The important thing is that you can recognize that your meds aren't working and you need adjustments. A lot of people don't get this, therefore they get in trouble with depression. I'm so glad that you have a wonderful husband that you can rely on, I wish others had people in their lives that special. That kind of support is a definite must !!!
It is so ridiculous what people go through to get help with our gov't dollars. So sorry that you have to deal with this. I have no insurance so I feel a little "stuck" at times as well. It's expensive to be ill lol. I have applied for help but apparently when you work you don't deserve help in my state. I make too much money, really ? They obviously don't pay my bills.
I'm having a really hard time with this Christmas thing this year as well. I'm over it, it's become such a hassle and impossible to enjoy. It's all about everyone else and making things perfect...yuck !! I do enjoy giving, that's just my personality but it's so exhausting at times. I'm worn out and don't much care. What I have done, is it. Take it or leave it, I can do no more. It'll work out it always does so I'm not going to stress about it anymore. Ok, I've taken enough of your time. Keep your chin up.
Maybe he should educate himself a little more on the illnesses you deal with. I'm sure he thinks he's doing what he thinks is best for you but I think one needs to know the enemy before storming in without the right weapons.
I've never heard of a doctor not taking medicare because you're not 65. Assuming you are disabled ? I wouldn't think that it would make a difference, Medicare is Medicare, right ? Can you talk to someone and find out who is a provider ?
I'm not trying to be downcast or anything, I obviously don't know much about how it works but there's got to be a way to get a provider list. I work in a physicians office, as a nurse, but my employer takes Medicare regardless of age.
I probably wasn't much help, I guess I'm just not understanding this.
Just checking in with you. I hope that your night went well and you're feeling a little better today. I would hate to see you anywhere but home for the holidays as well but remember your health is the most important thing, there will be more holidays to be enjoyed.
I recently started on new meds and have been up and down emotional myself lately, I just hope it's because they haven't had time to start working. I'm wanting to just hang out in bed lately. As soon as I get home from work, I'm ready to lay down and I just want to be left alone. It may be due to the hassle of the holidays wearing on me because I'm feeling exhausted plus, I did way too much a few days ago. Afraid I may have sent myself into flare mode.
As far as you go, make sure your talking to your family about how you feel so they can be on the same page and keep an eye on you. Even with a great, supportive family it can still be difficult because they can't feel what your going through physically or emotionally. I do find that talking to everyone here is helpful, takes my mind off of ME for a bit.
You are in my thoughts. I enjoy reading your posts, you are always very encouraging even when you're the one that needs the encouragement. You're going through so much right now but you still take the time to help one of us out. Thank you.
I sincerly hope that you feel better soon so you can enjoy the holidays !
I've never taken Nucynta but from what I understand it's more for post operative pain. Short term use. I could be wrong, maybe the prescribing has changed. I worked for a surgeon and that's what he RX'd for after surgery.
It was suppose to take the place of narcotics so one wouldn't have the usual side effects such as nausea and vomiting with the use of pain medication. It is habit forming but what I was told was it didn't give you that "high" feeling so people wouldn't want it for just that reason.
Definitely do some research on it. You have many options on the internet and your pharmacist should be able to answer these questions as well. I don't know of any pain meds that will take your pain completely away for 6-8 hours unless they are the big named ones which you don't really want to get started on those. Just my opinion.
Awwww, sorry you feel that way. I do hope that you have some one that can help you out, even if it's just to vent. I completely understand where you're coming from though. It's so darn hard to feel like people care when you're down and out because if they haven't experienced what you're going through they just can't relate. They don't see the pain so they can't grasp the difficulty of having FM.
It's not just the pain, it's the emotional side of things as well. Chronic pain will drive you insane. It's always there, it always needs attention, and it doesn't allow you to be the person you really are. It's debilitating in so many ways.
