I know for a fact I had all the fibro symptoms as a very young child, I am now 62 and just got diagnosed 2 months ago!!! Also gut issues All my life, was diagnosed with IBS about 15 years ago, so did the IBS diet and for 13 years and my gut and other symptoms (many over lap with fibro by the way). Well it got so embarrassingly bad 2 years ago a Gastro doc Finally did the upper and lower scopes and biopsy and lo and behold had Celiac all my life, NOT IBS. The IBS diet was killing me. The damage to my nervous system, due to malnutrition for 60 years has been done. So I now have a very very very limited and expensive must do gluten free diet, for past 2 years. Fibro LIVES on......only my gut issues are a little better. Also ladies of all ages, I had horrific periods from day one, back in the day they didn't know about endometriosis which I strongly believe is a Fibro thing (Fibroids!!!) So, having many food allergies, in addition to Calic disease and fibro the only safe thing is water lol. and thats even questionable. I am sorry for sounding negative but I have been misdiagnosed so many times and had so many unnecessary surgeries that I try to let go of the anger and a lifetime of pain and hardship while working very stressful jobs till last year when I just said "I can't do" for the first time in my life. Trust your own knowledge and feelings about YOUR body and Your mind, and remember that doctors are just "practicing" medicine. God bless you all, stay strong in Spirit, whatever that means to you, and find joy, let joy find you every day. Gonna go get a glass of water now lol, fibrofranView Thread
I have always, am 62 now, able to feel a lightning storm coming a day or 2 ahead. I feel the pressure in my head like it's going to burst. Then the lightning finally comes and I feel GREAT, like it cleared the cobwebs out of my brain. I can't stand the build up before the storm but I know it will pass and I'll feel really good after. We are strange fibro creatures lol. fibrofranView Thread
jenna, thanx for answering, you relieved my mind in that you get the itchies in the armpits too. I forgot to mention that I figure it's the nerve endings doin their thing from the fibro, moving around all the time just like the pain does. my episodes seem to get worse with bouts of sweating, which relates back to our temperature sensitivity, take good care, fibrofranView Thread
Hi Sleepy, me too! I heard all the hype about melatonin and didn't try it BUT finally I did and it works great for me. it's on my list of 5 fibro miracle aids lol. I take 3mgs about 3 hours before I go to sleep and I sleep all night (except for the bathroom trips). It's natural, harmless, doesn't interact with anything I can research so give it a try, good luck fibrofranView Thread
Hi Jenna, I am 62 and had unbearable feminine issues from day one in my teens. I have read alot about the issues lately and Fibro is the "cause" of the issues, not the other way around. Fibro screws things up and then we deal with the affects after . See a good gyno and I bet you have endometriosis, it was the DEVIL for me, one week out of every month my body was a torture chamber, nothing helped, I tried it all. Finally got a partial hysterectomy at 40 and felt way better than my whole life. I have to deal with menopause but thats a walk in the park compared to the periods from hell. Good luck, get good help, chip away at the symptoms of fibro one at a time and life will turn around for you. fibrofranView Thread
Hi Gore, had to respond, YES out of the blue this last week the creepy crawlies, i call them, came on bad....I tried everything you did, finally took an antihistamine and it helped which tells me "something" is kicking off the "allergic response" but God only knows what?? I keep changing soaps, powders, then do nothing, it is under the skin, like in the blood stream, and moves around. This week I got it places I never had before, you can imagine!! I haven't changed meds in awhile so it's not that. this round of it scared me cause it hit in my armpits and I'm not sure if it's related to lymph nodes?? If I figure something else out will let you know, you do the same please and if you can take an anti-histamine to see if it helps? best wishes, fibrofranView Thread
Just a scots, So sorry for your predicament, I share it. EVERY and I mean Every med ever prescribed to me disagreed with me, I felt like I was dying at least 6 times in the past years trying out meds. I have learned that I Must start very very low dose, no matter what the doc prescribes, period. I agree with Nancy, I took savella, and almost lost my mind, but if I took 12.5 it actually worked well. Do put me on gabapentin a month ago, 300mgs 3 times a day, the next day I had tremors , shakes, vomiting, unbearable dizziness, migraines etc etc, double vision...scared me so. I spoke to the pharmacist for quite awhile before I started it, he gave me the typical side effects the pharmaceutical companies list. But WE are not One Size fits ALL. I went back to hime after a week from hell after taking it and he said the doc should have tapered me up! He saw the starting amount but didn't say a word. Anyway, you have to stay in tune to everything you put into your body. Some of the meds you went through might actually work for you at a much lower dose. Like Nancy, my miracle is tramadol 12.5 (non time released, I break them up, every 6 hours or so. It takes away enough pain to be me and move around and do things. I tried 50 mg as prescribed and went out of my mind! (and the Powers that be are now worried we are drug seekers!!) I find if I can keep the pain down I am a different human being...I cope with the rest. I also take a very low dose 10mgs of celexa, really helps. God Bless, stay positive no matter how hard it may be, you will find your way into the Light of day. Let us know how you're doing, we care!! fibrofranView Thread
An, saw your post and want to add my experience. I am 61 and had absolutely horrific menstruations from 14 to 40, couldn't take it anymore and had a hysterectomy. Back in those days endometriosis was pretty unknown. Went through many docs and gave up. I lost a week of work every month, was very hard on my work life. Anyway, looking back now having fibro for a long time, I am positive that I had fibro back then as a teen, because the type of period pain is the same kind of pain as fibro. Only someone WITH fibro can understand that. Could it be that the intercourse pain is due to overgrown endometriosis outside your uterus, which is very common. Try a good gyno and get a good check up. Sending you my best wishes and compassion, fibrofranView Thread
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