Well, I already wrote a long blog about this and submitted it, saw it posted for a few seconds, now it's gone. I'll get straight to the point. Does anyone notice more flares with being in an air conditioned place for long periods of time, like several days or weeks like from home to work and back home. The cold always makes my body miserable but I' m thinking with the air my body is reacting as if it's cold weather. Any advise ????View Thread
Hello. Yes, I too have this crazy nerve thing or what ever it is. I do think it has to do with the nerves but I'm not a doctor lol. I can touch the tender spots on my sternum area and I swear it radiates around to my back. I have looked at some diagrams and there are nerves that connect from these particular areas. I guess if you think about it, nerves are everywhere and it would only make sense especially as sensitive as FMers are when it comes to nerve disturbances. Well, that's my diagnosis for the day lol. Seriously, I hope this was helpful, even if it's not accurate at least you're not alone ! Best of luck.View Thread
I'm sorry you're having this problem. I don't really have any imput, just wanted to say I undrstand your pain. I don't have pain on the top of my foot, mine is plantar fascitis so I understand other pains than just FM pain. Hope you find helpful information regarding this problem. Best of luckView Thread
Hello. I tried Savella, took it for 5 months in hopes that it would eventually work. Not so lucky. It made my insomnia worse and never had any relief from pain. I know that Nancy swears by it and takes a low dose. I've heard more negative than positive feed back on Savella. Like they say, not all meds work for everyone. Best of luckView Thread
Sorry you're having a difficult time. I think we've all been in your shoes at one time or another so we can honestly say we understand. I don't know what meds, if any, that you're taking but maybe you need to switch things up. I can't tell you how many times I've had to change dosages or meds, of course with my doctor's help, over the years. Sometimes you just need to stay in bed but I have found if I make myself get up, as hard as it is (in tears most of the time) it does get me thru the flare a little faster. I don't push too hard and start cleaning or working out or anything too crazy because I know I'll pay dearly for days to come but just get up and move. Even if its for a few minutes several times a day it truly helps.
I'm not going to lie, this is painful both mentally and physically and it took me a long time (yrs) to convince myself to do it. It's so depressing to feel the way you do right now and that is not a good thing to add on top of already feeling like you can't go thru this one more day. I still have days that I stay in bed half the day because I don't want to face the pain and exhaustion but in the end I make myself get up and at least do one thing such as put dishes away, put a load of laundry in, then I will lay down for a bit then get up again.
I know this is the last thing you want to do but give it a try. If we lay around and not accomplish simple tasks then we feel worthless. I'm not saying your lazy or anything even close to that and again I know how you feel, but do this for yourself. You're not going to instantly feel fabulous, it's a work in progress and always will be but try it.
When somebody said the same thing to me I was angry because I felt like they didn't understand how I felt and it took me a while to try it but I'm so glad I gave in. So you have exhaustion, chronic pain, feeling worthless and add depression on top and you're a hot mess right ? Absolutely !! I finally asked my doctor for an antidepressant because I didn't want to live one more day feeling this way, I too was at my wits end and didn't want to deal with this anymore. It took about 3 wks of taking the new med before I felt like I was going to make it. I'm so happy that I went this route, I feel better about myself, my life, and can handle things better. I'm not by any means pain free, I still have sleep issues, I still have bad days but mentally I'm doing so much better and feel like I'm able to handle "the dragon" better. To me, this is a huge step in the right direction. We never get rid of FM but we can learn to handle it to the best of our ability. That's all we can do.
I hope that this is helpful information, I truly know what you're going thru and feel for you. Please consider asking for an antidepressant, it doesn't mean you're weak or crazy. It means you want to enjoy your life as much as possible while dealing with a chronic illness. There's nothing wrong with that. Best of luckView Thread
Hello. Yes a muscle relaxer would be beneficial for your tense muscles and you will sleep better. There are all kinds of muscle relaxers so it's just finding which one will work for you so you don't have that "hangover" feeling in the morning.
I've tried several, either not strong enough or way too strong. I'm sure there are others here that have input on this subject but what worked for me was Diazepam at bedtime. 5mg was ok but 10mg was better. I have a high tolerance for certain meds and no tolerance for others so maybe 5mg would be good for you. Again, there's a lot to choose from so you should talk to your doctor to see what's best for you.
See what other people have tried so you can research the meds prior to seeing your doctor that way you have a little knowledge and can give your input as well. Best of luckView Thread
Really ? You most be joking ! This has been the worst life changing event that has ever happened to my family. I have 4 children that require a "mother" not someone that says "no, no, not right now, I don't feel well, I'm sorry I can't". I don't have time to slow down. Maybe you don't have children at home or work on your feet all day at a high pace job. I wouldn't wish this on my worse enemy. What meds are you on because I think 99% of us would love to try them so we could feel the same way. Most people aren't as blessed as you so I'm sorry that this may seem a little abrassive but come on. My life goes on, I can't use the excuse that I'm too tired, I don't feel well, or what ever. I'm sure that there's a lot more FMrs that feel the way I do but won't step on your toes and say so. I do realize that this is an opinion based statement on your part but I feel that it's a real slap in the face. It's like saying cancer has blessed my life because I can sit in a hospital all day with tubes and IV's coming out of me and not deal with the fact that it's killing me. I'm glad you feel that this is the best thing that has ever happened to you, you must have been really miserable before. Good luck to you.View Thread