About a month ago, I had 2 good days in a row. Less pain and had slept for about 5 hours both nights. I was on top of the world ! My husband said, "you seem so happy and you're in such a good mood". I was like wow ! That was only 2 days, can you imagine if I had a week ? It was nice of him to notice after all he is my biggest fan through good times and bad but it was also very depressing because I realized what a downer I am all the time. He would never, ever, make me feel less than perfect but wow ! That was a huge eye opener.
I long for those lost days. I want "me" back ! I would do anything to be able to feel normal again. As much as we all try not to show how we feel, it's almost inevitable because we live with this miserable mystery every day..for the rest of our lives. This is so difficult not to mention depressing so please know that you're not alone. We don't want to sit around and feel sorry for ourselves but some times that's what we end up doing. I think it's just human nature. I'm not ashamed to say that I have pity parties for myself. I do, then I move on until I hit a wall and then the party happens all over again.
I do hope that you feel better soon and get to experience some good days.
I'm not sure if anyone is ever completely pain free. I agree with what the others said about good and bad days. My good days, pain is not in my face bad but it's there where as my bad days the pain is my focal point because I can't get away from it.
I always have aches somewhere that at best feel like pulled muscles or sore joints which is tolerable most of the time. I don't have a lot of days like this but thank God for the reprieve. I personally believe that because flares are so bad and consume so much of my life that when I have less pain it is more tolerable even though I still feel 95 yrs old and probably look that way too !
For me, my FM has gotten worse the older I get so what isn't a big deal now with pain probably was a few years ago, if that makes sense. I can tell you that good days for me are far and few between but maybe could be more often if I didn't over extend myself while feeling good. After all these years you would think that I would know better. There's so much to do and I hate not being able to do it. I had a good day yesterday so I finished christmas shopping, wrapping, put the tree up, and cleaned up the house. Today, I went to work, this evening I feel like I was hit by a bus. I have no one to blame but myself !! Pace, pace, pace, is obviously not in my vocabulary.
I guess I made a short reply into a story, sorry ! Hope you can find more good days in the near future, those bad ones seem to drag on forever.
I'm always glad for someone else's input with what they have experienced. I have been told that sometimes the blood work doesn't always show things right away so I'll stay on top of things. I know what I'm experiencing isn't normal for me but I also know that FM can do some crazy things.
From what I understand there are a lot of autoimmune diseases that mimic each other and sometimes you get a diagnoses by pinpointing the symptoms after your findings on the labs, whether positive or negative. I've had several new things going on so I guess I need to wait it out.
I don't wish for anything to be wrong with me, I just keep thinking maybe there is an underlying issue that can be addressed so that I'm not constantly in pain or feel crappy all the time. I know that FM can get the best of you but there's got to be a time when I can say "I feel good today". When I saw my doctor (when he ordered the labs) he switch some of my meds around so I'm hoping that this will be helpful. It's only been 11 days (not that I'm counting lol) so I'm not seeing a difference yet but I want to !!
I would do just about anything to have even one week a month of feeling good ! Keeping my fingers crossed.
Everyone is different with what they experience and just because someone doesn't believe in it doesn't mean it doesn't exist. That's like when you hear somebody say "I don't believe in FM" when everyone here will tell you it's real.
I think a lot if people deal with memory loss or whatnot but I most definitely have the fog. No, it's not medication induced for me, it's because I don't get enough sleep and no one can deny that when you go a long time without recharging your brain, you can't function normally.
I don't think everyone has fibro fog but not everyone has the same issues with FM as the next person. Maybe those of you that do sleep well don't feel as foggy as some. Just like pain tolerance, everyone is different but it doesn't mean it's your not in pain. Some people experience depression with FM, those who don't can't say it's not real.
It's very embarrassing, especially if you work with the public and they depend on your knowledge so please don't discount it for those who suffer. To be explaining something that you've been over a hundred times and forget a word mid sentence is not only frustrating but worrisome as well. Whatever you want to call, it does exist.
I feel for each and everyone that deals with this all day every day, it's humiliating. I do believe in it just like I would believe if someone told me the tip of their nose hurt due to FM, anything is possible.
This is just my opinion but I back anyone that blames their fog on FM.