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Why does this just keep happening? What am I doing wrong in that I can't seem to get anyone to understand what is going on?View Thread

I made an appt. with the rheumatologist that I saw before. She wasn't very helpful the last time I went and advised me to take Gravol to help me sleep??? but I am willing to try again.
I do keep as busy as I can - I am sometimes amazed at the amount I do considering all of this but most people will say that the more you do, the more will be expected of you. I just finished decorating the entire house for Christmas, although I was in tears looking at my daughter's little handmade decorations from when she was a child. It tired me out considerably but I did although no one is coming over..
It's easy for people to say therapy will help, massages will help, yoga, swimming etc will help. I cannot afford these treatments but I would be the first to go if I could. When I feel so hopeless, I write here...I will call the helpline.
Take care and know that I appreciate your kindness and concern.View Thread

I cry because of the pain and exhaustion and my husband will say "what is wrong with you now"? When I say I am feeling bad or I am in pain, neither my daughter or my husband will ask if I need anything or can they do anything so I have stopped saying anything. What is the point? I don't think there is any point to my life.View Thread

I personally do not know one single person who has this. No one in my family, neighbourhood, friends, co-workers etc. Yet it is common enough. I feel very much alone especially because I have no support. The only support I get is from this forum. Thank you everyone.View Thread

My daughter has a job and she is not continuing any study. She has a boyfriend and lots of friends so certainly her life seems to be in balance and she seems happy. She avoids any confrontation and it's also difficult for me to try and discuss any of the issues I am dealing with. I used to do everything too and I am sure you are right in saying that she "forgets" that I am simply not capable of doing those same tasks any longer. However, I cook and clean, wash, iron, I bake cookies and cakes, make her a lunch almost every day and drive her to and from work on the days that I can get up at 6.30. It just hurts so much that she can't see simple things that need to be done, like unloading the dishwasher, stocking up the items that run out in the bathroom etc. etc.
Where might I find the movie you mentioned? I don't know how I would deal with a reverse situation but I know as her mother I would be there every step of the way with all the support she required just as I am there for her now with everything.
You have achieved so much. Good for you! I wish you the best.View Thread

You are not a failure as a mother. Your children have made it this far with you. Do you have any support? I know this is crucial for those who suffer as we do. I feel incredibly hurt that no one seems to care about what I am going through but I imagine they just don't know what to do any more. I had a reply from a young women who told me that there is a video about fibro for families to help them understand the condition. My advice to you is have your dr. refer you to a rheumatologist or pain clinic. They have much more experience in putting together combinations of drugs for people with chronic pain and the depression that goes hand in hand. My daughter is 22, I love her and I carry on because of her. Take care and good luck. I hope you find the much needed help. There is a phone number that you can call if you are in crisis too, don't be afraid to call them.View Thread



You can have some sloughing off of the tissue inside the cheeks because of this dryness. Be careful that you are not inadvertently chewing this area as well. Sometimes it becomes a habit and we aren't even aware we are doing it. It can lead to precancerous lesions!
You could also try: Therabreath ZOX mints, Thayer's Sugar Free Citrus Dry mouth Lozenges, Ricochet Gum, Carefree Koolerz by Hershey.
I hope this is helpful. Take care and keep well.View Thread

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