Hello. I tried Savella, took it for 5 months in hopes that it would eventually work. Not so lucky. It made my insomnia worse and never had any relief from pain. I know that Nancy swears by it and takes a low dose. I've heard more negative than positive feed back on Savella. Like they say, not all meds work for everyone. Best of luckView Thread
Sorry you're having a difficult time. I think we've all been in your shoes at one time or another so we can honestly say we understand. I don't know what meds, if any, that you're taking but maybe you need to switch things up. I can't tell you how many times I've had to change dosages or meds, of course with my doctor's help, over the years. Sometimes you just need to stay in bed but I have found if I make myself get up, as hard as it is (in tears most of the time) it does get me thru the flare a little faster. I don't push too hard and start cleaning or working out or anything too crazy because I know I'll pay dearly for days to come but just get up and move. Even if its for a few minutes several times a day it truly helps.
I'm not going to lie, this is painful both mentally and physically and it took me a long time (yrs) to convince myself to do it. It's so depressing to feel the way you do right now and that is not a good thing to add on top of already feeling like you can't go thru this one more day. I still have days that I stay in bed half the day because I don't want to face the pain and exhaustion but in the end I make myself get up and at least do one thing such as put dishes away, put a load of laundry in, then I will lay down for a bit then get up again.
I know this is the last thing you want to do but give it a try. If we lay around and not accomplish simple tasks then we feel worthless. I'm not saying your lazy or anything even close to that and again I know how you feel, but do this for yourself. You're not going to instantly feel fabulous, it's a work in progress and always will be but try it.
When somebody said the same thing to me I was angry because I felt like they didn't understand how I felt and it took me a while to try it but I'm so glad I gave in. So you have exhaustion, chronic pain, feeling worthless and add depression on top and you're a hot mess right ? Absolutely !! I finally asked my doctor for an antidepressant because I didn't want to live one more day feeling this way, I too was at my wits end and didn't want to deal with this anymore. It took about 3 wks of taking the new med before I felt like I was going to make it. I'm so happy that I went this route, I feel better about myself, my life, and can handle things better. I'm not by any means pain free, I still have sleep issues, I still have bad days but mentally I'm doing so much better and feel like I'm able to handle "the dragon" better. To me, this is a huge step in the right direction. We never get rid of FM but we can learn to handle it to the best of our ability. That's all we can do.
I hope that this is helpful information, I truly know what you're going thru and feel for you. Please consider asking for an antidepressant, it doesn't mean you're weak or crazy. It means you want to enjoy your life as much as possible while dealing with a chronic illness. There's nothing wrong with that. Best of luckView Thread
Hello. Yes a muscle relaxer would be beneficial for your tense muscles and you will sleep better. There are all kinds of muscle relaxers so it's just finding which one will work for you so you don't have that "hangover" feeling in the morning.
I've tried several, either not strong enough or way too strong. I'm sure there are others here that have input on this subject but what worked for me was Diazepam at bedtime. 5mg was ok but 10mg was better. I have a high tolerance for certain meds and no tolerance for others so maybe 5mg would be good for you. Again, there's a lot to choose from so you should talk to your doctor to see what's best for you.
See what other people have tried so you can research the meds prior to seeing your doctor that way you have a little knowledge and can give your input as well. Best of luckView Thread
Really ? You most be joking ! This has been the worst life changing event that has ever happened to my family. I have 4 children that require a "mother" not someone that says "no, no, not right now, I don't feel well, I'm sorry I can't". I don't have time to slow down. Maybe you don't have children at home or work on your feet all day at a high pace job. I wouldn't wish this on my worse enemy. What meds are you on because I think 99% of us would love to try them so we could feel the same way. Most people aren't as blessed as you so I'm sorry that this may seem a little abrassive but come on. My life goes on, I can't use the excuse that I'm too tired, I don't feel well, or what ever. I'm sure that there's a lot more FMrs that feel the way I do but won't step on your toes and say so. I do realize that this is an opinion based statement on your part but I feel that it's a real slap in the face. It's like saying cancer has blessed my life because I can sit in a hospital all day with tubes and IV's coming out of me and not deal with the fact that it's killing me. I'm glad you feel that this is the best thing that has ever happened to you, you must have been really miserable before. Good luck to you.View Thread
Hello. MiMi takes a lot of supplements, she's a good one to ask. Meds and supplements are different for everyone so it's going to be you who decides what works honestly. I have found that if I'm looking for supplements for certain things it's best to google herbal supplements for that specific symptom. You get detailed info regarding that supplement such as side effects, dosage, and what other meds can or can not be taken with it. MiMi will also suggest that you get your vitamin D level checked which is a great idea as well. Keep asking questions because ther's a wealth of information here and do your own research as well. Best of luck.View Thread
