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Fibromyalgia Community

Reply: Fibromyalgia

Hello, I am a male with Fibro, and I agree that the reason might be that we tend to...

Posted by Just_a_Scots

6 Replies | Reply | Watch This DiscussionReport This| Share this:Fibromyalgia Hello, I am a male with Fibro, and I agree that the reason might be that we tend to...

Reply: Spouse just does not get it

Hello everyone, I just want to say that spouses that don't understand is not a...

Posted by Just_a_Scots

88 Replies | Reply | Watch This DiscussionReport This| Share this:Spouse just does not get it Hello everyone, I just want to say that spouses that don't understand is not a...

No Medications available?

Hello, I don't post much to this group, but try to follow the posts. I was just...

Posted by Just_a_Scots

5 Replies | Reply | Watch This DiscussionReport This| Share this:No Medications available? Hello, I don't post much to this group, but try to follow the posts. I was just...

Reply: Lost post/ maybe not

Hello, I'm a male with FM, and I can also say that my spouse does not understand. I...

Posted by Just_a_Scots

11 Replies | Reply | Watch This DiscussionReport This| Share this:Lost post/ maybe not Hello, I'm a male with FM, and I can also say that my spouse does not understand. I...

Reply: Male - New to site - Is there any hope?

Thank you each for your replies. Right now I am in a bad period. My good ones don't...

Posted by Just_a_Scots

Thank you each for your replies.

Right now I am in a bad period. My good ones don't come by too much anymore.

Since I am allergic to the sun (and yes the docs supposedly ruled out Lupus), I have to take 4,000 units a day of vitamin D, to just stay above 30 on the scale. My doctors don't worry about your level as long as you stay above that.

Here are my major problems:
Fibromyalgia
Diabetes (thanks to the weight gain)
Low testosterone (level has dropped even though I am using the gel for TRT)
Sun allergy
Migraines
IBS
Shakes
Exercise induced hives
Asthma
Allergies to most antibiotics
fatigue
Depression
Problems with memory and learning
Sleep apnea (I use an APAP machine)

I have tried savella, lyrica, cymbalta (really hated that one), effoxor, and about 50 different anti-depressants. At best they didn't help. Some of them almost put me on disability just from the reactions I had to them.

I am currently taking:
Metformin 250mg (1 a ay)
cyproheptadine (periactin) 4mg (2-3 times a day) to prevent the hives I get from the sun exposure I can't avoid
singular 10 mg (1 a day)
amitriptyline 10 mg (1 a day to limit the headaches and migraines)
Androgel 1.62 (4 pumps a day for the TRT)
Vitamin D 4000 units
Vitamin C 500mg
Whole foods multi-vitamin (1 a day)
Triple omega fish/flax/borage (1 a day)

I also have on hand:
Flexaril 10mg
Triam/HCTZ 37.5/25 mg (for the swelling in my legs)
Zomig 4mg Nasal (If I get a migrane)

For me this is pretty much the minimum I take. You will notice that there is nothing for the pain or directly for the fatigue. The doctors around here will not prescribe anything other than the anti-depressants for those symptoms, so they do not do me any good.

We only have about 6 rhuematologists around my area, and I am on my 4th family doctor. The first one actually told me to never come back (of course he thought it was all in my head).

The rhuematologists that diagnosed me just through some pamphlet at me and said there was nothing he could do for me and to work with my family doctor.

I live in Iowa so there is almost no choice in doctors around here. We seem to get the lower end of the ability scale when it comes to health care.

Thanks everyone for the ideas. I will try and work through this one again, but it does seem to get harder each year.View Thread

Posted byJust_a_Scots

10 Replies | Reply | Watch This DiscussionReport This| Share this:Male - New to site - Is there any hope? Thank you each for your replies. Right now I am in a bad period. My good ones don't...

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