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How is your daughter doing? How does she cope with be challenges and does she have any coping strategies? My daughter does not want to talk much about fibro although she most likely notices how I cope with it. I walk with a stick, have a disabled parking permit, go to a support group once a month. Pain and fatigue for ced me to give up work. But, I have great mental strength and a good sense of humour, both of which really help. I've learned to do things much slower, don't multitask but try to focus on my action, and try to rest before my activity tires me out. But your daughters situation is different as she is at the start of her own independent life which is frustratingly hampered by fibro! How do you cope with this frustration and disappointment? How are you trying to support her? How are both of you keeping your spirits up? Chat soon all the bestView Thread

I have been suffering badly from fibro for many years, was diagnosed about 2 years ago and am just about coping with it myself. Now my 19 year old daughter has also been diagnosed. She is living with me and I want to give her all the support she needs/wants. At the moment she doesn't really want to talk about it. She'sbeen on amitriptyline for two nights now and is really tired, also during the day. I believe this will wear off after a while. I am on gabapentine, so I have no experience with amitryptiline.
I have been managing fibro really well, pacing myself and all - but my daughter's diagnosis has thrown me of track a bit and I am experiencing a huge flare up.
Anyone with a similar experience? How do young adults manage fibro at best? And how do you, as a fibro-afflicted parent, manage to help them and cope with the situation yourself?
Any advise welcome!
ThanksView Thread

, my pains etc etc I was very reluctant to tell her that I suspect she has it as well. She is a very active person, wants to over-achieve (don't we all??) and has a great bunch of friends. Knowing what teens gave to deal with under normal circumstances, I didn't want to add my fibro suspicion. She had to see a pain specialist two days ago for jaw pain and guess what - he checked her for fibro!! I mentioned that I suffer from it. Now she will see a rheumatologist to confirm the diagnosis. I am glad that she doesn't make a great deal out of it, maybe because she sees that I keep my spirits up (meds help here a bit). Her pain specialist said that young people have a good chance to manage fibro very well, so an early diagnosis is very important. All the best to you both!View Thread


will check with my GP ASAP. Would you know if fibro sufferers are entitled to any sort of disability benefit I the uk? Here we are trying to get better recognition from the stat at the moment. Best wishesView Thread

what you wrote makes total sense, you have found great ways and means to manage -I can totally relate to them
hope you are having a good day today. Despite all , the glass is always (of at least most of the time, lol;) half full and I manage to at least try to enjoy every day - what else to do?
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