I think maybe you should go to the Lyrica website or ask your Pharmacist about prolong use. If you say to your doctor that this med is very effective and you don't want to go off of it but are concerned with prolong use he/she would be understanding and if not then you need to find another doctor. I couldn't take Lyrica but know plenty of people that do and have been on it for a long time with no mention of problems with prolong use but again this is a question for someone that knows a little more than I do lol. Best of luck.View Thread
Hello. Like MiMi said everyone is different and probably have tried every FM med known to man. I am one of those people and currently not on the traditional FDA approved FM meds. However my current meds seem to be more effective than any other combonation I've ever tried but that's not to say that I won't have to switch things up in the future. Sometimes you have to tweek your meds a bit or change them all together. It is very frustrating to say the least and even if you're taking meds that are very helpful you will have bad days where nothing works. Heat for me is awesome, bath, shower, and heating pad. I currently take Welbutrin (anti-depressant), but is helpful for FM not to mention the depression that comes with chronic pain, Clonidine (bp med) for sleep, I don't have high bp, Trazadone (old anti-depressant) low dose for sleeping, and slippery elm, herbal supplement that originally was for ulcers, IBS (which most Fm'ers have) sore throats but have found that it works as an anti-inflammatory and helps with generalized pain. So you can see that other meds can be effective for FM. You'll find that others here are on different meds then just the FM meds, there's all kinds of meds and combo of meds that can be helpful. Read other posts from several wks past and you may find some other interesting meds people are on. I wish there was one med for all that actually worked. It's truly trial and error. Some take muscle relaxers, anti-depressants, anxiety meds, or herbal supplements. I hope that you find the answers your looking for, be proactive, ask lots of questions, and have a doctor that listens to you and wants to help. Also I agree with MiMi about staying hydrating, it really helps with all of your organs, makes you feel better in general, and helps with muscle pain. Best of luck.View Thread
I can't take Lyrica either and was rx'd Savella. I didn't have much luck with it. It didn't make me feel like I did when taking Lyrica but it just wasn't a good match for me. I stayed on it for 5 mos to give it a chance but recently went off of it. Everyone is different so it may work good for you. I as well havn't had good feed back on this medication either. You can always give it a try and see, your not out anything and maybe your doctor will give you a starter pack to try. Good luck !View Thread
I just replied to stillhangingin about new pains and if it's FM or something more serious like you've experienced. Wow 8 !! That's horrible, I feel for you. I hope your figuring things out so you can get some relief. I was talking about hip and knee pain. Well for me it's definitely FM. I also have terrible foot pain, who knew ! I have corky pains that I never dreamed would be part of FM. Sternum and rib cage pain, dear lord that's painful, and you can't find a comfortable position to sleep. I'm never suprised any more when I get a new ache or pain. You described the hip and knee pain to the T. It's so deep it's kind of scary. I know when it started with me, along with the other "bone" pain, I was sure I had bone cancer because that's how the pain was described to me when you have it. My doctor assured me that it was FM and I'd have to deal with that as well as everything else, lucky me ! FM will throw it all at you and you just have to find ways to deal and get as much relief as you can with heat, hot lavander bubble baths, and rest. Hopefully you are in good meds that agree with you and have a doctor that listens. Hope things go well with your back. Best if luck.View Thread
Hello. I'm glad you found the community as it's very helpful because you are chatting with others that can honestly say we understand your pain. I'm still a newbie here, been chatting for a couple of months but have been reading and learning for a while. I guess nothing suprises me anymore when it comes to aches and pains. I was diagnosed about 10 yrs ago but have had a rough couple of yrs as my symptoms are getting worse. New pains, no sleep, depression, exhaustion and everything else that goes with FM. My back and neck use to be horrible but it progressed to hips, knees, and feet ! I'd rather have just the back and neck pain but "the wrath of the dragon" ( as MiMi would say) does what it pleases. I swear anything is possible with FM ! I understand what your saying when you don't know if it's FM or something else like Pandorica said with her back. I just research it or ask my doctor. I have sternum pain like you wouldn't believe, my rib cage hurts and I get little knots on them that I have to rub out, yes FM again. It's a crazy, messed up thing to live with, we can only treat it as it comes because it'll never go away completely. Heat, hot lavander bubble baths, and rest is what I TRY to do on a regular basis. It does help but there' s not always time to do these things. Read as many posts that you can so you don't feel crazy when you have new symptoms. Ask, chat,and research helps to put your mind at ease. Hope things get better. Best of luck.View Thread