I haven't been on here for a very long time. Partly bc I don't take the time to do so but part of me was getting discouraged or depressed by reading the same thing over and over. Meaning that Maybe I wasn't hearing what I wanted to hear. I wanted more answers, more solutions, a cure perhaps. After dealing w FM for about 15 years, I know there is no such thing as a cure. I was only fooling myself, wishful thinking or whatnot.
I have tried numerous different meds. Meds for FM, meds for depression, IBS, anxiety, pain, insomnia, you name it and most likely I've tried it. Tried treating the FM to make the depression better and life more manageable. Tried treating the depression to make the FM better and life less painful. We've put every twist on treatment to no avail. Had every blood test we could think of to assure that we were not missing some sort of an autoimmune disease. Nothing.
In the meantime, I've been diagnosed with Chilblains which can be pretty darn painful and unfortunately I'm a nurse so I'm on my feet all day long. This comes and goes. Reynald's has been mentioned to me as well. As of recent, I'm now developing Chillblains on my fingers. This just doesn't fit into my life very well !
I hurt. Every day. Every night. I don't sleep. My gut hurts continuously. I live in a fog. I'm exhausted. Even if by some small chance that I do sleep for more than a few hours, I'm exhausted. I'm having problems maintaining a healthy weight. I look sick all the time.
For about 2 years now I've been dealing with my knees getting puffy. Not swollen, puffy. It's as if I have hives on my knee caps. The skin gets red and tight and looks like I have a big hive. At the same time my knees hurt, more so than normal. It's not like there's swelling in the knee it's on the knee. I was told that it was probably polyarthralgia. PROBABLY. It happens to my elbows occasionally.
I have the same complaints as most as far as muscle pain and stiffness. It takes all I've got to get out of bed every day. And on the weekends sometimes I don't get out of bed nor do I care if I ever do again. What we deal with sometimes gets to be too much. I'm blessed with a very supportive husband that's been my rock. Pretty understanding family. Kids don't really get it nor do they want to. But others refuse to see bc they can't see. They don't see blood and guts or broken bones. They see what appears to be a normal, working person that keeps to herself and seems to be a little sad. I am sad but far from normal !
I feel for each and everyone of you. I'm in the process of trying out a new Internist that favors Holistic diagnosing and treatment. Maybe, just maybe we can learn something new. I'm at the end of my rope, this is my last ditch effort to find relief and peace in my life for I can no longer live this way. It's so unfair to my loved ones. I am a miserable person and that's not who I want to be. I use to be so happy and full of life. Nothing could stop me then I hit a brick wall that changed my life forever.
Good luck to all of you who don't believe and God bless to the ones that doView Thread
Ok, so I'm familiar with the "Dragon". The monster and dragon are one in the same. Got it.
I appreciate your input on the Silva method and acupuncture. I have done some research on the classically vs standard, for lack of a better word, training and agree with you. I'm willing to give it a try.
The pain and exhaustion are by far my biggest complaints but I, like many others, experience so many other health issues that it truly is hard to get through each day. I work, I enjoy working and love my job. The downside of this is, I can barely get out of bed each morning, IBS with chronic diarrhea, (at work mind you) my stomach hurts 24/7 which leaves me with no appetite, in turn, weight loss ! Then by the time I get home, I'm spent. This is not good when one has a very active family.
Depression !! Am I depressed because of what I'm going through or is depression causing me to have all of this ? NO ANSWERS ! Too many medications, I'm just done.
Bladder sling at 34 and total hysterectomy at 35 due to endometriosis that I had suffered from for so many years. I started going through menopause at the age of 34. It's endless..it's always been something.
I know that I need to be positive, think positive thoughts. It's definitely a struggle.
You have my full attention ! Ok, tell me what you are saying when you say "what if all of these signs and symptoms are the only way the soul can get our attention". Now, on to the monster. Who or what is the monster ?
I'm sorry but you have me so intrigued by what you've said. It was really deep, in my opinion, and I'm extremely curious. Always looking for a new way to look at things in a different light.
I also did a little research on The Silva Method. Very interesting. Have you tried this ? What is your opinion ? Have you tried acupuncture ? I guess I'm to the point that medications are not working so why am I taking them way of thinking. I have NO insurance so all of my Dr. visits, and a lot of meds are out of pocket. I could probably buy another house with the money I spend on all of this. I'm willing to try just about anything at this point.
