I feel the same. I remain quiet rather than post my problems. Because I keep getting worse, I don't feel encouraged so I have little encouragement to give others.
Today is so bad as far as pain goes. Often I am dazed and confused by the magnitude of the pain and feel hopeless towards getting better. That doesn't mean I am not sensitive to the pain of others' or wish them all the best I wish for myself.
I used to be a spec. ed. teacher and support and encouragement for were my strengths. Now I barely muster any for myself. I just want to apologize for that.View Thread
I would have to say, No, I am never without pain. It has only gotten steadily worse year after year.
If my pain lifts somewhat I also get extremely happy. I mean it's silly how happy I get even though I know it won't last that long.
Really, chronic pain weighs us down and any relief at all feels like such a tremendous weight is lifted from us. It doesn't happen very often but I always take the most advantage of it by getting things done and then I feel so proud of myself.
It's kind of pitiful that I would rather mop under the bed than plan something fun.View Thread
Ask your doc to test your tender points. I think some still do that. Ask him/her about a test for Chrone's disease which causes such intestinal problems. Usually docs make a Fibro diagnosis by ruling everything else out.
From the description of your symptoms, it sounds like Fibro is a possibility. Best of luck to you in your search.View Thread
If any of our Fibro problems are caused by a deficiency of some sort, a gluten free diet can only help. When the intestinal villi are flattened, squooshed or damaged, we cannot absorb nutrients properly. I don't think following this diet improves pain particularly but it does improve digestion in some of us, like me. Yea!View Thread
I had an ex Marine state that he didn't even want to be in my house because it didn't 'meet his standard of cleanliness'.
It cut me to the quick because I was already sad that I could not meet my own standards. People think Fibro is just aches and pains that everyone has. If they could be in our bodies for one day....too bad it doesn't work like that.
It's hard not to to feel alone with this illness. Only we who have it can understand what it feels like when everything we do takes such a huge effort.
When people tell me that I don't look sick I tell them, "Maybe so, but I feel like Stephen Hawking looks".View Thread
A swollen throat sounds like an allergic reaction. Definitely something you don't need. Good that you stopped taking it. My former doctor practically forced me to try it and I also had a similar reaction.View Thread