Despite fibro I believe I am a rather strong person. All my family are going back to their jobs or school tomorrow after a wonderful Christmas break but fibro keeps me out of a job. So, that leaves me home with my cats, lovely neighbours, upcoming knitting class, a friend picking me up for the occasional coffee - still the thought of 'tomorrow' scares the living daylight out if me right now...
Anyone else experiencing this?
Sorry to hear that. My feet and lower legs sometimes feel like their broken, especially when I get up in the morning or after a rest. Especially the shins and top of my feet hurt like hell. No idea what to do about this yet but still thought I share this with you.
All the best xView Thread
My daughter is 19 and has been diagnosed with fibro just 2 months ago. She had an inflammation in her jaw joint due to constant jaw clenching. her consultant suspected she has fibro, referred her to a rheumatologist and his suspicion was confirmed.
I suffer from fibro, too, although much worse than she does at this time. There is clearly a hereditary link, she is taking amitryptilin which has improved her sleep a lot. Before she was able to sleep roughly 5 hours. She has problems concentrating for longer periods, fatigue affects her during the day and she has spells of vertigo. Attempts to multitask usually dont produce great results... Her joints are weak and she had quite a few sprains in most of her joints! She's dyslexic on top of it all. Having said all of this, she's a wonderful girl who really enjoys life and who learns from her experiences, be they good or not so good.
How is your daughter doing? How does she cope with be challenges and does she have any coping strategies?
My daughter does not want to talk much about fibro although she most likely notices how I cope with it. I walk with a stick, have a disabled parking permit, go to a support group once a month. Pain and fatigue for ced me to give up work. But, I have great mental strength and a good sense of humour, both of which really help. I've learned to do things much slower, don't multitask but try to focus on my action, and try to rest before my activity tires me out. But your daughters situation is different as she is at the start of her own independent life which is frustratingly hampered by fibro! How do you cope with this frustration and disappointment? How are you trying to support her? How are both of you keeping your spirits up? Chat soon all the bestView Thread
Dear All, I have been suffering badly from fibro for many years, was diagnosed about 2 years ago and am just about coping with it myself. Now my 19 year old daughter has also been diagnosed. She is living with me and I want to give her all the support she needs/wants. At the moment she doesn't really want to talk about it. She'sbeen on amitriptyline for two nights now and is really tired, also during the day. I believe this will wear off after a while. I am on gabapentine, so I have no experience with amitryptiline. I have been managing fibro really well, pacing myself and all - but my daughter's diagnosis has thrown me of track a bit and I am experiencing a huge flare up. Anyone with a similar experience? How do young adults manage fibro at best? And how do you, as a fibro-afflicted parent, manage to help them and cope with the situation yourself? Any advise welcome! ThanksView Thread
I am finding myself in a similar situation. I was diagnosed 2 years ago but must have been suffering with fibro for years and years. My daughter is 19. She's been dealing with back pain, terrible knots in her upperback, sleeplessness, fatigue, pain all over for a good while. As she sees what fibro had done to me (can't work in my job anymore, loving my couch , my pains etc etc I was very reluctant to tell her that I suspect she has it as well. She is a very active person, wants to over-achieve (don't we all??) and has a great bunch of friends. Knowing what teens gave to deal with under normal circumstances, I didn't want to add my fibro suspicion. She had to see a pain specialist two days ago for jaw pain and guess what - he checked her for fibro!! I mentioned that I suffer from it. Now she will see a rheumatologist to confirm the diagnosis. I am glad that she doesn't make a great deal out of it, maybe because she sees that I keep my spirits up (meds help here a bit). Her pain specialist said that young people have a good chance to manage fibro very well, so an early diagnosis is very important. All the best to you both!View Thread
I suffer from restless leg syndrome, almost every evening when I go to bed. It's awfully uncomfortable and annoying. My fibro consultant says there is nothing that can be done... Anyone with similar issues? Any advice highly welcome! Am on gabapentin, SSRIs and beta blockers for tachycardia.View Thread
Hi nancy b, thanks for sharing you 'trick' and experience. We all experiment with what may help and it's sooo individual, but again we all seem to experience quite the same. Trying g to figure out what caused fibro in a person is quite a challenge - there's a good article on wiki, just google Wikipedia fibromyalgia. This article explains quite detailed the how's, what's and possible whys. But the again, we all gave our own story...
Good luckView Thread
Hi jilly thanks for your advice - I live in ireland, so sort of next door will check with my GP ASAP. Would you know if fibro sufferers are entitled to any sort of disability benefit I the uk? Here we are trying to get better recognition from the stat at the moment. Best wishesView Thread
Thank you so much Jan, you're a star - that's fantastic information! what you wrote makes total sense, you have found great ways and means to manage -I can totally relate to them hope you are having a good day today. Despite all , the glass is always (of at least most of the time, lol;) half full and I manage to at least try to enjoy every day - what else to do? View Thread