I'm not sure if anyone is ever completely pain free. I agree with what the others said about good and bad days. My good days, pain is not in my face bad but it's there where as my bad days the pain is my focal point because I can't get away from it.
I always have aches somewhere that at best feel like pulled muscles or sore joints which is tolerable most of the time. I don't have a lot of days like this but thank God for the reprieve. I personally believe that because flares are so bad and consume so much of my life that when I have less pain it is more tolerable even though I still feel 95 yrs old and probably look that way too !
For me, my FM has gotten worse the older I get so what isn't a big deal now with pain probably was a few years ago, if that makes sense. I can tell you that good days for me are far and few between but maybe could be more often if I didn't over extend myself while feeling good. After all these years you would think that I would know better. There's so much to do and I hate not being able to do it. I had a good day yesterday so I finished christmas shopping, wrapping, put the tree up, and cleaned up the house. Today, I went to work, this evening I feel like I was hit by a bus. I have no one to blame but myself !! Pace, pace, pace, is obviously not in my vocabulary.
I guess I made a short reply into a story, sorry ! Hope you can find more good days in the near future, those bad ones seem to drag on forever.
I'm always glad for someone else's input with what they have experienced. I have been told that sometimes the blood work doesn't always show things right away so I'll stay on top of things. I know what I'm experiencing isn't normal for me but I also know that FM can do some crazy things.
From what I understand there are a lot of autoimmune diseases that mimic each other and sometimes you get a diagnoses by pinpointing the symptoms after your findings on the labs, whether positive or negative. I've had several new things going on so I guess I need to wait it out.
I don't wish for anything to be wrong with me, I just keep thinking maybe there is an underlying issue that can be addressed so that I'm not constantly in pain or feel crappy all the time. I know that FM can get the best of you but there's got to be a time when I can say "I feel good today". When I saw my doctor (when he ordered the labs) he switch some of my meds around so I'm hoping that this will be helpful. It's only been 11 days (not that I'm counting lol) so I'm not seeing a difference yet but I want to !!
I would do just about anything to have even one week a month of feeling good ! Keeping my fingers crossed.
Everyone is different with what they experience and just because someone doesn't believe in it doesn't mean it doesn't exist. That's like when you hear somebody say "I don't believe in FM" when everyone here will tell you it's real.
I think a lot if people deal with memory loss or whatnot but I most definitely have the fog. No, it's not medication induced for me, it's because I don't get enough sleep and no one can deny that when you go a long time without recharging your brain, you can't function normally.
I don't think everyone has fibro fog but not everyone has the same issues with FM as the next person. Maybe those of you that do sleep well don't feel as foggy as some. Just like pain tolerance, everyone is different but it doesn't mean it's your not in pain. Some people experience depression with FM, those who don't can't say it's not real.
It's very embarrassing, especially if you work with the public and they depend on your knowledge so please don't discount it for those who suffer. To be explaining something that you've been over a hundred times and forget a word mid sentence is not only frustrating but worrisome as well. Whatever you want to call, it does exist.
I feel for each and everyone that deals with this all day every day, it's humiliating. I do believe in it just like I would believe if someone told me the tip of their nose hurt due to FM, anything is possible.
This is just my opinion but I back anyone that blames their fog on FM.
I don't have any children in the military but I know how I felt when my son told me he was seriously considering joining, so I can only imagine what you are going through. We worry every day about our babies no matter their age or what they are getting themselves into but for a military parent it has to be so unbelievably hard. The fear of the unknown will eat us alive.
Just keep in mind that this is what he wants to do with his life and support him as much as possible with positive feed back (easy for me to say, huh). You must be so proud of him !!
You are getting the best Christmas present ever, so cherish every second of it and make lasting memories. I'm so happy for you and you are very blessed to get this special time with your son.
Hope you have an amazing Christmas, happy holidays !
