Sorry for not writing here for long time. I want to let you know that I've overcome my FMS, through Qi Gong and Chinese Medicine.
It was difficult to overcome the withdrawal symptoms for more than half a year when practicing Qi Gong. Since immune systems of FMS patients have to be renewed, withdrawal symptoms including extremely frequent urination, vomiting, diarrhea, nausea, allergy to all artificial substance and chemicals including soap were occurred... and for many days I could not go out. My friend is a natural therapist, she told me that taking Chinese Medicine is a must is helping the consolidation of the condition and as to minimize the withdrawal symptoms of Qi Gong.
I took the Chinese Medicine in the very late stage because of lacking the knowledge, or else I think I would recover earlier. For some cancer patient friends, they commented that my symptoms were much alike those they were under chemotherapy.
I hope my sharing here can help those who have the same suffering. I was really afraid of telling many of my friends in those days since I knew many must disagree what I was doing. It was so hard to tolerate those days while lacking of support. Fortunately, there were still a group of friends who really believed in natural therapies. I did not have the courage until in later stage, I tried to tell them what I was doing. Therefore, I want to state here, support is extremely important in facing those symptoms, I found I lack of internal energy for many days. I wish there will be better support for other patient friends when more people have known my experience.
I also start learning Brain Gym, in which it's relating the CNS and our musculoskeletal systems and I found that it helps me and people around so much.
From the days which I always don't know how would be a condition tomorrow until now, I start to give relaxation and exercise (light) course. It's amazing.
I am Hong Kong people actually. Well, people don't talk about FMS here, (conventional medical) doctors' knowledge in FMS are much lagging behind than those in western countries. I have a Health Education diploma , worked for patient education (cardiac and dementia, etc) before but to talk about FMS here, well, seems I am an alien here. It's wired; I cannot get much concern in the society here but in turn able to find Chinese alternative treatment for myself. Yes, I'm sure it's the effect of the Qi Gong Chinese herbal medicine, my condition improved progressively through the process. Yes, it's true, I believe Hong Kong is the best place to find a good Chinese medicine doctor since in China there're too many things a fake.
My Qi Gong teacher used to be a US immigrant (Chinese) but now move to Taiwan and always fly to Hong Kong.
I pray that you will get something alternative like those I've found. For my condition, it's true, still have to observe for a period. And as I know, and if I'm still correct, 90% of FMS patients in Canada now seek for alternative medicine instead. For me, although I was being trained in the western conventional healthcare field, I believe much in alternative medicine instead, for many disease, not only FMS.
I was so afraid that my repvious reply to Rachel was adiscouraging one. I really wish that young people would be much better than me (inculding health condition, support and resources).
I don't wish to give discouraging reply here. I really feel very thankful to you, Bette. however, what you say is a joke, not even a dream and it's something unrealistic in HK.
My graduate paper was on pain/ rheumatoid arthritis research, I did a post-graduate studies, a Professional Diploma on Health Education and worked for chronic disease suuport (Cardiac and Dementia) before. However for FM, these are jokes in HK. Even I can't expect friends and relatives would understand me, I just hide up and avoid meeting them. Even the hospital asked for stopping blood test on me, the Hospital Authority/ Government in HK tries to minimize welfare on lots of acpects. This happen after HK back to the rule under China.
Bette, where do you live? I really miss NY. I went to NY in 2010. My grandaunt and cousins were there but leter old grandaunt passed away peacefully and everyone left NY.
wish you all well!
BTW, it's seems I have some improvements when practicing Chi Kung and Feldenkrais. I wish the improvements go on. I still wish that I can go back to work. We have no say for allowance/ subsidies (we may have some chance if we are lame). We have to have empower on our own-selves.
While in a nutshell, I still belive in Chinese Medicine (Chi Kung, Accupuncture, etc.) more than other therapies. Maybe other alternatives in HK are not so well developed in western countries although we still can find CST, homeopathy, Feldenkrais courses, etc. in HK while I think Chinese Medicine should be the best in HK among the world (although it's chinese medicine but everything in China is messy and therefore I think HK is better....)
I wish you can find your way in managing yourself, it takes patience and wisdom to. We are always the one who know ourself best
I got FM 14 years ago, i.e. since I was 19. There's no medical insurance subsidied from the government in Hong Kong, here. One may have to wait for 9 years for a check of cancer in public hospital in HK.
Therefore I've really spent lots of money on FM. Some friends criticize me spending lots of money and don't go for work. I do want to do what they comment on me. I tried my very very very very best to ........ I feel it's difficult to accept myself not going to work and be hard-working in being promoted as I'm living in a society that people's own value depends on prosperity. I'm not a responsible person as a bachelor degree holder in the eyes of HK people, not making living, etc. Luckily my family is still supporting me.
When I was at the age of you, my mum was suffering from leukemia and it was the year that SARS were spread in HK and all over the world. When I was also suffering from FM syndrome like pain, aches, fatiques, short memory loss, dizziness, etc. still at the age, I couldn't imagine how I completed my bachelor degree when I was 23!
I can manage FM for some years in between through Chinese Medicine, CST, etc. I got very bad in FM last year and seldom be able to go to work although my friends persuading me to put much effort in job seeking. Although tried many many many methods alst year, until I met a Chi Kung teacher last summer, I can manage around 60-70% of my pain and fatique. I went full-time work for 3 months then. However now I'm suffering from frequent urination problem and difficult to go out for a while /_\.......
I should praise myself and support you for I have done my very best , too but it's quite difficult for me to parise myself among the eyes of HK society as I'm not going to work for my own living, hard-working on buying house, etc. I worked in patient support groups and have been working in the rehabilitation field, I supported patients of other chronic disease to praise themselves and suppor teach other but I found it's difficult for me. There's too limited resources for FM. In return, I'm still feeling lost in helping myself.
I wish that you are doing better than me in getting supported and praise yourself what you have done for each little thing and everyday. I wish that your support and resources are better in your country than mine.
I feel loss today, too. I've spent days through internet and phone to search for medical resouces again. May the wisdom and love be with you and all of us.
Thanks for support recently. Lucky that by fibro widespread pain is stablized now after practising Chi Kung these several months, I feel like miracle (but only the urination problem doesn't get better), at least I can do some job and help normal housework, join church activities, etc.
The teacher is a Chinese and stayed in US for many years before but recently he's staying in Taiwan and always come to HK. He's not concentrate on giving courses in US nowadays. Miracle does not happen to all Chi Kung classmates but quite a number of us recover soon for our health problem, he's a quite powerful Chi Kung teachers.
I don't know if anyone of you heard of him, he's Dr. Sir Steven yin (Green Pine Tree Health Seminar). He used to live in CA before.
I don't know if it's good to recommend to you come to HK/ Taiwan to learn but .... if you have such interest, I can try ask him if he is willing to give his contact to you.