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Reply: Where did I go

I know how you feel and I understand your pain. Like you, I was always very...

Posted by crystalgreeneyes

I know how you feel and I understand your pain. Like you, I was always very active, I had a great job and was making a lot of money. At the weekends I would go out dancing with my sister, entertain, cook, clean and exercise daily. At age 54 I went back to school (the pain was beginning around then) but I just thought it would go away. I excelled in my course and was the top honour student. Now it is a year later and my dreams of opening my own business and doing what I trained so hard to do, have turned to dust and blown away with every other piece of my life that I used to enjoy. I don't work at all. My pain is mostly all in my back, my elbows and here and there at other times. I get headaches a lot. Like you, I am also very sensitive to medication and I cannot take anything for the relentless pain because it either makes me extremely sick, or makes my pain worse, in addition to what other side effects there may be. If they have them, I experience them. I take sleeping pills and anti-anxiety medication because at least I have to sleep and even they bother me to some degree.
You have cut gluten and sugar; they bother me too. Try a compounding pharmacy to see what ingredients may be effecting you and they will try to find supplements that you may be able to take. The Vit D I was taking had palm oil and that was apparently the cause of my extreme nausea.
I have so much fear, for the future, it is very scary. I don't know what will become of me and I don't know what to do.
I suggest a naturopathic dr., a counsellor, other support in your community.. this is very important. The chiropractor with training in neurology (this is related) will help with your pain and your anxiety. It's hard work; you keep hoping for someone, something that will help but you just have to keep on trying. I have a social worker who will accompany me to the dr. as my advocate because she can clearly see how much I am struggling. Sometimes we want to give, many days we cry.
Keep looking..it wears you out but there is chiro. massage, myofascial release technique, acupuncture, trigger point injection. special diet and exercise programs (heated pool) I can't afford most of this myself but if you are able to try some of these things, please do It is daily struggle. In the first few years especially we can be very angry at a life taken away from us. Please be strong.View Thread

Posted bycrystalgreeneyes

1 Reply | Reply | Watch This DiscussionReport This| Share this:Where did I go I know how you feel and I understand your pain. Like you, I was always very...

Reply: Pain after eating whole body tried to end life

I understand what you are experiencing. I also experience pain after eating. I...

Posted by crystalgreeneyes

11 Replies | Reply | Watch This DiscussionReport This| Share this:Pain after eating whole body tried to end life I understand what you are experiencing. I also experience pain after eating. I...

Reply: Newly Diagnosed

Sorry to hear of your situation. In one so young it is so disheartening. You found...

Posted by crystalgreeneyes

6 Replies | Reply | Watch This DiscussionReport This| Share this:Newly Diagnosed Sorry to hear of your situation. In one so young it is so disheartening. You found...

Drug sensitivity and compounding pharmacist

I have talked here about my sensitivity to medications, certain foods and other...

Posted by crystalgreeneyes

3 Replies | Reply | Watch This DiscussionReport This| Share this:Drug sensitivity and compounding pharmacist I have talked here about my sensitivity to medications, certain foods and other...

Reply: One sided pain

Hi. You will find many "alwayshurting" people here. Sorry to hear you have this...

Posted by crystalgreeneyes

6 Replies | Reply | Watch This DiscussionReport This| Share this:One sided pain Hi. You will find many "alwayshurting" people here. Sorry to hear you have this...

Reply: Immunizations Caused My Fibromyalgia and Pituitary...

There is certainly a lot going on here. I believe this but no one else dismisses...

Posted by crystalgreeneyes

2 Replies | Reply | Watch This DiscussionReport This| Share this:Immunizations Caused My Fibromyalgia and Pituitary Gland Tumor There is certainly a lot going on here. I believe this but no one else dismisses...

Vitamin D..extreme nausea and pounding headache

I talked here about the rheumatologist I saw who does not treat fibromyalgia. I...

Posted by crystalgreeneyes

3 Replies | Reply | Watch This DiscussionReport This| Share this:Vitamin D..extreme nausea and pounding headache I talked here about the rheumatologist I saw who does not treat fibromyalgia. I...

Reply: Vitamin D..extreme nausea and pounding headache

Hi Mimi. Thank you. I know you are a great proponent of Vit. D. I am positive the...

Posted by crystalgreeneyes

3 Replies | Reply | Watch This DiscussionReport This| Share this:Vitamin D..extreme nausea and pounding headache Hi Mimi. Thank you. I know you are a great proponent of Vit. D. I am positive the...

Rheum. Dr. doesn't treat fibro. thanks for your re...

Thanks to everyone that replied to my post about the specialist to whom I went...

Posted by crystalgreeneyes

Thanks to everyone that replied to my post about the specialist to whom I went only to find she does not treat fibromyalgia. I go to my family dr. every month. It's the same thing. I have to ask to be referred to specialists - only one at a time and often I have to wait months to see someone as I did with the last one. I live in a fairly small community and there's very few doctors taking new patients. It is difficult for me to drive very far away and try to find someone else. I have been to several already. My experience is that I am dismissed very quickly with a script for anti-depressants. When I say that I am very sensitive to medication side effects then it appears that they cannot do anything. I am not the only person to be sensitive to medication, surely? Is that their cue to give up on a patient? I try to be positive, I exercise and I watch my diet and I am seeing a chiro. 2 times a week. My anxiety and insomnia issues are bothering me the most at this time. I take sleeping pills and anti-anxiety meds. The sleeping pills allow me to sleep for an average of 3 hours and they do cause nausea to some degree. The AA med. calms me down and helps me to sleep as well but it doesn't settle my thoughts and if I take any additional of those (when I am really stressed) I become very depressed and tearful. My frustration is not helping I know but I seem to be going around in circles and getting no where. Lately I have been experiencing an intense recurring headache (every 3 weeks) which is not a migraine. It lasts for 3-4 days. I have gone to the dr. with this feeling that it is sinus related. He suggested antibiotics which I have terrible side effects with as well and I refuse to take them until I know whether or not it is an infection. I am seeing a new GP on Wed. Please help me prepare for this appt. Even if I make notes I forget important things. (I don't have anyone to accompany me) First of all I should ask "do you treat fibromyalgia?"
Because I am not working I don't have extra money for therapy. I could see a psychiatrist for free but they only prescribe medication.View Thread

Posted bycrystalgreeneyes

0 Replies | Reply | Watch This DiscussionReport This| Share this:Rheum. Dr. doesn't treat fibro. thanks for your replies Thanks to everyone that replied to my post about the specialist to whom I went...

Rheumatologist tells me, "I don't treat fibromyalg...

I waited 3 months for an appt. with this specialist whom I was told was excellent....

Posted by crystalgreeneyes

10 Replies | Reply | Watch This DiscussionReport This| Share this:Rheumatologist tells me, "I don't treat fibromyalgia" I waited 3 months for an appt. with this specialist whom I was told was excellent....

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