Also, I wanted to let people know about a new book I'm reading that I've found very interesting called "Women and Fibromyalgia by Barbara Keddy. For me, it's been new ideas and theories regarding FM and Chronic Fatigue. Barnes and Noble has it for Nook.View Thread
My opinion is that it's part of your FM. Sometimes my ribs hurt so bad I feel as if I've been hit by a truck. Also my sternum hurts to even touch it and it makes it difficult to wear a bra ! My knees and elbows do the same thing as well, sore, hot and it's as if I have hives on them. Clothing bothers them.
NSAIDS seem to help or like the others have suggested, topical pain relievers. Sorry you're dealing this on top of the sleeplessness and everything else FM has to offer. Mine comes and goes so maybe there will be some reprieve for you in the near future. Unfortunately it's temporary relief !! Drink lots of water, soak in hot baths with Epsom salt and or moist heat seems to be helpful.
Everyone already told you this, just trying to reinforce the effectiveness
I'm sure I will repeat what has been said before but only because it's the truth. We have all been where you are mentally, emotionally and physically. It's easy to fall into that slump and much more difficult to climb out. Everyone says that you should exercise, stretch, eat the right foods and get rest. This seems impossible to do when you hurt, can't sleep and feel like the world is caving in. I would get so angry when people would say that because I already knew what I was "suppose" to do and I felt powerless, out of control of my own body and mind.
What I've found that helps me is to think of how my life could be so much worse than just having this stupid thing call FM. For example; my mother in law, that is in her early 50's, has been battling cancer for almost 3 years now. Fighting for her life, good news, bad news, chemo and radiation. New tumors and more surgeries, it's endless. But what gets me is that she is fighting so hard for her life and I'm so selfish by wanting to end mine.
When you put things in perspective and compare what you have to someone that would love to say "I have fibromyalgia" instead of "I'm battling cancer" it makes you look at things differently. I'm not saying that dealing with this day in and day out is an easy task, because I know it's not, I'm just saying it could be far worse. I'm not judging you either because I've also said that I wish I could just end all of it. It's so depressing and no one can comprehend what we go through unless they've been there.
People can't see your pain so it's easy for them to dismiss it. I know your not crazy, it's real. It's unfortunate that your family isn't more supportive but I do know that everyone here is. All of us know how you feel and what your going through so please talk or vent here. There's years of experience right here to help guid you. I don't write very often (I tend to ramble on) but I do read a lot of what people are saying and have learned so much.
I do hope that you feel better soon, don't let this beat you. It's a struggle to stay afloat, you'll have good days and bad days but remember it could be worse.View Thread
The important thing is that you can recognize that your meds aren't working and you need adjustments. A lot of people don't get this, therefore they get in trouble with depression. I'm so glad that you have a wonderful husband that you can rely on, I wish others had people in their lives that special. That kind of support is a definite must !!!
It is so ridiculous what people go through to get help with our gov't dollars. So sorry that you have to deal with this. I have no insurance so I feel a little "stuck" at times as well. It's expensive to be ill lol. I have applied for help but apparently when you work you don't deserve help in my state. I make too much money, really ? They obviously don't pay my bills.
I'm having a really hard time with this Christmas thing this year as well. I'm over it, it's become such a hassle and impossible to enjoy. It's all about everyone else and making things perfect...yuck !! I do enjoy giving, that's just my personality but it's so exhausting at times. I'm worn out and don't much care. What I have done, is it. Take it or leave it, I can do no more. It'll work out it always does so I'm not going to stress about it anymore. Ok, I've taken enough of your time. Keep your chin up.
Maybe he should educate himself a little more on the illnesses you deal with. I'm sure he thinks he's doing what he thinks is best for you but I think one needs to know the enemy before storming in without the right weapons.
I've never heard of a doctor not taking medicare because you're not 65. Assuming you are disabled ? I wouldn't think that it would make a difference, Medicare is Medicare, right ? Can you talk to someone and find out who is a provider ?
I'm not trying to be downcast or anything, I obviously don't know much about how it works but there's got to be a way to get a provider list. I work in a physicians office, as a nurse, but my employer takes Medicare regardless of age.
I probably wasn't much help, I guess I'm just not understanding this.
Just checking in with you. I hope that your night went well and you're feeling a little better today. I would hate to see you anywhere but home for the holidays as well but remember your health is the most important thing, there will be more holidays to be enjoyed.
I recently started on new meds and have been up and down emotional myself lately, I just hope it's because they haven't had time to start working. I'm wanting to just hang out in bed lately. As soon as I get home from work, I'm ready to lay down and I just want to be left alone. It may be due to the hassle of the holidays wearing on me because I'm feeling exhausted plus, I did way too much a few days ago. Afraid I may have sent myself into flare mode.
As far as you go, make sure your talking to your family about how you feel so they can be on the same page and keep an eye on you. Even with a great, supportive family it can still be difficult because they can't feel what your going through physically or emotionally. I do find that talking to everyone here is helpful, takes my mind off of ME for a bit.
You are in my thoughts. I enjoy reading your posts, you are always very encouraging even when you're the one that needs the encouragement. You're going through so much right now but you still take the time to help one of us out. Thank you.
I sincerly hope that you feel better soon so you can enjoy the holidays !
I've never taken Nucynta but from what I understand it's more for post operative pain. Short term use. I could be wrong, maybe the prescribing has changed. I worked for a surgeon and that's what he RX'd for after surgery.
It was suppose to take the place of narcotics so one wouldn't have the usual side effects such as nausea and vomiting with the use of pain medication. It is habit forming but what I was told was it didn't give you that "high" feeling so people wouldn't want it for just that reason.
Definitely do some research on it. You have many options on the internet and your pharmacist should be able to answer these questions as well. I don't know of any pain meds that will take your pain completely away for 6-8 hours unless they are the big named ones which you don't really want to get started on those. Just my opinion.
Awwww, sorry you feel that way. I do hope that you have some one that can help you out, even if it's just to vent. I completely understand where you're coming from though. It's so darn hard to feel like people care when you're down and out because if they haven't experienced what you're going through they just can't relate. They don't see the pain so they can't grasp the difficulty of having FM.
It's not just the pain, it's the emotional side of things as well. Chronic pain will drive you insane. It's always there, it always needs attention, and it doesn't allow you to be the person you really are. It's debilitating in so many ways.
About a month ago, I had 2 good days in a row. Less pain and had slept for about 5 hours both nights. I was on top of the world ! My husband said, "you seem so happy and you're in such a good mood". I was like wow ! That was only 2 days, can you imagine if I had a week ? It was nice of him to notice after all he is my biggest fan through good times and bad but it was also very depressing because I realized what a downer I am all the time. He would never, ever, make me feel less than perfect but wow ! That was a huge eye opener.
I long for those lost days. I want "me" back ! I would do anything to be able to feel normal again. As much as we all try not to show how we feel, it's almost inevitable because we live with this miserable mystery every day..for the rest of our lives. This is so difficult not to mention depressing so please know that you're not alone. We don't want to sit around and feel sorry for ourselves but some times that's what we end up doing. I think it's just human nature. I'm not ashamed to say that I have pity parties for myself. I do, then I move on until I hit a wall and then the party happens all over again.
I do hope that you feel better soon and get to experience some good days.