I was wondering if anyone else has developed psoriasis of the scalp and neck? Over the last 3 months I started loosing patches of hair with scalp attached. I went to the dermatologist and they prescribed a medicated shampoo and an oil that you put on and leave overnight. Of course it has started to travel down my neck since I started using the meds. So just wondering if this is part of fibro or is it just another problem to add to the list.
I hope everyone has a wonderful weekend. Take time to find some beauty in each day!!View Thread
It's been a very long time since I've posted anything, but I have been checking in when I can. This year has been one of those roller coster rides that never seems to end. On 1/3 our younger daughter who is now 17yrs old had to have a full spinal fusion due to advanced scoliosis. It went well and they released her 6 days later. Even though she wasn't eating, had not had a b.... movement, and she kept complaining about stomach pain. We were told that her systems were not fully awake yet but that she was doing well. Ok we got your baby home so we were happy. Well once she got home she looked like she was a walking skeleton. The hospital called to check in on her and I told them everything and they said it was normal. Ok? Well on the night of the 3rd day after her release she started vomiting non stop (bile) I called the hospital and they told me it was the flu. After 12hrs of vomiting we ignored the hospital and took her to the ER well after some more time they sent us back to our surgeons hospital and They discovered because of the surgery she developed SMA syndrome. We almost lost her but they got her back to us. So she was in the hospital for 30 days and then came home with a feeding tube. We finally got rid of that 2wks ago! That was a great day! But then we had to let go of our oldest dog last week. Tat really took a tole on the entire family. So here we are... Needless to say I have been in one of the longest, strongest flares not just my muscles but also my arthritic joints more then usual. My dr the only dr in our town who treats fibro just prescribed hydrocodone 4times daily. Well needless to say it doesn't always work. So here I am.. Sore and tired. Sorry if this is just a post of complaints, we are so happy that our daughter is on the mend and with us! If anyone has other suggestions for the pain I am open to suggestions. I'm also on savella, trazodone, tramadol, gabapentin, and naproxen. I hope you all are well and have an amazing weekend!View Thread
I'm sorry you are having one of these days. I hope that in time you will be able to get your family to understand what you are going through. I do not post very often, but I do read daily posts. And it helps knowing that others are going through the same thing you are going through. Good luck to youView Thread
My entire life including my childhood I have been in pain. As a child I was always called a crybaby, or the princess and the pea. So I learned to keep my mouth shut, even in adult life I have stayed quiet. Until 3 years ago I got sick and they put me on meds and oh my! It was the first time I felt strange (normal pain free). I never knew that it wasn't normal to feel the way I did. I'm still trying to get the right mix of meds but at 51 I'm starting to feel better. I still really bad days but I'm dealing with it day by day. Thank youView Thread
I was just given a two week starter pack and I was wondering if anyone has had success with it? Or are the side effects too extreme to stay on it. I just want to find some relief and this is the next step my Dr is willing to take, he says he knows this is a lifetime battle and there are not that many med options at this time.
I know it's been a long time since I first entered a discussion, I have been reading everyone's posts it's just been a very rough time. I hope things will continue level for awhile.View Thread
So I want to thank everyone for giving me a place to voice my thoughts and fears. I wish I could talk with my family but they don't understand or want to understand what's going on with their wife, mom and grandmother. I learned at an early age to put my pain in a box and a smile on my face. Most days it's just too hard to pretend.
So I was wondering if anyone could tell me if amount of these meds have made fibro anything better or worse. Ok here are the meds I am on daily:
2400 mg gabapentin
400 mg tramadol
100 mg trazodone
I'm sure everyone has their on med dilemmas. But when I tell my doctor that there are still days when the pain is so bad that it's all I can do to get up and take my youngest daughter to school, his answer to me is: well what do you expect with advanced arthritis and fibromyalgia! Maybe it time we start joint surgeries.
First I may have had this since I was a small child, but I was just diagnosed this last year. And these are the only meds he has tried. And not to mention I am only 50. Don't you think I should have more options?
I am sorry that I am whining!!
Thank you all for your support.View Thread
I forgot to say that because of the advanced degenerative arthritis the doctor did inject a gel into one of my of my knees and it didn't feel any different. He also did 1 cortisone injection into one of my thumbs and the pain was extremely high for 2 weeks, then after that the pain in the thumb joint was just as bad if not worse then before the shot.
I think I offended my doctor by not having any improvement in the joints he started on. So here I am on the drugs that I'm on. Feeling the way I do... Lost.
For other doctors I don't know what type of doctor I should be looking for. The doctor I am going to now is an old rheumatologist set in his ways not will to try other meds or treatments. When I asked him about physical therapy or other side treatments he said nothing else would help me with the fibromyalgia so Why waste money trying.
Boy do I know how to pick them! I've looked through the phone book and online. But I don't know what to look for. So if you have suggestions please send them my way.
I have yet to find the positive side to fibro, but then again I have to continue through each day like there is nothing wrong with me. My husband and family don't want to except the fact that there is anything wrong. And they do not want to even understand what fibromyaliga is.
Wait.... I guess the positive thing about this is the fact that I found all of you and that I finally gt up the courage to post something.
So for this I must say. Thank you!!View Thread