I feel like it's more like my finger tips and toes. I wouldn't say completely numb just less sensitive. I do have problems with grasping things at times or opening doors/jars. I do believe mine is from fibro.
A lot of people with fibro also have Reynald's syndrome. Not sure that I spelled it correctly but it does cause numbness in the fingers and toes as it progresses. Sometimes my fingers and toes turn white-ish almost like the color of a corpse. Don't know how else to explain it lol. I do know that my fingers and toes are always cold and are very sensitive to hot and cold but that can be related to fibro as well as Reynald's. No pain with it just the typical fibro discomfort.
Maybe look it up and see if you have similar symptoms or ask your doctor about it. Just a thought, hope it was helpful
Not to continue with the indifferences of the post that I believe you're referring to but I can absolutely see why it was upsetting. It's been said before but everyone deals with FM/CFS differently and by that I mean some are in more difficult situations such as working crazy hours and not sleeping. I'm more like you with having pain 24/7 though at times it's not a 10 it's still pain. Not sleeping only intensifies your pain as I'm sure you're well aware of. I think people that have more of "set" work hours and maybe better sleep schedules, don't experience the pain like some of us do.
EVERY case is different and I could easily be called a complainer but so what. My theory is "until you walk a mile in my shoes don't assume you know my story".
Everyone here shares their lives, good or bad and if someone is having a "give up or give in day" then encouragement goes a long way. I would be lying if I said I haven't posted similar things about just being done with all of this. It's a moment of weakness that can't be helped. I wouldn't wish this on my worst enemy !
I do believe that a positive attitude can help carry you through a rough patch although it's extremely hard to be positive while dealing with chronic pain. I try to wake up and think "ok, I'm going to be positive no matter what" well sometimes that gets me to the shower and then I fall apart because it hurts to even walk to the bathroom and I'm so exhausted.
I do have set hours at work but that doesn't mean it's any easier so I can't imagine what you go through. Even at my worst, I try to be there for others that are having a bad day. They have no clue what I'm going through and quite frankly even if they did they wouldn't care. It seems that I'm always the one asking how others are and trying to "fix" them. I know better than to add stress to my own life but I can't help it. I guess that why it's 1:10 am and I'm reaching out to you lol.
I'm going out on a limb here and saying that maybe she didn't mean it the way it sounded even though I was slightly offended by it. I've noticed if a FMer is having a good day they want to maybe seem positive but it comes out as "suck it up". I don't know. I guess I just wanted you to know that there's a lot of great people here that do get it whether they're having a good or bad day because we all have bad days and sometimes days turn into weeks and it's very easy to give up. Yes it is your choice but that's for you to decide and if you give up or give in then that's just what you have to do Just keep in mind that we will listen and offer up advice even though you may hear the same thing over and over its because for the most part, people are here to help get you through your bad day.
It seems that there's always negative comments, not just here, but everywhere when people don't understand what you're going through. Some don't have it/life as bad as others so please keep that in mind. And that goes for life in general.
Please try to stay positive in a negative world. And with that being said, I should take my own advice !! I hope things calm down and get better for you and know in your heart that you're doing the best that you can with what you have to work with. Don't let people get to you, that is definitely going to add to your stress. It's you that matters, nobody else.
Fibromyalgia and woman by Barbara Keddy. Interesting studies/information regarding FM and Chronic Fatigue. Haven't made it to the end yet but a good read. No real "cures" because there isn't any lol but very interesting. Shares stories of other women's dealings and for me it validates what I'm going through.
Barnes and Nobles has it for Nooks at a reasonable costView Thread
Ok so I'm one of those people that knows zip about LTD insurance. I've heard a lot of talk about it recently but was under the impression that if you have "pre-existing" health problems that you could not qualify. Can you give me the short version if this so I will at least have some knowledge when I inquire about it ? Is it through your employer or outsourced ? I guess I assumed that it fell under "disability" therefore you would be denied time and time again. Sorry, some ignorance here on all of this.View Thread
Also, I wanted to let people know about a new book I'm reading that I've found very interesting called "Women and Fibromyalgia by Barbara Keddy. For me, it's been new ideas and theories regarding FM and Chronic Fatigue. Barnes and Noble has it for Nook.View Thread
My opinion is that it's part of your FM. Sometimes my ribs hurt so bad I feel as if I've been hit by a truck. Also my sternum hurts to even touch it and it makes it difficult to wear a bra ! My knees and elbows do the same thing as well, sore, hot and it's as if I have hives on them. Clothing bothers them.
