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Fibromyalgia Community

Reply: Do I Have Fibromyalgia?

Saw both of your posts....wow, you have a lot going on. I am new to this...just...

Posted by Survivor2007

7 Replies | Reply | Watch This DiscussionReport This| Share this:Do I Have Fibromyalgia? Saw both of your posts....wow, you have a lot going on. I am new to this...just...

Meds questions...and more

I finally saw the pain management doctor that my primary referred me to when he...

Posted by Survivor2007

I finally saw the pain management doctor that my primary referred me to when he diagnosed me with fibro. I am already on Cymbalta, now this young doctor says I sould be on Lyrica 2x/da in addition to the Cymbalta. I already have an uncomfortable relationship with the Cymbalta...I don't like being on something that even being late with taking the dose starts to give me side effects. From what I am reading about Lyrica, it will do the same thing. Plus, both are pretty expensive. I have the manufacturer discount for when/if I start the Lyrica....but even then, it will be costly for me in my current financial situation.
The young doc has also referred me to a therapy program 3x/wk that includes water therapy, and has also recommended that I see a pain management psychologist. I have yet to find out what the cost will be of the physical therapy.....but if it is my copay for specialist and I have to pay it 3x/wk....that will not happen. I am new to all of this....did not really know what was going on with me until recently due to having dealt with some other health issues. For those of you who have done all of these things that this young doctor recommends....did it help?? Was it worth the time and money? Did it improve your quality of life significantly?
Also, I came down with labrynthitis last week......terrible vertigo, vomiting, nausea. It is a virus in the inner ear. I ended up in the ER....was given meds that kept me sleepy and on the couch for most of last week and this past weekend. Although much, much better....I remain a bit dizzy and touchy with my stomach. I was told it would take 5-10 days for it to clear up. I have a couple of days to go. Well....after that long story.....has anyone here experienced this?? Does anyone know if it is has any connection with the fibro?? The ER did a CT scan of my brain.....and it looks like all is well there (lol...a matter of opinion according to my hubby).
Does the fatigue and self doubt about this illness ever stop?? I am so tired of being tired. No motivation at all. And I keep questioning if this is all about feeling too fatigued and overwhelmed ( don't really know what I am particularly overwhelmed by...but that is the feeling)......maybe I am not sick, maybe I am just lazy.....I should be picking myself up and getting busy....I should be getting focused and getting out and getting back to work.
Enough. I appreciate any responses. Thank you for listening....View Thread

Posted bySurvivor2007

10 Replies | Reply | Watch This DiscussionReport This| Share this:Meds questions...and more I finally saw the pain management doctor that my primary referred me to when he...

Reply: Meds questions...and more

Thanks Anon....I so agree that it would be incredible if this illness was recognized...

Posted by Survivor2007

10 Replies | Reply | Watch This DiscussionReport This| Share this:Meds questions...and more Thanks Anon....I so agree that it would be incredible if this illness was recognized...

Reply: At a loss

You would need to get the blood work anyhow to rule out RA, so you are on the right...

Posted by Survivor2007

3 Replies | Reply | Watch This DiscussionReport This| Share this:At a loss You would need to get the blood work anyhow to rule out RA, so you are on the right...

Reply: Meds questions...and more

Thank you for your reply Jan. I really am having a hard time embracing all of this. I...

Posted by Survivor2007

10 Replies | Reply | Watch This DiscussionReport This| Share this:Meds questions...and more Thank you for your reply Jan. I really am having a hard time embracing all of this. I...

Reply: Meds questions...and more

Hi Petal, thanks for writing. I am trying to get my head wrapped around this whole...

Posted by Survivor2007

10 Replies | Reply | Watch This DiscussionReport This| Share this:Meds questions...and more Hi Petal, thanks for writing. I am trying to get my head wrapped around this whole...

Reply: Meds questions...and more

MiMi, thank you so much for your thoughful reply. We had spoken a few times before...

Posted by Survivor2007

MiMi, thank you so much for your thoughful reply. We had spoken a few times before this, when I was just exploring whether I had fibro or not. I am a 5 yr breast cancer survivor, and also survived a serious fall 3 years ago.
Yes, I have always been a type A personality. I have always worked, sometimes 1 full time and 2 part time....was a single parent, raised my kids in a nice home in a good neighborhood, made sure they had what every other kid had.....music lessons, karate, theatre, senior trips to Disney and all of that. Back then, it all caught up with me with a bout of Cytomegalovirus that almost killed me. I have always worked in the psychiatric and behavioral health field, starting as direct care staff and working my way up to programs supervisor. When my kids were grown, I was able to dive into my career head first, went back to finish my degree and lived and breathed my job. Then I met my hubby.....definately was not looking for anyone. And within months I was diagnosed with cancer and my world caved in around me. It has been a very hard journey.....I used to be in control of my life. I brought in really good money. Now, I am in debt, in collections, completely dependent. No energy, feeling so much a ghost of my real self. I can't say that it started with the cancer, although that definately knocked some sense into me regarding my priorities. I think the fall that I took seems to be the starting point of my "decline".
I do watch my diet due to the cancer. I will admit that my physical activity level has seriously dropped. After the cancer and up until the fall, I exercised daily...mostly walking. I live in a small mountain town, so walking is definately challenging.
I get blood work done every 3mo, and that includes my Vit D levels. I get a thorough check up every 6mo, full chest x-rays every year. I have been CT scanned and MRI'd more times than I care to think about. Most times, there is nothing to be concerned about....and I have had a few biopsies that fortunately turned out benign.
I guess you are right.....talking to the therapist may not be a bad idea. I just get stuck on the money and travel that it will take....and maybe afraid to admit face to face with someone that I am just no longer who I was...and am having a hard time accepting the new self....I thought I had dealt with this with the cancer recovery....View Thread

Posted bySurvivor2007

10 Replies | Reply | Watch This DiscussionReport This| Share this:Meds questions...and more MiMi, thank you so much for your thoughful reply. We had spoken a few times before...

Officially diagnosed!!

Saw my doc yesterday and received the official diagnosis of fibro. I have been feeling...

Posted by Survivor2007

5 Replies | Reply | Watch This DiscussionReport This| Share this:Officially diagnosed!! Saw my doc yesterday and received the official diagnosis of fibro. I have been feeling...

Reply: Officially diagnosed!!

Hi NancyB.....thank you for your response. I will be looking at all the resources that...

Posted by Survivor2007

5 Replies | Reply | Watch This DiscussionReport This| Share this:Officially diagnosed!! Hi NancyB.....thank you for your response. I will be looking at all the resources that...

Reply: Officially diagnosed!!

Thank you so much for your response MiMi.... I have my Vit D checked regularly...it is...

Posted by Survivor2007

5 Replies | Reply | Watch This DiscussionReport This| Share this:Officially diagnosed!! Thank you so much for your response MiMi.... I have my Vit D checked regularly...it is...

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