It's true about hoping it's "something else". I think it comes from the fact that FM is still not totally understood. It's very frustrating. On bad days, the pain and fatigue are intolerable. I know I'm not alone on this. I'm lucky my boyfriend believes me and listens to me rant and vent LOL I'm thinking it's the process of "accepting it". Still.... *sigh* =P
MiMi... I did pick up the Stopain spray yesterday. I sprayed my toes/feet and hands; I didn't notice a difference, but on a side note, it rained this morning, so... yeah. That made sense on why I felt worse. More rain coming later. Thank you for the suggestion though, I'm open to trying new things.
I have started a journal to track my days. Hopefully, this will help with Dr appointments and for me to see any patterns. All your support and understanding helps too, thank you SO much!View Thread
Anyone else go through this? Sometimes the FM diagnosis makes sense, other times not. I'm sure it's normal, I think I'm just frustrated. Woke up today feeling like I was run over by a truck... achy, hurt from head to toe... =(
I know joint pain is a part of this (having a hard time gripping with my hands today). It just seems to mimic other conditions. I don't know, must be a blah day for me.View Thread
I hear you about hoping to hear something is wrong, I used to cry after blood work came back all good (except for Vitamin deficiencies). I knew something was wrong, but there were no answers. It's frustrating.
I honestly can't remember if my neck hurt before I found out. I do remember having to "adjust my throat/neck" to swallow food. I know that sounds crazy, but it's true. I didn't know my thyroid was swollen, and it was affecting my throat. I thought it was just me! LOL!
I was told that my fatigue, dry skin, excessive sweating, inability to lose weight, etc. were all caused by hypothyroidism. When I was diagnosed, the Dr. did mention Hashimoto's Disease too. It's pretty much hypothyroidism. I know I mentioned the goiters & nodules too. Pretty gross. LOL
Don't worry too much, (easier said than done) if it is your thyroid, your Dr. will prescribe something like Synthroid.
Let us know when you find out! Hang in there!View Thread
Oops, sorry just saw the replies from MiMi & xperky... Thank you!
I found out I was deficient in Vitamin D, B and Folic Acid about 4 years ago through routine blood work. I started taking supplements for these (2,000 IU Vit. D) when I found out. Last year, blood work indicated I was still deficient in Vit. D, so Dr. prescribed 1.25 MG (50,000 IU) for 13 weeks. Then, I went back to taking 2,000 IU. Last week, when he diagnosed FM, he again prescribed the 1.25 MG of Vit. D. This time, I'll be taking it for 26 weeks.
One thing I have already learned about FM is to not "over do it". I would go & go, and then crash. I still have a lot to learn, but I think paying attention to my body & mind will help. Thank you for your advice, it's much appreciated!View Thread
Thank you! I had a hard time getting my Dr. to understand about my symptoms too. Over the years, I have gone to 3 different pain management Dr.'s (before FM diagnosis). First one told me I was overweight (just had my daughter at the time) and that if I lost weight, I wouldn't have back pain. Fair enough. I lost weight, got down to 120lbs (I'm 5'2"). Second Dr. said, "You are way too young for back problems, it's probably Sacroiliitis". She gave me a cortisone shot in the bottom of my back. Horribly painful, no relief.
Finally, 3rd Dr. I went to ordered a MRI on my neck area (ignored my complaints about lower back pain). When the results came back, he said "you have narrowing of the spinal canal". He prescribed Celebrex. I stopped taking it and called him because I had an allergic reaction. Next up, TENS Unit. Painful for me, but probably because of the undiagnosed FM.
Sorry to ramble, I could go on & on. LOL I'm still learning about FM, but glad to know I'm not crazy and that this is real. Thanks for your reply! View Thread
Your post caught my eye, I too have hypothyroidism that was diagnosed about 5 years ago. By then, I had several nodules and goiters, and my thyroid was barely functioning. I've been on synthroid and my neck has actually shrank. But I still feel pain and fatigue daily. So glad your getting it checked out, good luck. Just wanted to commiserate lol View Thread
I was just diagnosed 5 days ago, and am still researching medication and lifestyle changes that can help. I also have Cervical Spinal Stenosis and posted in the back pain community too.
First off, my background: I'm a 33 year old mom of 2, have had neck/shoulder pain since I've been a teenager, but officially diagnosed with CSS from a MRI about 2 years ago (don't know the cause?). I did not know this was the correct term for it until my Dr. appt. and Fibromyalgia diagnosis. I was told at first that it was "narrowing of the spine" and to try the TENS Unit. That's it. However, after trying this once, I gave up, because of pain. (makes sense now!) Tried Celebrex too, but had an allergic reaction. Also have Psoriasis, Hypothyroidism, depression, and lower back pain that is similar to the CSS, just reversed. =P
As far as Fibromyalgia, I'm pretty sure (based on symptoms) that I've had this since about age 18. At that time, I was diagnosed with Chronic Fatigue Syndrome. Now it all makes sense. It took me cataloging my symptoms and pain for the Dr. to make the diagnosis. I am sore and achy everyday. I already know to keep moving, I walk and bike ride even though I end up paying for it.
I'm looking for any advice/experience with this. It's good to know I'm not alone. Thank you so much!View Thread