Hi Ladybug, I can only echo the sentiments of Mimi and Nancy, it's true, the worst you'll feel is at the beginning when it's all so hard and new and it's hard to see the light at the end of the tunnel. But you will find a way to cope and it will get easier to manage.
One of the best things is being part of this group, there are so many people with great advice and support who know what you're going through.
Be strong, this is a fighters illness, don't let it pull you down. You sound like a strong and positive person, don't let go of that, it will be your main-stay.
Use all the resources you can get your hands on, including a great letter that's linked to on this site explaining the illness to family and friends. It was great for my family and gave them an insight into what I was going through.
The best and hardest piece of advice I got was from a physio who told me to exercise through the pain, and that may sound hard and at times it is, but we're not talking high impact, try and walk or swim or do some light exercise every day. Pilates and yoga are great.
Mind yourself, and keep positive, keep looking in that mirror and tell yourself you're strong and wonderful and you'll find the strength to get on with your life and your FM
I wrote a few months ago about a burning pain in my neck. I finally got an MRI through my new specialist and it turns out I've two prolapsed disks in my neck. He's also putting me on Lyrica for the FM which is super bad right now. But I wanted to say thanks for your support, advice and feedback .
I've been complaining of this for over 2 years to my GP and he kept putting me on anti-inflammatories and I had to beg for a referral. But I'm so glad I have now. I've to see a neuro-surgeon next, and I'm on week one of the Lyrica, so fingers crossed I'm on the right road!
Fran you may have hit the nail on the head. My arms don't feel like they belong to me today, I don't know who owns them but I'm not surprised they gave them away as they don't work properly and feel very dodgy. Off to the Doctor again with me. I think he thinks I fancy him I spend so much time there.... only joking, he takes me seriously.
No I've never experienced that, but poor you, you seem to have a lot of additional issues that could be complicating things for you. I think you really need professional advice on that one, but maybe someone else here has experienced it.
If I were you I'd talk with my Doctor first. Best of luck and please God you get some relief soon.
Thanks all for your repsonses, I never thought of it being a pinched nerve and I neuropathy is a new one on me too. I'll look into them.
Unfortunatley Bette it's not sunburn, I'm just as pale as normal, the weather here is awful.
I woke up this morning and it was relieved a good bit, I can still feel it but it's nowhere near as bad as it was over the weekend and I can feel that heavy dead weight has lifted a bit too, so I feel able to start going for my walks again, that always helps, but I will investigate the pinched nerve aspect, because that would explain the light numbness and light tingling in both arms.
It's funny how when you're in the middle of it it's an unsurmountable problem, but once the fog begins to lift you can see things a bit more clearly.
Thank you all for replying to me, as always your help and advice is gratefully appreciated.
I've a new symptom and not sure how to deal with it. I have a burning pain in my neck, arms and hands and my skin feels on fire. It feels like someone is slow roasting me over a flame, but I'm not hot in areas where I don't have cramps and it's a dry heat, I'm not perspiring.
I have a knot in my shoulder on my left side (my weak side) that feels like someone has stuck a hot poker straight down through me.
Anti inflammatories and tiger balm not working, infact the latter makes it worse with the added warmth it gives off. Stretching makes it worse as does walking or any light exercise, but if I sit still I cramp up all over.
I don't have access to the same meds you guys mostly have in the US, I'm in Ireland. Any advice gratefully accepted or if you've experienced it too and I'm not losing my mind it would help to know it. I'm a bit stressed at the moment which isn't helping either so I know the two are linked, but this feels like a big jump in the pain register.
Thanks everyone and I hope you're having a better day than me.
Thank you all for your support, I wasn't in the right place to read a mail like that as you can imagine and obviously not clear headed enought to recognise it for what it was. All your subsequent posts have really helped, thank you.
As you all know, there's good and bad days and that was a bad one, but thankfully I'm in a much better place now less likely to snap someone in half. Thanks for the moral support, that was just what I needed. A problem shared and all that...
Really? It saved your life? Really? After the fortune and pain and suffering millions of FM sufferers have had, this one little book will save us all will it. Wow, you should advertise it and recommend some translation software...oh, you did. Why do you sound like a scam?
I'm having a bad day Landaise28 and I don't need to hear stuff like that. It's the exact same type of rubbish I've just been complaining about, magic cures.
Not to burst your bubble, but I've had that couple of years of being free from pain since my dx and it was bliss, until some so&so crashed into my car and the stress set it off again multiplied by 10. So your little spate of freedom may just be co-incidental but enjoy and thanks for rubbing salt in my wounds today. Just what I needed.
By the way, check your spelling and grammer you read like a bad advert. But if you're genuine, then learn a bit of compassion will you?
Oh, I'm having a bad Fibro day today. I'm tired, I'm sore, my concentration is deplorable. I'm just fed up with it all. Not even the Sertoline is helping today. There's something unfair about being so low when you're on anti-depressants.
Is it just me or are mornings hellish? I have to drag myself up out of bed I'm so tired, but no matter how early I get to bed at night, I can't sleep until way after midnight some times.
I'm fed up feeling fed up. And I'm fed up that no one around me really understands it and I'm fed up having to explain all the pains and why I'm so pale again and why I look in pain. And I'm super fed up with having to listen to all the advice from people who's friend's aunt's cousin, three times removed has Firbromyalgia and this amazing "cure" works for them. I'm fed up smelling of tiger balm and deep heat and having people sniff me because they love the smell or comment that the catering team must have something spicy on the menu. No, it's just me.
I'm fed up trying to hide it in work incase it's seen as a sign of weakness. Say what you want, but there's still predjuice there in some people's minds.
I'm fed up watching other people who can walk and it not hurt, I remember what that feels like.
Let me mention that I'm just fed up today. Today is just a bad, feeling sorry for myself kinda day. Tomorrow may be better. So although I'm having a good old fashioned rant right now, it's because I feel safe doing it here, where people get it and even if no one replies, I know there are plenty who will nod their heads in understanding and sympathy and say, yep, I've been there.
I've been worse, but I've been better. I'm in that no-mans land of Blah right now. But like all things, this too will pass. And as Scarlett said, Tomorrow is another (bloody) day.View Thread
Hi, I just wanted to say thank you to everyone for all the tips and great advice on this site. I've had a hell of a time lately and coming on here and sharing with people who know what it's like has been a god-send. I actually feel stronger just knowing I'm not alone.