being in a bad mood. I'm not in a bad mood I just feel awful, I wish people could understand that.View Thread
Thank you for your reply! I haven't heard of Costochondritis before I will have to look that up. I had extensive testing done at mayo clinic for the dizziness and they determined that it is coming from my vision/eyes. Thanks for the advice!View Thread
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