Thank you for your post, my mind is going crazy but that's really nothing new !!View Thread
Thank you for your kind words, I truly appreciate it. I pray that I will find some answers and or relief soon. I do have faith but it's very difficult at times and I find myself being so negative about everything.
Seriously ? You can tell people what meds have helped you but what she shared is "against the rules". Why bother sharing valuable information then ? Isn't that what this "support group" is for ? Unbelievable ! People can talk about smoking pot for relief but god forbid someone put obtainable products on their post !View Thread
I feel like it's more like my finger tips and toes. I wouldn't say completely numb just less sensitive. I do have problems with grasping things at times or opening doors/jars. I do believe mine is from fibro.
A lot of people with fibro also have Reynald's syndrome. Not sure that I spelled it correctly but it does cause numbness in the fingers and toes as it progresses. Sometimes my fingers and toes turn white-ish almost like the color of a corpse. Don't know how else to explain it lol. I do know that my fingers and toes are always cold and are very sensitive to hot and cold but that can be related to fibro as well as Reynald's. No pain with it just the typical fibro discomfort.
Maybe look it up and see if you have similar symptoms or ask your doctor about it. Just a thought, hope it was helpful
Not to continue with the indifferences of the post that I believe you're referring to but I can absolutely see why it was upsetting. It's been said before but everyone deals with FM/CFS differently and by that I mean some are in more difficult situations such as working crazy hours and not sleeping. I'm more like you with having pain 24/7 though at times it's not a 10 it's still pain. Not sleeping only intensifies your pain as I'm sure you're well aware of. I think people that have more of "set" work hours and maybe better sleep schedules, don't experience the pain like some of us do.
EVERY case is different and I could easily be called a complainer but so what. My theory is "until you walk a mile in my shoes don't assume you know my story".
Everyone here shares their lives, good or bad and if someone is having a "give up or give in day" then encouragement goes a long way. I would be lying if I said I haven't posted similar things about just being done with all of this. It's a moment of weakness that can't be helped. I wouldn't wish this on my worst enemy !
I do believe that a positive attitude can help carry you through a rough patch although it's extremely hard to be positive while dealing with chronic pain. I try to wake up and think "ok, I'm going to be positive no matter what" well sometimes that gets me to the shower and then I fall apart because it hurts to even walk to the bathroom and I'm so exhausted.
I do have set hours at work but that doesn't mean it's any easier so I can't imagine what you go through. Even at my worst, I try to be there for others that are having a bad day. They have no clue what I'm going through and quite frankly even if they did they wouldn't care. It seems that I'm always the one asking how others are and trying to "fix" them. I know better than to add stress to my own life but I can't help it. I guess that why it's 1:10 am and I'm reaching out to you lol.
I'm going out on a limb here and saying that maybe she didn't mean it the way it sounded even though I was slightly offended by it. I've noticed if a FMer is having a good day they want to maybe seem positive but it comes out as "suck it up". I don't know. I guess I just wanted you to know that there's a lot of great people here that do get it whether they're having a good or bad day because we all have bad days and sometimes days turn into weeks and it's very easy to give up. Yes it is your choice but that's for you to decide and if you give up or give in then that's just what you have to do Just keep in mind that we will listen and offer up advice even though you may hear the same thing over and over its because for the most part, people are here to help get you through your bad day.
It seems that there's always negative comments, not just here, but everywhere when people don't understand what you're going through. Some don't have it/life as bad as others so please keep that in mind. And that goes for life in general.
Please try to stay positive in a negative world. And with that being said, I should take my own advice !! I hope things calm down and get better for you and know in your heart that you're doing the best that you can with what you have to work with. Don't let people get to you, that is definitely going to add to your stress. It's you that matters, nobody else.
Fibromyalgia and woman by Barbara Keddy. Interesting studies/information regarding FM and Chronic Fatigue. Haven't made it to the end yet but a good read. No real "cures" because there isn't any lol but very interesting. Shares stories of other women's dealings and for me it validates what I'm going through.
Barnes and Nobles has it for Nooks at a reasonable costView Thread
Ok so I'm one of those people that knows zip about LTD insurance. I've heard a lot of talk about it recently but was under the impression that if you have "pre-existing" health problems that you could not qualify. Can you give me the short version if this so I will at least have some knowledge when I inquire about it ? Is it through your employer or outsourced ? I guess I assumed that it fell under "disability" therefore you would be denied time and time again. Sorry, some ignorance here on all of this.View Thread