Hi cathrynme, sorry your having a bad day. We feel your pain (literally). =(
I see you've had FM for a long time & feel like your Dr. can't help you.... Maybe try keeping a notebook or journal to record your symptoms, pain and fatigue? This way your Dr. will hear you loud & clear. It worked for me. I realized that telling my Dr. "I hurt all over" wasn't very detailed. LOL
Definitely keep track of all your symptoms, it helps with a diagnosis. (worked for me.... finally)
I hear you about family, some of my family members are wonderful and supportive. Some don't seem to "get it". Or don't WANT to get it. Ya know? Glad your posting here, I've found lots of support and advice, it means a lot!
Hopefully your appt. in November will get you some answers. *hugs*View Thread
Hi there & welcome =)All over pain and fatigue are common symptoms with Fibromyalgia. That's good that your going to see a Rheumatologist. He/She will be able to figure out what's going on. I'm sorry your in pain, your definitely not alone there =(
What helped me finally get a diagnosis was keeping track of all my pain, symptoms and fatigue. By doing this, you can be absolutely clear with your Dr. Good luck, and hope you feel better soon!View Thread
KatmanduLou: I have thought about the psoriatic arthritis connection too. I've had psoriasis since age 12 (Jeez 21 years now!), and know that it causes inflammation too. From what I have read, psoriatic arthritis causes pitting of the nails too, and I don't have that. Not sure if that's how a Dr. would know. I have seen the commercial with Phil Mickelson too LOL
xperky: That's interesting about blood tests, I thought something would come up for sure if you had arthritis. Shows how little I know. =P Some days, I think my fingers look swollen, some not. I don't wear rings, so I wouldn't notice on a daily basis. One thing I have noticed, my finger joints are big. Kind of hard to describe, but it's the joint in the middle of your finger. Not sure if this is "normal" or not.
We definitely need a celeb spokesperson! Some celebrity out there HAS to have this! They're probably keeping it mum though.View Thread
Nancy B, Thank you SO much for your kind words & advice! I agree wholeheartedly! For me (& so many others) this is a "new chapter" in my life. I'm still learning to adjust my life, and know that this will be an ongoing process. The "ongoing" part is obviously frustrating, but like many people here, I have good days and bad.
So true about fighting for a diagnosis! I was happy to know what "it" was, followed by anger and sadness at it all. I was down for a few days, then started to learn more about FM. I have talked to my close family members (all VERY supportive) about this and am feeling better. I know I'm lucky to have support and understanding.
I did laugh at the "groundhog day" reference, it's so true! And coffee, gotta have my coffee! LOL Again, thank you for your advice and support, it means a lot!View Thread
Wow I'm surprised your TSH is normal... I don't know too much about Thyroiditis, but know your thyroid can wreak havoc on your system. Hopefully your scan will be more in depth in finding something. Sorry your going through so much, just wanted to let you know your not alone. *HUGS*View Thread
That's how I felt too! I was so happy to have a name for it and know I wasn't crazy! Then a few days later, I questioned everything LOL I did ask my Dr. at the time about arthritis too, but he had already sent me for blood tests for that and many other things. I guess I just wanted peace of mind.
Glad to know I'm not alone on this, thank you P.S. LOL @ road eating machine, good analogy!View Thread
Hi there, I'm sorry your in so much pain =( I was reading your post & you sound a lot like me; Up until I was laid off 2 years ago, I also suffered working at my desk. Dr's had mentioned, posture, looking down, etc too. I finally got an MRI that revealed Cervical Spinal Stenosis. I'm 33 and have had neck pain since I've been a teenager. Now I know why.
Have you had or asked for an MRI on your neck/upper back? I know there can be lots of different issues with the back, but it sounds like it would be worth it to have it checked. Hope you have a better day!View Thread