I also have been experiencing some symptoms that I didn't believe could be FM, (Still not completely convinced) such as swollen, very painful knees. My hips and knees always bother me but this is just different. When I wake up in the morning, I can hardly walk due to my knees being so stiff and swollen. The actually look like huge hives, red and swollen, warm to the touch. Other smaller joints are swollen but nit as red.
I also have been experiencing the "butterfly rash" which is sometimes present with Lupus. Just some strange things. My doctor did extensive labs including RF, ANA, CBC, CMP, Lupus titer and a few others (Vitamin D, MiMi). My CBC was off a bit but everything else came back normal or negative.
My doctor believes it's just part of the FM. FM is a mystery, it can do some crazy things to people, not everyone has the exact same symptoms. Some people do experience more of the muscle issues and maybe not the fatigue or joint problems and just tender muscles.
I don't understand it all and I'm sure nobody ever will. Mine started with my back and went to sleeping issues and now it's all over the place, literally. I honestly don't know what's going to happen from day to day. The one thing I can count on is some sort of pain, somewhere in my body, that's just a given.
Of course, I'm not saying that there's nothing else going on with you, I'm just saying don't discount the FM. I certainly hope that you find some answers, it sure seems like we are constantly searching for them.
I hear ya ! Can't believe it's 2 weeks til the big day !
The weather is ridiculous, rain, rain, and more rain and brrrr cold. I did see about 10 flakes of snow on my way to work this morning. At this point, I think snow would be better. We decided to have a cut tree this year, too muddy to get it, so we don't have a tree up yet ! Only a few decorations out.
Usually this is all done by the weekend after Thanksgiving, I just can't get into the spirit this year. It definitely feels more of a chore this year. We all have had colds and flu, I've been having more health issues as well. Honestly, I just want this over with. I don't even have all of my shopping done, nothing is wrapped. I use to be so organized and on top of everything, that's obvioulsy in the past now.
I don't feel like doing anything nor do I have the energy to do it. My sweet husband would do it all if I'd just ask. He doesn't want to step on my toes, he knows how independant I "want" to be. He's just waiting for me to give him the go ahead, bless his heart. He always comes through for me.
Maybe I'll shake the scrooge soon and move on to the happy holidays. Hope everyone can do the same and enjoy this time with their loved ones.
I have tried many different meds and most recently was rx'd Citalapram. Last "antidepressant" was Wellbutrin, which was ok at best for a short period of time. Tell me about the Citalapram as far as what you've experienced. Weight gain ? Do you find that your mood is better or do you just feel better in general ?
I've been dealing with FM for 15 plus yrs and have tried so many antidepressants, ones that are meant to help FM, and so on. I don't sleep, I have pain every day (like everyone), knees, hips, shoulders, neck, ribs, feet, and flare about 3 times a month to the point I feel as if someone has kicked the daylights out of me on top of having the flu from hell. I also get every virus that I come in contact with. With this being said, yes, I am depressed so I need an antidepressant.
I haven't been able to find one that actually helps with the depression so in turn I truly believe that my FM is way worse. Who wouldn't be depressed when dealing with chronic pain and fatigue. I read that Citalapram is a mood enhancer and gives you a feeling of well being. Well, in my view, If I have a feeling of well being then I will feel better. If I feel better then my pain won't be in my face 24/7.
Now that I've gone on and on, can you tell me how it affects you ? I know everyone is different with meds and FM, this isn't my first rodeo, but I haven't talked to anyone that has FM and takes Citalapram. I would greatly appreciate any info that you are willing to share with me.
Thank you so much for your input ! I totally see it in a different way now. She, as well, has never been able to sleep. From the day she was born she's been up and down all night and is probably the reason my sleeping habits got crazy.
Having this knowledge that you shared puts a perspective on things for me now. We need to get to the bottom of this so if it's FM then we can prepare for the future. I never thought of it that way. If I knew what was in store for me I certainly would have done things differently like you mentioned...brilliant ! Why didn't I think of that..wow.
Like Nancy B. mentioned, her Pediatrician needs to know her family history so she knows how to approach this. I will definitely get an appt scheduled.