I so know how you are feeling! My joints over the yrs have changed, I hate my toes and my hands the worst! I have fallen twice now in 3 days. So today I am in a big flare. No relief, my Tramadol is only taking some of the edge off. But better than nothing. Oh, I have lost a lot of hair, neck down, none!
I am in the recliner today with my feet up. Last night I was sooo swollen I almost went to the ER. I thought my skin could not possibly stretch that far out!
But my hubby and son are there helping me thank goodness. I wear wigs when I go out. I don't dare where sandals and show my toes. The hands when people see, actually help me since we moved to WV. They carry my bags for me etc. I am so glad to be back south, I love the southern hospitality. But yes it can be a real kicker on our self esteem!
Has your doctor tried Savella yet? I took the other two meds also and all they helped me with was neuropathy(diabetes nerve damage) not my FMS. For pain I don't take narc meds either I prefer Tramdol(Ultram). Both of these I have found the best for me. And Flexeril for muscles, mainly at night to sleep. But will take with Tramadol during day if bad flare.
But like we all say on here, no two people are the same! But ask your doc about these if you have not tried them yet. It takes time to find the right cocktail for each of us!
Well not so good here today. I have fallen twice in the last 3 days. Last night my feet were so swollen I thought my skin can't stretch that much and would break open. My toes were swollen and red, like big fat sausages. Now woke this morning and boy am I in a flare. Nothing seems to help so far.
I think I have been stressed too much lately too. I trying so hard to find a job before my unemployment runs out. They either just don't answer back or I get the too qualified for the job. No sh** Sherlock I am over qualified didn't think I knew that when applied? Ever think I wanted something less than what I had before?? It's just so frustrating for me as I have never had a problem before getting a job. Now with all my issues and turned that wonderful corner of 50 no one seems to want to hire me
Well done venting. Feet up in the recliner and already my arms are aching from typing. I hear thunder in the distance too. MiMi and Angelswife hope you both feel better soon. This dragon is certainly dragging today!
Hello, It is sunny once again here. We did have a late afternoon brief shower yesterday. I do enjoy the sun even if it does break me out in a rash. LOL
I was feeling pretty good. Then a bout of chronic fatigue and IBS struck me. I went to bed Friday at 10 pm after falling asleep several times in the recliner. I slept until 11am, which if very unusual for me! Then zonked right back out on the recliner until 2 pm. Only got up when my stomach made me. I ran errands by self on Friday morning and I was paying for it.
I slept thru last night as well, but still having trouble staying awake again today. Also still have the IBS issues. I feel like I have the flu, hopefully I'll have a good day soon again. I am still working on the pace, pace and pace some more. Maybe one day I will learn! LOL
Hope all feel better soon. MiMi, Angelswife, Nancy take care, hugs your way for healing.
Why did I come here? I have had R/A since a teen in hs. So I had dealt with that for many years. My knees, hands and toes being the worst of it. I was told my job, which I loved, was being moved to another location, in fact our whole plant was moving and closing. So stress began. Few weeks later felt had the flu, knew it was different pain.
I went to my primary and explained what I was feeling. She knew for me to complain in pain something was wrong. She ordered the usual bloodwork. Came back, Epson Barr, high ANA but nuclear this time as well, low Vit D etc. Sent me to Rheumy doc. Said I had soft connective tissue disease, chronic and would be in pain rest of my life. Sent to pain mngmnt and dermatologist.
Well not liking to take pills I did not like the answer go to pain mngment rest of my life. I searched a new Rhuemy. He looked at all my bloodwork and asked me questions. Did the 18 pt test, had them all. Couple spots near about jumped off the table at the slighted touch. He dx me with FMS then ordered more blood work. Then came dx Lupus with FMS.
Then we were all laid off from work April 2010. I had a bad flare. Started be depressed first time in my life. My Rheumy suggested I come here. Said I will learn a lot more about the FMS and Lupus. I learned to live with R/A. I lurked for a while and read all I could before I ever first posted.
You helped more than you know in the beginning of my learning my dx's. I found knowledge, comfort and comradely. I learned that I was not alone. I wasn't going crazy. SO many of you had the same symptoms as me! I have accepted it now and don't view it as a death sentence. I have good days and bad days. Even good days have pain but can live with it with the tools and resources. I have learned of supplements I can take to help as well.
I am forever grateful for the group and all who have helped me through this and all still to come!
They can be I believe, as I get them at times too. Sometimes I have chills, then will have the sweats. My hubby laughs as I carry a light sweater with me in the car, because if the air is too high in some places I freeze. Then can break into a sweat! We seem to be sensitive to a lot of things with FMS. Light, sun and smells bother me too.
Good morning all. Nancy good luck today. MiMi hope the back is better today. Angelswife hope the foot is better. I too sit out on my deck and so see much wonderful life around me. We recently moved to beautiful WV.
Had about my average amount of sleep last night, around 4 hrs.Still not feeling too bad today. I have some errands to run. My dear son said he would drive me. So thankful for his help, as I know the errands will knock me out later.
Crossing my fingers, I applied to 5 jobs yesterday. Let's see if any of them call me for an interview? One I would really like to have as seems just what I was doing in Jersey for yrs. So we shall see!
The weather here again today is beautiful, in the 70's. Gentle mountain breeze. Well need to get ready to run the errands.
Gentle hugs and hoping for a good day for all !!!!
Sorry to hear Margaret. I have had R/A since a teen. My ana has always been positive and now nuclear as well. I remember going to new PC doc in my 30's and him asking me if I some how managed to break both my pinkie fingers and not get reset? LOL Told him no. R/A since teen. He then looked at my toes and knees! I never wear open shoes now!
I have read many of your post and find comfort in them. I also kind of wonder about your user name. Xperky? I don't see you as a X perky person I still see the positive thinking and perkiness in your posts.
I got sick towards the end of one job. We were told the plant would be closing and moving to new location due to company downsizing. Yippe! Shortly after got sick. Went to doc, after tests sent me to Rhuemy doc. Said Lupus, soft connective tissue disease as well. Got second opinion. Liked new doc better too. Said Lupus and FMS. Great job ending soon and sick. My supervisor there too was great and so understanding when I told him. He worked with me.
Ok, so out of work for 6 months Cobra affordable with new things from govn. Started new job 6 months later, one week into it flare from hell, both Lupus and FMS. So my job performance was affected. NOT understanding like last boss. I was forced to take their bene's after 90 days. They sucked compared to my old bene's and cost a lot more. Well after six months there laid off. Could not afford Cobra this time. So no medical coverage.
My new Rhuemy gave me samples Savella and discount on office benefits. Helped me greatly. I now have to pay myself for Tramadol and Flexeril. Again doc helps with other meds. I go to clinic for diabetes meds, free.
However now I have been unemployed for just over a year. I go on interviews, love resume until realize age on interview. They don't even bother to call back now. My doc asks me all the time if I am unemployed and so much pain how do I expect to work? Last job laid off from it. Well have to explain to him I cannot collect unemployment (my only money) and apply for disability. I will have no money coming in while I wait, which I understand can take some time. So I am caught in the viscous circle.
However I am lucky I have good friends, spouse and son. My friends know what I used to be like and how I am now. They invite knowing will not always go, but still invite. When do go they will make me go home when see I am overdoing it or look tired. My son and spouse help too. Other family members different story. You know, the you don't look sick. But also know have had R/A since teen and think it is that.
I think we all grieve our old life. It takes a while to accept it. I have learned to accept and cope. I am in pain every day, some days better than others. But I am STILL ALIVE, and thank God for that every day.