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Hi and welcome- you have support here! And knowledge that only Fibro patients can relate....
Posted by Surfside6
Hi and welcome- you have support here! And knowledge that only Fibro patients can relate. Sadly, it is a slow process to find the things that will work for you. Everyone is different. And complaining is not a problem. You need to get it out and move forward. I am wondering if you are having so much pain during therapy and after, if this is the proper care for your situation. 2nd, 3rd and 4th opinions are warranted for any of us who have doubts, be it diagnosis or treatment. I hope you will find a lot of encouragement here as I know it can be beneficial. Keep us postedView Thread
Posted bySurfside6
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Reply: Cold weather..
FYI - I researched a little on this site. If you go to the Breast Cancer community and...
Posted by Surfside6
FYI - I researched a little on this site. If you go to the Breast Cancer community and look for a discussion that starts "Can Food Be My Medicine?", you will see a discussion about both BC and Fibromyalgia. I think the FB starts around page 5, with a letter from me about glucosamine etc. So when you have a chance, and need a break, grabe a cup of tea/coffee and head on over there for a quick peek. Hope it may help a little. Just for your info as to my situation, I have had FB for 30 years (and yes, one of the worst aspects is people, even family, don't really understand what we are going thru. I also had breast cancer two years ago and am doing great. My hubby has Lewy Body Disorder (half Parkinson, half dementia), so I am a full time caregiver, which aggravates my FB if I don't get my rest. You have to be your own advocate for your health and know your strengths and weaknessess. I have been VERY fortunate in my health recovery...........View Thread
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Reply: Cold weather..
Good luck to each and every one of you. I have had Fibro for several years but have...
Posted by Surfside6
Good luck to each and every one of you. I have had Fibro for several years but have managed very well. There is another discussion of this on here someplace that you might find helpful. That's where I first got connected. I have not been on it for months, however, so I hope it is still there. I talk about the treatment that works for me, and I won't bore yu with it right now. The winter weather (or CHANGE) does affect how I feel, no question. I also avoid acidic foods, like orange juice! Can't hurt to try. One of the above posters mentioned moving back to a colder climate and the strange temperature pattern we've had recently. She must live next door to me!!!!...in the NortheastView Thread
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Reply: Not sure I am buying my fibro DX....
Hi ....Just a few general comments to all who have contributed to this discussion. I have...
Posted by Surfside6
Hi ....Just a few general comments to all who have contributed to this discussion. I have been diagnosed for several years with fibro (and told I do not have it, by others) so I just go with the flow and do what feels comfortable to me. I am very fortunate to have had limited"spells" and can lead a pretty normal life for the most part. Went to the chiropractor recently for my usual 6 week visit and complained about pain in my back (a new spot), which he feels is the fibro, not my back. Got some relief, but not as much as I expected. I have one comment about the trigger points that someone made early --- that the fibro does not move around. I found that comment unusual because every dr. I have has said the hardest reason to diagnose is because every one reacts differently and no two days will be the same necessarily. They do think it moves around, in their opinion. I like to think it does move, and that's why I feel pain in different places from time to time. Maybe something else is going on? Lupus, Arthritis? So far, so good. I do not take, nor intend to take, any fibro meds (Lyrica, etc) until I absolutely have to, as I have bad reactions to the most banal drugs. Also, I had radiation two years ago for breast cancer, was on anti cancer drugs for two years, before I said NO MORE. The pain was worse with the drugs. Have been off for a few months now and feel better than ever. This is a disease that has to be treated and respected as a changeable one, for most everyone I have heard of. Just try to learn your limits and don't try to do it all, all the time. Life is too short to be in such pain. Good luck to all of you......take careView Thread
Posted bySurfside6
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