Ask your rheumotologist about a TENS. (Look up TENS on the internet) I swear it saved my life. I now have hurt my back and use it for both now. You need a prescription for it. Don't let your doctor talk you out of it. It was a pain doctor that got it for me. Good luck!View Thread
How do you really know if you have fibro? I was told I had fibro by a rheomotologist, who was from the Cleveland Clinic, in 1994 without the tenderpoints. Then again in 2009 with the tenderpoints by a different rheumotologist (who has since moved away). Then in 2013, I was in so much misery I went to a friend's rheumy who is in private practice and very well respected. The others were too. She was a real bitch to me, but did her physical and declared I did NOT have fibro. She did some extensive blood work and I came back for the results. She was nicer but said I certainly did NOT have fibro. I later had an appointment with a new primary care doctor and told her I had been told for years that I had fibro but was now told I didn't. She said that if this recent doctor said I didn't then I certainly did not.
The thing that bothers me is that I have ALL the symptoms of fibro and I feel I have the tender points but not "tender enough". I now feel guilty for belonging to this site and also telling people that I have fibro. It is an easy explanation when people ask what is wrong with me instead of saying "I don't know". Do any of you have a similar situation?View Thread
No I am not. Actually I wasn't at the time. I just went there because I had what was called "silicone poison". He then diagnosed me with fm. Neither of which were believed in this area at that time. Most doctors in the nation don't still don't believe in "silicone poison" but I definitely do. I wish I did live in an area like Cleveland! The place I live (population is over 100,000 and a University town) is pretty backwards.View Thread
I certainly appreciate your warm response. It is interesting that you tell people you have chronic pain/migraine pain and not fibromyalgia. I have felt over the years that if I mention "migraine" or "chronic pain" it is like saying "you have a bad back". People just roll their eyes. It is like it is over used. That is why saying fibromyalgia works better because it says so much in one word and is not over used. At least in my little part of the world. I am amazed at how many people are familiar with it. Probably due to all the drug advertising.
It is very interesting what you said about tender points. I agree with you totally about the amount of pressure and maybe it isn't exactly where the doctors says it should be therefore I am "wrong". When I get home I look on the internet and see the points and push and yelp. Some of the spots much more sensitive than others and some not at all.
You know, I really don't care because the name doesn't matter. I know how I feel and I am just going to say FM although as soon as I typed it I felt a big twinge of guilt in my gut! At any rate, I take Neurontin which helps and I wear a TENS which helps a whole lot. I take several herbs and vitamins and do mild exercising 3-4 days a week and that is the best I can do. There is no cure for FM or anything that is similar to it so it doesn't matter what I or my doctors call it.
So you and the other FMers have been very helpful to me and I appreciate your time. I just hope I can help in return!View Thread
Hi Nancy, thanks for your nice reply! I have bought the book that you talk about. I bought it on my e-reader and may have to buy it as an actual book but it was twice as expensive. (I am cheap) I keep finding passages that I want to highlight. I am afraid I haven't gotten very far because it is a bit "dry". With my memory what it is I keep wanting to remember all the muscle and nerve parts, which are fascinating, so I keep rereading everything and not getting very far.
I like what you said about asking yourself whether you have FM or CMP. It makes me feel better that I am not the only one that questions myself or the doctors.
I have started, several times, looking through the Members Toolbox. It took me several tries just to find the darn thing. It is amazing how much time you can spend reading on this site. Between an old back injury and body aches, it gets to be a bit much, but I don't want to stop!View Thread
I appreciate your response "missist". As far as getting hold of that last rheumotologis I would rather go get a beating. I thought I couldn't be treated any worse until I then went to a pain doctor a few months later and she was even worse. I was beginning to think I was going to stay with men doctors! I have not been to a nice, patient doctor in so long I really can't remember. We have 2 large clinics here and so I thought it was just the way the clinics were set up so that is why I went to the private doctor. She was grumpy too. Really, I am a very respectful, shy person so I don't think it is an "attitude" that I bring.
If I go out of town I run into the insurance problem of "out of network". So I am stuck.View Thread
I always get a "kick" out of reading your name because that is who I am to my grandchildren. Just had to add that.
Being told what I DO have has always been the problem and always being told what I don't have. Of course it is nice to know you don't have those bad things. I have been tested for Parkinson's and MS (even had the dreaded spine tap) for other "disorders" that I have but not had them identified either. So, the answer is that the most recent rheumy just told me that I had overactive nerve endings. What really makes me mad that she did not prescribe any kind of medicine at all. Not even cymbalta, Lyrica, Neurontin. I think I made her mad when I asked for hydrocodone.
She is a believer in Fibro and I think most of the doctors I have gone to for other things have never scoffed at me about that. None have ever offered to work with me either.
I have had my Vitamin D checked and it was low several years ago but has been very good for the last several.
I love this site and you ladies. I have being reading along for several years and jump in every once in awhile, but don't know how you know if someone responds to you within a thread if it isn't one you have started yourself. Does that question make sense?View Thread
Sometimes one of the big stumbling blocks of FM is depression. Depression can give you the feeling that it is just too much effort to leave the house. It is very common. Have you discussed this with your doctor? I really don't like it when a primary doctor treats for depression. A psychiatrist is much more qualified to do this. If depression is diagnosed there are some great antidepressants out there. You sound very social to me so ask for help and you will find it.View Thread
This isn't really to you since you are already are in the process of trying to get SSDI. You brought up a good subject thought. If you are even thinking about applying start now. I worked for over 20 years and made a very good income. Then I had to work sporadically for the next 7- 8 years with part of that not qualify for the required quarters you need. Finally when I could not work anymore I tried to get SSDI. I found then I did not have enough quarters to qualify because the prior years when I had made a good income had dropped off. They take the best 5 years of the last 10 years. So I had waited too long. My point is that I really think I was technically disabled long before I applied but just never got around to doing anything about it until my good "earning" years had dropped off. LaurieView Thread
I am very late reading your posts. I am on a month long vacation in California. We usually go to Florida but I always feel so bad there. Really achy, tired and lots of pain. I think due to humidity. It took me 8 years to figure this out! So we came to California. I felt really good the first 2.5 weeks we were here. Then gradually felt worse. Debbie's comments about diet gave me one of those "aha" moments. I have eaten like a pig with lots of bad food. I realize now that is why I have started feeling worse! So Debbie's comments about diet are very important Kuziee. I would say stay away from starches and cheeses. That is mostly where I have sinned. Plus I have not eaten enough vegetables. Just a thought. May be not true but it sure makes sense to me. LaurieView Thread