So sorry that you have to fight this, but I know that you are in good company. This site has been very helpful for me. I read your situation and it seem like I'm reading about me. I've been on every thing that you are taking, and has been taking. The fentynal patch worked for years, but I always felt like I was here and there. A real high feeling.
I've been off all narcotics for a few years with no side affects, or maybe I didn't notice because I was used to feeling lousy that it didn't matter. I have been up and down the register of drugs over the years, heck.. I think I might be an expert. Lyrica work ok I've been on this for a while, years, been trying muscle relaxers. They work so..so and they help with the cramps and Charlie horses that I used to get really bad. Been taking tramadol for the last (6) months or so. Also you might want to try some supplements like magnesium, and maybe B12. They seem to help a bit. My vitamin D levels stay so I take prescription vitamin d. Sorry that I'm just doing too much, but I've learned some valuable information here and just wanted to share.
Hey just checking in. Last night the flare started and today it continues. I know that this is the day that God has made and I should rejoice and be glad. I am grateful, and working really hard to get better as I work.
Most of My days I say to myself Lord, if I just can make to 10:00, if I could just make it to Lunch time 12:30, Lord if you will Can I make it 'til 3:00. It's just about 4:30. Thank you LORD, I made it with your help.
Got up this morning turned my music up while trying to get dressed and trying to get something fix for DH and DD lunch. I grateful, but it is very hard.
Stay with me. I really need your help today. It's urgent!!View Thread
Thanks. What are wrist guards? Can you get them from the drug store? Is it something the Dr. ordered for you? I have a terrible time getting comfortable once I go to bed at night. My shoulders are bad. My Dr. solved my problem about my hips by accidentally touching my shoulders, that's how he found out about my bad hips. He even joked about me having shoulders of a 90 year old. So,,hips were replaced between 2007 and 2008. I was told that I would eventually need to have my shoulders replaced, but I told him NEVER.
Think he might have been right. I haven't hardly been able to raise my arms in a good 10 years. Combing hair and things of that nature can be a struggle. I'm a young/ old person. AVN is what they call it! Amongst other things....View Thread
I have facial and teeth pain. Sometimes worse than others. I also get the headaches and neck pain to go along with it. I have not been diag. with tmj, but something is wrong with my teeth and mouth, but with so many other issues. I try to address one at a time in the order of importance....Pain Level
Thanks. I might do some research on the acupuncture. I sleep with my arms curled up every night. Don't know when I started that. When I went to hand doctor a couple years ago I was told that I needed surgery for ulnar nerve entrapment. The surgery would not guarantee results, so I didn't even think about it.
I wear warming gloves at work and have for sometime now, as a matter of fact, I'm on my second pair. Hand doc also asked if I do a lot of leaning on my arms. I hadn't thought on that, but I did. I've even gone so far as to get a new chair at work with no arms to get rid of that problem. I still hurt tremendously if with those changes. I do Epsom salt baths and all kinds of things at home, but was just wondering what I could do away from home to make my workday better, because I do want to work.
I've been to a hand doctor and he suggested surgery, but with no guarantee about the results. He even illustrated the marks it would leave on both my arms. Yes I too sleep with my arms balled up every night. I didn't always do that! Now it seems I can't sleep without doing it.
Stretching them out feels better, but can't keep them that way. Might try braces. Never thought of that. Feels like I need something between me and these keys. Been wearing warming gloves. Make hand and fingers feel a little better, but after a bit I have to take them off because they hurt against my skin. They also feel a little balky.
Not sure about acupuncture. I can't afford to keep going to doctors like I have over the years. I go when absolutely necessary! Don't know how insurance will take care of that cost. But I will consider it. I used to go to therapy, but for other things. Just so much, I just try to fix the most painful at the time.
Ii work at a computer everyday, and have for the last 19 years. I have fibro, ulnar nerve entrapment as well as other things. Have any suggestions to the burning and tenderness of my whole hand, including wrist.
Anything! Just very hard trying to type right now.
I feel like you are talking to me, or I am talking to myself. This is exactly all the types of things I feel. I was diagnosed with costochodritis after I went for a walk at work on my break and my chest got so tight that it scared me. The pain went right through me. I hurt to try to take a deep breath., I still get that way sometimes. I notice that I get winded when I'm nervous, or excited about something. Even a short walk does this to me.
All the facial pain you described I also have. I am sooo....glad that I have people to relate to. My eyes get dry and red around the area outside of my eyes. The eye lashes, eyebrow, eyeballs, they hurt so bad that I try not to move them, it just gets so bad. My jaws hurt to touch and when I open and close my mouth I hear crunching noises. My mouth get tired from talking. The motion of opening and closing my mouth, clear down the neck. The time of the month feels like the wrath of the devil on me. Just set everything on (10).
We cannot fight the fight alone. Just know that there is a GOD in heaven. He knows your pain, because he became human for us, and he knows what being human feels like. Keep your connection with him, if you don't know GOD, get to know him. If you need to vent to a another human being I an available. No one understands this disease except God himself and someone else that suffers the same.
I know how family and friends can hurt you. They see you and still have the same expectations of you even though you suffer and they claim to understand or try to and still look at you with disdain making you feel as useless as you already feel. They don't realize this disease affects everything about you. God keeps me going. I know it is him, because many times I have wanted to stop because I feel I cannot continue to work. God is still blessing me to have mind enough to call on him.
I'm that person that everything seems to happen to, but I can relate to your situation. I can be ok sometimes. I can be sitting watching television and suddenly I twitch and jump a few times. Folks look at me funny, and ask if I'm ok.
Really don't know what can be done about it. I also have the itchy crawly thing happening all the time, in fact, it's happening now as I am typing this. This is the itch you can't scratch. I'll keep watching here to see if you find a solution.
That's terrible that you have to do all of that, but I understand. I have done that a time or two also. I can't help what my face look like. And if it' s not done, maybe it's because I couldn't do it, so YOU do it!View Thread