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Reply: fibro and eating disorders

I might suggest using hand weights for your arms. Repetitions. I am not a DR or physical...

Posted by LIDEBRAS

13 Replies | Reply | Watch This DiscussionReport This| Share this:fibro and eating disorders I might suggest using hand weights for your arms. Repetitions. I am not a DR or physical...

Reply: Guilty for being a burden?

I wanted to wish you best of luck with filing for disability. I knew what I was up against...

Posted by LIDEBRAS

62 Replies | Reply | Watch This DiscussionReport This| Share this:Guilty for being a burden? I wanted to wish you best of luck with filing for disability. I knew what I was up against...

Reply: Guilty for being a burden?

This reply is to Bethrh30: I have a wonderful Dr who treats many FIBRO patients. Here are...

Posted by LIDEBRAS

62 Replies | Reply | Watch This DiscussionReport This| Share this:Guilty for being a burden? This reply is to Bethrh30: I have a wonderful Dr who treats many FIBRO patients. Here are...

Reply: Guilty for being a burden?

I read your letter and I understand how you feel. I was widowed at 39, when my husband...

Posted by LIDEBRAS

I read your letter and I understand how you feel. I was widowed at 39, when my husband died suddenly in my arms o from a massive coronary.This left me with an 8 year old daughter to raise on my own. After that, I had LYME disease and then was diagnosed with Fibro, chronic migraines that come very often. Then osteoarthritis, and now RA. I am on 14 medications. I did apply for SSD on my own and it took 3 months. This was after I got hurt at work, and needed surgery. Following the surgery, I could not go back due to too many restrictions. Basically, they forced me out of work. Now you know a little about me. I didn't date until my daughter was 16. She doesn't remember her Dad too much but does remember that after he died, I was SICK ALL THE TIME. My boyfriend of 11 years is more of a companion/dear friend & we truly care about one another. He takes care of me and I take care of him. He sees me everyday practically, as we have our own homes. He's 13 years older than I am. My sister understands as she has FIBRO, OA & RA.We talk all the time and TRULY understand what's happening. Unfortunately, she lives in FL & I live in NY. Relatives know (kinda sorta) about the illnesses I have. A few co-workers know about my illnesses and are supportive. One of them has Fibro but a much less severe case. What I am trying to say is that it's important to tell those people who are close to you (friends and relatives who truly care) what's going on with you. You have nothing to loose and everything to gain You 'll find out who your true friends are and those who are not. The problem is that people look at me and from the outside & I look good. A bit chubby and I usually have a smile on my face. (I've been like that since I was a young child - can't help it.) I don't want to be "Debbie Downer" but my life is as it is.I am grateful to be alive. Warm water therapy does help, as does the chiropractor, massage, acupuncture, etc. Being on SSD, my life is less stressful. I do what I can do and try to pace myself. If I want to do a chore one day, and I wake up feeling like I got hit by a truck, I take my medication, rest and know I will try another day. My daughter does not live near me and I think it's better for me. My house is far from perfect (quite a bit of clutter) and that drives her crazy. With her not living nearby, I don't have that constant STRESS on me to PLEASE HER. I just can't do it!! My friends make plans and know that at the last minute, I may NOT be able to go. I no longer travel because the last bunch of times I did, I was sick away from home and very uncomfortable. I did not get to enjoy the festivities. Why bother. I have learned to ACCEPT this hand that I have been dealt and live it to the best of my ability. One last thing, if you can, ALLOW some people in. They may surprise you and actually be there for you! Also, the ARTHRITIS FOUNDATION sometimes has FIBROMYALGIA SUPPORT GROUP MEETINGS. They are very helpful, give you things to think about that you hadn't heard before and share ideas, thoughts about different medications and ways to feel better. When my sister visited me, I actually brought her to some of the meetings and she was thrilled to be near people who knew what she was going through. When you hear all the stories, your situation might not look so bad! You remember, THERE BUT FOR THE GRACE OF GOD GO I ? Check it out and best of luck. I'm also a very good listener!View Thread

Posted byLIDEBRAS

62 Replies | Reply | Watch This DiscussionReport This| Share this:Guilty for being a burden? I read your letter and I understand how you feel. I was widowed at 39, when my husband...

