I am 50. I was dx at age 48, however I think I have had it a lot longer than that, just didn't know what is was until dx. I also have Type 2 diabetes and have been taken gabapentin for it for long time so that may have masked it too.View Thread
I had problems as teen. They kept telling me it was "growing pains" until on doc sent me to a specialist in Philly. Said I had Juv R/A.. The fun began then.
My poor niece was having probs too with women issues. I told her till doc history with me her age with endometerosis.sp?? So told doc next appt, finally checked her out and she has it too. I knew the symptoms but not one else would listen to her.View Thread
Ok, so still job looking and on unemployment. I am still getting told I am over qualified for the jobs though. I keep telling them in interviews I do not want all the responsibly and am looking for slower paced job. I know it will also be less money. I have no problem with that, but I think I think I will leave if find better paying job. Or they don't want to hire a 50yr old woman and insure me??
Ok now about disability.. I am getting worse. My right hand up to my shoulder goes numb and tingling within minutes of trying to use it. I can't hold things as don't feel them. forget the mouse on my computer not sure if pushing down on it. Typing now with numb fingers. Plus pain all over is just getting worse and knee, etc. My doctor told me though that I can not apply until my unemployment runs out?? He said first ? have to answer is: am I able to work and looking for work? Said if apply for disability means I am not able to work and they will take it away from me. Is this true??
Also I am thinking of changing Rhuemy doc, as he feels I can find suitable work if keep looking. He feels not bad enough yet with chronic pain and fatigue to apply as I make it to my appointments. I want to say did you notice I used to always have the first appt of the day so I wouldn't have to wait when backed up?? Then it became 11 am, then after lunch, now anytime after 4 to get my butt going. But I bet he doesn't even notice that. OR how hard it is to get the office and my kid now drives me!! I just feel like he is not listening to me anymore. Thinks I am whining and wanted to up my Savella. Said no, not taking more of it, mood has been different towards since won't up that horrible stuff.
I also had him change it back to Gabapentin 2x a day as cheaper for me with no insurance and paying out of pocket. Plus feel that the Gaba also helps more with my diabetic nureopathy. Wow got to go my hands are tingling like all heck now.
Crystal (yes, I am still lurking, just can't write as much due to pain)View Thread
I used to have pain in my jaw or TMJ. I have had r/a since a teen however the jaw TMJ didn't start until I got FMS. I asked my Rhuemy about it and shortly after he dx me FMS. If you look around this is actually one of the symptoms people report with FMS. I did not know this until being dx with FMS. Just do a little research and TMJ will come up with FMS.
Do you have any other joints which or seem swollen? Do you run a low grade fever when swelling? Have you checked the trigger points for FMS? Any pain in those areas? This site is full of information! Keep reading and researching. Since you are only mentioning one joint as hurting I would lean towards FMS more so than r/a. Having both though I can't tell you which one is worse for me, it depends on the day. Also again not everyone is the same with either too. Good Luck with your doc. Or could be neither too!
I am bumping this up as I would like to know too. My husband had a 3 disc fusion done a couple of years ago. His doc has been suggesting this too. Also you might post this on the pain mngmnt community/site has others in that community may have had this procedure.
Hello Worn1, thanks for being her friend, what we need most in life is friends. I have FMS, Lupus, R/A and Type 2 Diabetic. I know when one flares they all seem to join in and have a party in my body! LOL I have been in a flare just over a week now. It started when I fell 2x within 3 days. I over did it yesterday and now have a Bakers cyst in the back of my right knee.
I know the Lupus comes first, yet to me the FMS bothers me more. Again each person is different. I also have trouble with the Lupus being diabetic have to watch my sugars with some medications used for it or the FMS
Exercise again all different. Because I have had R/A since a teen I can only walk, and that not much. I have to use a cane also to assist me, which I hate but has come in handy a few times. I am short so use it to, to reach things in stores. LOL My doc did say also I could use a recumbent bike not a reg stationary one due to my knees. I am searching Craigslist in my area now for one. (when the flare is done lol)
Talk to her, see what see feels she can do? Also I suggest she join our group on here. This group as helped me a lot if nothing to know I am not the only one with these issues. I also lurk on the Lupus community as well. That community may be good for her too. I just prefer this one though.
Read and read on here. MeMe also has good advice on supplements and Vit D which I found mine was very low. The Vit D supplments I feel do help. We have several good people on here besides the docs, Booch, xperky, Meme.... really good advice here.
Hello Jillylin I get this once in while too. I either use Voltaren gel, muscle rub or aspercreme rubbed in to my leg. I also take Flexeril for it with them, only way can sleep when it bothers me. Hope this helps you.
Hi Angelswife, boy do I feel for you. I hate the nerve damage more than anything! I laughed when you used terms bee stings (I still look see if bee did sting me lol) and sledge hammer to your ankle. I use the Voltaren Gel and Liticane patches too as others have listed. However for my neurophy pain I use Neuragen cream. It is for diabetics and the nerve damage I have from it. You can get it over the counter, Walmart, etc. Sometimes Walgreens has it on sale. It helps me thought it might help you too.
Well I can say with no doubt the hair on my legs do not hurt, as I have none! LOL I am completely hairless from the neck down. I do however turn red on my legs it looks like sunburn and hurts like sunburn. I am very pale so it is very noticeable when this happens.
I also have lost hair on my scalp. I get red there in spots as well, but at times my scalp itches so bad and again feels like sunburn. I have been in a bad flare all week so I have had issues with both this week. My Rhuemy just says it's all a part of FMS. I do think it is nerves though as I don't have hair.
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