GM MiMI. I am just not reading this post. I have been a member of this board for a year now and had never read it before. Thank you for this "pep talk"...sometimes all we need is a little love, support, and encouragment..
Good community! It has been a while since I have posted or been on the site. I pray everyone is coping as best as they can. These days I try to keep my self busy, which isn't hard w/ the kids being out of school for the summer. The past month or so has been very rough because of the weather. First we were having a heat wave (temps in the high 90's for weeks), then we had to endure flooding rain falls, which actually made me feel worse than ever. I wondered if anyone else suffers w/ issues w/ body temp regulation. Like I said it was very hot here for weeks, yet I was inside w/ a blanket or heating pad on and freezing. Also when it rains or is about to rain, its like I get this completely drained, exhausting feeling. The urdge to go to sleep is overwhelming, then after the rain has passed I'm fine...am I the only one?? Please someone tell me i'm not going crazy...thanks for your input..prayers go out to all...~Kdlite~View Thread
Thanks everyone. Mainly I stay cold, especially when i'm in an a/c environment. I keep a throw blanket on at home at all times. I've even considered buying a second blanket & heating pad to keep in the car when I leave home. My husband & oldest son calls me Linus, but I don;t care.I've been reading alot of interesting articles online (maybe it would have helped to share w/ the community, I wasnt thinking) about FM and how it goes along w/ other diseases. As sell I have Graves disease (hyperthyroidism), really I can't tell is my symptoms are FM related or if its just my thyroid. My levels are normal now and have been so for at least a year. The levels fluctuate, but never to where they were when I was first diagnosed. My endocrinologist told me that when my thyroid levels were off I would get joint/muscle aches, fatigue, sensativity to hot/cold, etc. So do we really know what is causing our symptoms?? I plan to check out that book. Thanks all. My thoughts & orayers are w/ those who like me are at a constant battle w/ this disease..View Thread
Dollbug, Thanks for posting the link to this video. It was very informative & had a lot if useful info even though i've already been diagnosed w/ fibro...greatly appreciated. I've already shared it w/ some friends who are goign through the same problems.
I ran across this wheel/chart on Facebook, the page is calledFibromyalgia Awarness. I thought it was very interesting because it seems like everyone basically made the same comment that this cycle applied to them. I also thought it interesting as it applies to me, although some of the steps are out of order all of the steps for me have happened. I just wanted to share this w/ the community and see what you all think about it. Be blessed! ~KDlite~View Thread
Good morning community! It has been quite a while since I have checked in on the discussion boards. Overall I think I have been feeling pretty well. I have had some very good days since my last post. But lately, I have been having a tingling/pain sensation in arms, legs, hands. I went to my family doctor for a check up last week, he's throwing in that that is a sign of pre-diabetes. Honestly, I am not satisfied w/ this doctor, he isn't convinced that I have fibromyalgia. My former family doc moved and was replaced w/ this new doc. All he says is stay active, lose weight. Mind you, he isn't exactly on point w/ his BMI himself. He is overweight. I have noticed that this tingling/pain only comes on when the temps are cooling down significally. Usually once I get warmed up, it goes away. I have also been having a lot of pain in my knee and my elbow both on the right side. I try to stick to a routine of a light workout everyday, although most days I don't feel like doing it, so I do what I can. I also notice that when I am in pain or a painful episode is coming on, I am completely zapped of energy, exhausted and just want to sleep. Has anyone else experienced any of these symptoms w/ fibro. Please let me know. Thanks. As well, I am praying for you all. I am a CNA by profession and never really knew that people w/ fibro suffered so much until I was diagnosed. I pray that God gives each one of you strength and comfort and you deal w/ this disease...XOXO ~KDlite~View Thread
Hi NeNe, Sometimes I dont think they really care. For them its all about writing perscriptions. You know what REALLY gets my goat, is when you're describing your symptoms and they are googling what you're telling them. I can do all that from the comfort of my own home. My rheumatologist actually went through that whole thing. I can't say too much bad about him, he did agree that I have fibro, but I wasn't satisfied w/ the meds he wanted to put me on, skipped everything else (steroids etc.) and went straight for plaquanil. I told him i was afraid of that medication. I told him straight up that I was not going to be experiment with a whole bunch of medications. Most of the side effects will only make you feel worse. So I'm tuffing it out w/ ibuprophen, lortab (occasionally) and icyhot. I do try to do light yoga, and weights (not everyday) it depends on my pain level. But I do admit that the exercising really helps lessen my pain episodes when I stick w/ it. I wish you all the best xoxo~KDlite~View Thread
Hello all, I just wanted to update about my symptoms. The weather here has been in the low to mid 60's for about 2 weeks now. The last few days the temps have been in the 30's @ night and 40's-50's during the day. Thinking back, I haven't had to take anything for pain (that I can remember) for almost 3 weeks now. I'm not sure how this is but I'm thankful for it. I've started using weights to work on building shoulder/neck/upper arm/chest strength, maybe this is what's helping. I also do some light/mild yoga several times a week. My question for the community is: Is this a normal part of fibro? To have flare ups, or weeks when you are pain free? I've been feeling well these few days into weeks and I really like it. Hoping that everyone is coping well w/ their issues. keeping you all in my thoughts and prayers!View Thread
Thank you ladies. I'd typed up a reply and for some reason it wouldn't let me post it. The past week physically was pretty good for me. Its been almost a month now and i've not really had to take a pain pill. Not that I wasn't in pain, but the pain was bareable enough that I didn't really need one. Emotionally & mentally, I was a wreck. I think that this was mostly due to the tragedy in Newtown, CT. It really hit me hard because I have children in that age group. I've done a lot of crying. Honestly, I felt better after I did cry. Something about a good cry is cleansing. Today started off well, but as the day went on I began to get achy all over. The weather here has gone from the 50's-60's to 30's-40's. Its rainy and damp and they are calling for snow flurries. So I chalk my feeling up to that. Other than that I am well. Thank you Dakota and Squarley for the encouragment. I wish you and your families a blessed, and Merry Christmas! As well as to anyone else reading this post.View Thread
GM all. I am new to this community, joining yesterday. I was browsing and reading some posts and it seems that everyones symptoms are the same as mine. I was diagnosed in late August and it has been rough for me i've been dealing pretty well. I am sore from my neck, shoulders, across chest and upper back almost everyday. Yesterday was a rough one for me i'm assuming because it rained all day here. Today isn't as bad. Most days I cant seem to get warm enough. I find that a hot shower, heating pad help. I'm currently not on any perscriptions except for 800mg ibuprofen, but pretty soon, i'll probably have to take something extra. I hate taking medications. 've already made a post yesterday, but since i'm new to this who knows if i did it right. Does anyone have any suggestions on keeping active w/ this disease on a very limited income? Also looking to meet new friends w/ this condition for support and advice. Thanks and have a great day.View Thread