Reply: Finding a pain management doctor who will write fo...

Where do you live - state and town?

Posted by LIDEBRAS

12 Replies | Reply | Watch This DiscussionReport This| Share this:Finding a pain management doctor who will write for pain medicaion Where do you live - state and town?

Reply: fibro and eating disorders

I agree that when you have Fibro, and your are in pain 24/7, you care less about what you...

Posted by LIDEBRAS

13 Replies | Reply | Watch This DiscussionReport This| Share this:fibro and eating disorders I agree that when you have Fibro, and your are in pain 24/7, you care less about what you...

Reply: Do You Remember?

I began being in constant pain at least 19 years ago. I had been in a car accident - as...

Posted by LIDEBRAS

I began being in constant pain at least 19 years ago. I had been in a car accident - as usual, waiting with my blinker on for a parking space to clear. Wrong place at the wrong time. An 18 yo girl was driving while putting on her make-up. BAM! I needed carpal tunnel surgery after that. Went for surgery and then PT for the whip last. My husband died suddenly, in my arms, at the age of 45 on Father's Day that year. The Dr's couldn't understand why the PT wasn't making my shoulders, body, whip lash pains better, so they took a bunch of blood work. You know what came up positive? LYME DISEASE! I could not believe it. My 8 yo daughter and I did nothing after my husband died that summer. We didn't go camping and we didn't have a rash. (I had LYME and then my daughter was diagnosed but with a more mild case). I got treated with the big guns, Rosephin IV for 28 days. Thank goodness for that FLUKE & for my being tested. I could have had so many neurological problems from the Lyme, but it was caught relatively early. I HAD NO RASH! When I started going to FIBROMYALGIA SUPPORT GROUP MEETINGS and of course, doing my own research, I found out that there are 3 different causes affiliated with the onset of Fibro and I had all three! 1. the death of someone close to you (spouse, parents, child, etc) 2. LYME DISEASE and 3. car accidents (by then, I had been involved in 9 - none of my causing). BINGO!
I went from one Dr in a research hospital who thought that if he got rid of the inflammation, the pain would go away, so no pain meds. They really didn't know what FIBRO was, let alone how to treat it. After trial and error, I finally found a Dr (Neurologist) who is also my pain specialist. He is a wonder and I wouldn't feel even this good, without him. I do take about 14 medications. So, he treats me for Fibro and the chronic migraines, chronic pain, and osteoarthritis. I see a rheumatologist for the RA and am on Orencia infusions, which seem to help better than Enbrel or Remicade. Fibro is a day by day disease. I take heavy duty medications that help me to keep on going. Whne I was a young kid, I always wanted to live to be at least 100. Now, at almost 59 years old, I still want to live that long. As long as I can manage the pain.View Thread

Posted byLIDEBRAS

23 Replies | Reply | Watch This DiscussionReport This| Share this:Do You Remember? I began being in constant pain at least 19 years ago. I had been in a car accident - as...

Reply: What kind of specialist?

I actually see my neurologist who sees many, many, many patients with Fibro and is also my...

Posted by LIDEBRAS

5 Replies | Reply | Watch This DiscussionReport This| Share this:What kind of specialist? I actually see my neurologist who sees many, many, many patients with Fibro and is also my...

Reply: Help!

I read your letter twice, Hard to concentrate with an awful migraine and FM. I understand...

Posted by LIDEBRAS

8 Replies | Reply | Watch This DiscussionReport This| Share this:Help! I read your letter twice, Hard to concentrate with an awful migraine and FM. I understand...

Reply: Guilty for being a burden?

I know exactly where you are coming from, as I've been there myself. First off, have you...

Posted by LIDEBRAS

62 Replies | Reply | Watch This DiscussionReport This| Share this:Guilty for being a burden? I know exactly where you are coming from, as I've been there myself. First off, have you...

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