NSAIDS seem to help or like the others have suggested, topical pain relievers. Sorry you're dealing this on top of the sleeplessness and everything else FM has to offer. Mine comes and goes so maybe there will be some reprieve for you in the near future. Unfortunately it's temporary relief !! Drink lots of water, soak in hot baths with Epsom salt and or moist heat seems to be helpful.
Everyone already told you this, just trying to reinforce the effectiveness
I'm sure I will repeat what has been said before but only because it's the truth. We have all been where you are mentally, emotionally and physically. It's easy to fall into that slump and much more difficult to climb out. Everyone says that you should exercise, stretch, eat the right foods and get rest. This seems impossible to do when you hurt, can't sleep and feel like the world is caving in. I would get so angry when people would say that because I already knew what I was "suppose" to do and I felt powerless, out of control of my own body and mind.
What I've found that helps me is to think of how my life could be so much worse than just having this stupid thing call FM. For example; my mother in law, that is in her early 50's, has been battling cancer for almost 3 years now. Fighting for her life, good news, bad news, chemo and radiation. New tumors and more surgeries, it's endless. But what gets me is that she is fighting so hard for her life and I'm so selfish by wanting to end mine.
When you put things in perspective and compare what you have to someone that would love to say "I have fibromyalgia" instead of "I'm battling cancer" it makes you look at things differently. I'm not saying that dealing with this day in and day out is an easy task, because I know it's not, I'm just saying it could be far worse. I'm not judging you either because I've also said that I wish I could just end all of it. It's so depressing and no one can comprehend what we go through unless they've been there.
People can't see your pain so it's easy for them to dismiss it. I know your not crazy, it's real. It's unfortunate that your family isn't more supportive but I do know that everyone here is. All of us know how you feel and what your going through so please talk or vent here. There's years of experience right here to help guid you. I don't write very often (I tend to ramble on) but I do read a lot of what people are saying and have learned so much.
I do hope that you feel better soon, don't let this beat you. It's a struggle to stay afloat, you'll have good days and bad days but remember it could be worse.View Thread
The important thing is that you can recognize that your meds aren't working and you need adjustments. A lot of people don't get this, therefore they get in trouble with depression. I'm so glad that you have a wonderful husband that you can rely on, I wish others had people in their lives that special. That kind of support is a definite must !!!
It is so ridiculous what people go through to get help with our gov't dollars. So sorry that you have to deal with this. I have no insurance so I feel a little "stuck" at times as well. It's expensive to be ill lol. I have applied for help but apparently when you work you don't deserve help in my state. I make too much money, really ? They obviously don't pay my bills.
I'm having a really hard time with this Christmas thing this year as well. I'm over it, it's become such a hassle and impossible to enjoy. It's all about everyone else and making things perfect...yuck !! I do enjoy giving, that's just my personality but it's so exhausting at times. I'm worn out and don't much care. What I have done, is it. Take it or leave it, I can do no more. It'll work out it always does so I'm not going to stress about it anymore. Ok, I've taken enough of your time. Keep your chin up.
Maybe he should educate himself a little more on the illnesses you deal with. I'm sure he thinks he's doing what he thinks is best for you but I think one needs to know the enemy before storming in without the right weapons.
I've never heard of a doctor not taking medicare because you're not 65. Assuming you are disabled ? I wouldn't think that it would make a difference, Medicare is Medicare, right ? Can you talk to someone and find out who is a provider ?
I'm not trying to be downcast or anything, I obviously don't know much about how it works but there's got to be a way to get a provider list. I work in a physicians office, as a nurse, but my employer takes Medicare regardless of age.
I probably wasn't much help, I guess I'm just not understanding this.