Yes. Most definitely!! All that you describe. And then I have something like a frog that jumps from one end of my body to the next. They are sudden involuntary movements. I get jolts of thunder-like things that happen, and people look at me strange, even my family.
I tried to explain things from time to time, but they act like its brand new to them. My stomach is constantly going. You are not alone., I just feel stupid sometimes because it looks crazy to see.
You are right. I feel better when I sing, but I can't do it for more than a few moments at a time because my jaw, neck, throat and mouth get tired. I have to close my mouth and rest before I pick up where the song left off!!! :0
Don't have the answer to the latter half of your question, but I think there is some truth to it. Music takes your mind off of your situation. I listen all the time, even now at work all day.View Thread
Since I have been going to the pain clinic, I forgot to say that I am not on any narcotics. They almost totally change the meds that I was taking to what I am taking now. I was told the same thing, that narcotics don't work for fibro. No narcs for me. Hope this helps. It just hurt my heart to know that there are so many people suffering like me. Keep your head up and pray.
So sorry that you have to fight this, but I know that you are in good company. This site has been very helpful for me. I read your situation and it seem like I'm reading about me. I've been on every thing that you are taking, and has been taking. The fentynal patch worked for years, but I always felt like I was here and there. A real high feeling.
I've been off all narcotics for a few years with no side affects, or maybe I didn't notice because I was used to feeling lousy that it didn't matter. I have been up and down the register of drugs over the years, heck.. I think I might be an expert. Lyrica work ok I've been on this for a while, years, been trying muscle relaxers. They work so..so and they help with the cramps and Charlie horses that I used to get really bad. Been taking tramadol for the last (6) months or so. Also you might want to try some supplements like magnesium, and maybe B12. They seem to help a bit. My vitamin D levels stay so I take prescription vitamin d. Sorry that I'm just doing too much, but I've learned some valuable information here and just wanted to share.
Hey just checking in. Last night the flare started and today it continues. I know that this is the day that God has made and I should rejoice and be glad. I am grateful, and working really hard to get better as I work.
Most of My days I say to myself Lord, if I just can make to 10:00, if I could just make it to Lunch time 12:30, Lord if you will Can I make it 'til 3:00. It's just about 4:30. Thank you LORD, I made it with your help.
Got up this morning turned my music up while trying to get dressed and trying to get something fix for DH and DD lunch. I grateful, but it is very hard.
Stay with me. I really need your help today. It's urgent!!View Thread
Thanks. What are wrist guards? Can you get them from the drug store? Is it something the Dr. ordered for you? I have a terrible time getting comfortable once I go to bed at night. My shoulders are bad. My Dr. solved my problem about my hips by accidentally touching my shoulders, that's how he found out about my bad hips. He even joked about me having shoulders of a 90 year old. So,,hips were replaced between 2007 and 2008. I was told that I would eventually need to have my shoulders replaced, but I told him NEVER.
Think he might have been right. I haven't hardly been able to raise my arms in a good 10 years. Combing hair and things of that nature can be a struggle. I'm a young/ old person. AVN is what they call it! Amongst other things....View Thread
I have facial and teeth pain. Sometimes worse than others. I also get the headaches and neck pain to go along with it. I have not been diag. with tmj, but something is wrong with my teeth and mouth, but with so many other issues. I try to address one at a time in the order of importance....Pain Level