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I am not sure what medications you can have in the USA but my doctor prescribed Ropinerole for me. I took it for four or so months and it really helped. I wasn't allowed to stay on it for some reason but so far the RLS is still now managable without the medication.
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Jilly in the UKView Thread

I have only recently been diagnosed though I have had problems for years. It's a steep learning curve and I am finding it hard to explain to those about me just how I am feeling. I diid find giving my husband The Spoon Theory found on www.butyoudon'tlooksick helped them understand better.
I am so sorry you have had to join this "family" but you have found just the greatest place for support and information.
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Jilly in the UKView Thread

later as usual here.
Hope you all are doing as well as you can.
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Jilly in the UKView Thread

it isn't pity at all to feel this way. You have a massive amount on your shoulders and even the strongest person's knees would buckle under the weight from time to time. I have not real advice beyond telling you that it is OK to feel like this and sometimes we need to allow ourselves to fall to the floor. And don't worry that you are too low or worn out to pray. Let us take over that for you. God hears everything we don't say too.
Be gentle with yourself. Remember you deserve the same loving support you give others. It's hard to see the light when we are stuck down in this deep dark pit but the light will be there.
Gentle hugs
Jilly in the UKView Thread

as another grandmother, I had tears in my eyes reading your post. I just can not begin to understand why that lady would do that to her own children and to try and turn them against you. Children are people not some tool for manipulating things to the way we want them. It sounds like you and your son are giving the children what they need the most, love, security and boundaries. I am just sorry you are dealing with this, you sound like one very special lady .
((((((Jan)))))
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Jilly in the UKView Thread

Today we had the rehearsals for the dance exams which are next saturday. Fibrofog added a whole new depth to the day. I can't keep subjecting the children to my brain going missing so often so I am on countdown until I leave work on the 9th of next month. My boss seem intent on 'punishing' me for resigning and is making each day harder and harder to get through. She doesn't understand fibre despite my best efforts. I just don't know how to explain it any clearer to her

Nancy, I hope the Dragon read your letter and cuts you some slack.
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Jilly in the UKView Thread

I am late as usual. Wet and windy here, we've had a month's worth of rain in one day.
Really struggling to cope with lack of sleep at the moment, I only seem to manage an hour and a half then I wake up, go back to sleep half an hour later and repeat the thing again until 4am when I give up. Could be worse though.
Hope you all are doing as well as you can. The states hit by Sandy are still being shown on our news and my heart goes out to everyone suffering. I heard that there is still no power for some people and that gas is rationed. I hope it get resolved soon for you all.
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Jilly in the UKView Thread

hello from windy UK. It is our Guy Fawkes night so fireworks are going off all around the country tonight.
I finally had to admit defeat and will be stopping work on the 9th December. I am heartbroken I can't dance anymore but I am living with my body screaming at me and I guess I have to start listening.
Good news is that my VitD level is going up
. Thanks for drawing my attention to how important that might be.We don't have Thanksgiving but I know my American family do. I was skyping with my grandsons yesterday and they were full of their plans for the holidays. I wanted to come over to the US for Christmas but can't do it this year but with luck, I will be over for Spring Break so I can get excited about that
.Hope you are all doing as well as you can do.
Hugs
Jilly in the UKView Thread

Please stay safe.
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Jilly in the UKView Thread

I have had the steroid injections in my knees, elbows and feet. The ones in the knees and elbows were just brilliant and gave me nearly a year of relief. The ones in my feet lasted for a day
. This is mainly because they could only target one area and it wasn't enough.I have had sessions with the Pain management team at my local hospital here in the UK and it was well worth my attending. I got so much help and support so I hope you are as lucky.
Hugs
Jilly in the UKView Thread
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