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Fibromyalgia Community

Just Reaching to the only people who seem to under...

I have about reached my wits end.... I'm so frustrated right now and I feel so...

Posted by crystallou01

I have about reached my wits end....
I'm so frustrated right now and I feel so absolutely alone, which is absurd! I' writing on this discussion board as a last ditch effort. This is the point I'm at right now...
I'm so sick and tired of being sick and tired. Same old story, I guess. I really hate to complain about it, but just when I thought it couldn't get worse, it did. This past weekend was possibly the worst flare I have ever had since having been diagnosed a few years back. I feel like I'm slowly but surely turning into a recluse. I encourage my family to do activities without me because I drag them down. There is no way that I can keep up with all of them and all of the activities that normal school age children participate in. I'm so tired of missing graduations, concerts, 4H presentations, I feel like I'm missing everything! If I make myself go, which I do try to, I end up regretting it for the next three days...bare minimum...This past weekend I slept all day saturday, saturday night, sunday, and most of sunday night...I'm really so embarrassed to even be posting this...I feel like such a lousy person! My kids can't even touch me! Neither can my husband for that matter. I feel like a burden--my poor husband took care of the kids all weekend and set up babysitters so I could rest----this isn't the first time, and I feel so bad about it. I know none of us can help the fact that we have fibro, but I absolutlely hate these limitations. I cry all the time, my self worth is down, I miss my children, I miss my husband, I can't go to the doctor because I don't have the money, I am not taking anything other than a B vitamin complex...and I still haven't been able to get the savella back since my last post! I don't want pity, and I am so sad that other people have to go through this too, but I just don't know what to do anymore. My husband tries to understand, but I guess I just don't know how to shake the self doubt and the horrible feelings I have because I can't do all I used to do. My husband says we're going to the doctor, but we can't afford it. Quite frankly, I'm not sure when we can. I feel like I'm falling down a tunnel and my life is staying at the top and I'm falling to the bottom. I can hear and see everything that's going on---I just can't be a part of it.I pray constantly, but lately, I've been too tired to do anything. I hope you are all having "good" days.

Sincerely,
Crystal LouView Thread

Posted bycrystallou01

4 Replies | Reply | Watch This DiscussionReport This| Share this:Just Reaching to the only people who seem to understand... I have about reached my wits end.... I'm so frustrated right now and I feel so...

How do you accept your own limitations...

Hello to all of you, It seems that I always only write in the wee hours of the...

Posted by crystallou01

10 Replies | Reply | Watch This DiscussionReport This| Share this:How do you accept your own limitations... Hello to all of you, It seems that I always only write in the wee hours of the...

Best Exercises for FM

Hey Everyone! I hope you are all well, but we all truthfully know the answer to that....

Posted by crystallou01

4 Replies | Reply | Watch This DiscussionReport This| Share this:Best Exercises for FM Hey Everyone! I hope you are all well, but we all truthfully know the answer to that....

How do you explain to others that you are in pain ...

I hate to be the one to ask this, but I have to. Does anyone else feel like they can't...

Posted by crystallou01

4 Replies | Reply | Watch This DiscussionReport This| Share this:How do you explain to others that you are in pain every day? I hate to be the one to ask this, but I have to. Does anyone else feel like they can't...

Reply: How do you explain to others that you are in pain ...

I just wanted to tell you thank you for responding to my post. I left around pamphlets...

Posted by crystallou01

4 Replies | Reply | Watch This DiscussionReport This| Share this:How do you explain to others that you are in pain every day? I just wanted to tell you thank you for responding to my post. I left around pamphlets...

Reply: Swelling

Hey Will82, I'm a nurse and I urge you to take your dad to either his regular doctor...

Posted by crystallou01

3 Replies | Reply | Watch This DiscussionReport This| Share this:Swelling Hey Will82, I'm a nurse and I urge you to take your dad to either his regular doctor...

Any ideas on where I can find a FM doctor?

Does anyone have any recommendations of a doctor that actually believes Fibromyalgia...

Posted by crystallou01

2 Replies | Reply | Watch This DiscussionReport This| Share this:Any ideas on where I can find a FM doctor? Does anyone have any recommendations of a doctor that actually believes Fibromyalgia...

Reply: Any ideas on where I can find a FM doctor?

OOOPS!!!! I'm so sorry I didn't realize that it was against the rules...I guess it...

Posted by crystallou01

2 Replies | Reply | Watch This DiscussionReport This| Share this:Any ideas on where I can find a FM doctor? OOOPS!!!! I'm so sorry I didn't realize that it was against the rules...I guess it...

Reply: For All our new members

I'm so grateful to have an online community to go to. It helps me so much to see that...

Posted by crystallou01

121 Replies | ReplyReport This| Share this:For All our new members I'm so grateful to have an online community to go to. It helps me so much to see that...

Reply: Help Me I am losing the battle...

Dearest Jan, Oh, how I wish there was some magical formula I could give you to help...

Posted by crystallou01

Dearest Jan,
Oh, how I wish there was some magical formula I could give you to help lift your spirits right now. As of a few minutes ago, I put you on my prayer list...(a list that helps me to remember all the people I'm praying for). I feel your pain and your anguish when I read your post...I don't pity you because I myself hate pity. Sometimes I just want to cry and not get out of bed...I want to roll over,put the pillow over my head, and fall back to sleep...(ha ha...that never works). I wish I could give you inspirational words...words that would rip your pain in half and give your spirits a new lift....The only thing that comes to mind right away is to let you know that your heavenly father knows where you have been, he knows where your are going, and he knows what you are going through. One of my favorite psalms to read is 139. Please read it now, if you can. Sometimes when you are hurting and no one is in your shoes it helps to put things into perspective. It always helps me to feel a little better when I realize that God knows right where I am at.
Will it make your pain go away? Or will it make all these medicines start working? No, honestly it won't. But I want you to take rest and joy and peace in the fact that you aren't alone at all, really.
It won't make this ordeal you're going through any less or any easier, but maybe it will be hope.
Sometimes, because I'm a nurse, and I'm a "do-gooder", I have to make myself say no to things that I really want to say yes to. Sometimes, because I'm a nurse, I know that I must keep going even when my body stops me and begs me to sit for awhile. I've realized after having fibromyalgia for 4 years that I need to listen to my body...it has a way of telling me it's reached it's limit.

As for coping...sometimes nothing makes the pain better. Sometimes, I have to trick my brain...by making it think in ways it never has thought before. Occassionally it works and I've suddenly found myself getting lost in a new skill or hobby. Is there anything you've always wanted to learn more about? I know it won't be easy with the fibrofog, but it might help your self worth....just ideas. Please get some rest....I hope you feel better soon.View Thread

Posted bycrystallou01

14 Replies | Reply | Watch This DiscussionReport This| Share this:Help Me I am losing the battle... Dearest Jan, Oh, how I wish there was some magical formula I could give you to help...

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