Hi Maciascl! It took me years to finally get a diagnosis and I understand your frustration. My initial diagnosis at the age of 21 was osteo-arthritis, and my Dr at the time couldn't even explain why he was giving me that diagnosis. I have pain in my hands and knees, and sometimes my elbows; when I finally went to a Rheumatologist, he explained to me that this pain was actually from "hyper mobility" or being double jointed. It was causing me a lot of stiffness, pain and swelling. That could be part of the problem. Your back pain could absolutely be caused by fibro; obviously I'm not an expert, but I've dealt with this disease and I know what it feels like to complain to your Dr and get no results.Stress makes your body hurt much worse when you have fibro, so if you're noticing the problem being worse when you're stressed, then I think a trip to a specialist is a very good idea.
I sympathize with you and know what you're going through; like I said, it took years for me to finally get my correct diagnosis; I know how defeating and depressing it can be. Just hang in there and like I said, try to see a specialist. If you're curious about my symptoms, feel free to ask and I'll go into detail about mine. I'm here if you need to talk; I'm sure it would be just as therapuetic for me as it would be for you.
I'm new here and my mom is the one that suggested I join an online community so I could talk to people that also have fibro. I was diagnosed almost 5 years ago but have had symptoms for about 20 years (I'm 34) and this is really started to weigh heavy on me. I've never missed work because of this disease and the week before Thanksgiving I flared so bad that I missed a full week of work. I've never cried because of this either and my flare was so bad that my mom had to help me walk and take me to and from the Dr, feed me and clean my apartment. I'm so frustrated right now that I'm starting to have crying spells and I've never had this problem. I just feel like I don't have anyone to talk to because people that don't have fibro don't understand what it's like to hurt all the time. My parents are supportive, but they really don't know what to do or how to talk to me about it. Can you guys give me input on what you do when you're feeling like this? I just feel helpless right nowView Thread
Thanks for your kind words and encouragement, laurab. I just can't seem to stay well enough lately to do anything physical and I stay frustrated because of it. I don't tolerate pain killers very well because they typically make me sick to my stomach and make me itch, so I don't ask my Dr for them anymore. I take Soma to relax my muscles (which lately is more than I would like to) and my daily medicines are Cymbalta and Topamax. The weather where I live goes back and forth from hot to cold, so my flares have just gotten bad.
I'm fortunate enough to have an excellent fibro Dr, but his office is about 3 hours north of me. When I had my last really bad flare, I had to go to my GP (who I will no longer see), he treated me like an idiot, wouldn't listed to me, and tried to tell me that fibro "doesn't hurt like that". He wanted to give me steroid shots, which aside from the fact that we all know don't work on fibro fares, make me really sick. When I told him that lidocaine shots don't do anything for my pain he looked at me like I was a fool and said "huh! that just doesn't make any sense,". Have you had these types of problems, too?View Thread