
Hair loss
Good Morning I was wondring is anyone experiencing hair loss. I am not sure if the...
Posted by FranR
Good Morning
I was wondring is anyone experiencing hair loss. I am not sure if the medications have side effects that cause hair loss. Since this last flare this winter I have notice my hair is more thinner and I am at wits end what to do,Seeing dermatologist in a few weeks. Any answers.I have been on Gralise for 3 months with suceess but the hair loss is getting to me.(medication is in the neurotin family.)
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Posted byFranR
I was wondring is anyone experiencing hair loss. I am not sure if the medications have side effects that cause hair loss. Since this last flare this winter I have notice my hair is more thinner and I am at wits end what to do,Seeing dermatologist in a few weeks. Any answers.I have been on Gralise for 3 months with suceess but the hair loss is getting to me.(medication is in the neurotin family.)
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Hair loss
Good Morning I was wondring is anyone experiencing hair loss. I am not sure if the...
Posted by FranR
Good Morning
I was wondring is anyone experiencing hair loss. I am not sure if the medications have side effects that cause hair loss. Since this last flare this winter I have notice my hair is more thinner and I am at wits end what to do,Seeing dermatologist in a few weeks. Any answers.I have been on Gralise for 3 months with suceess but the hair loss is getting to me.(medication is in the neurotin family.)
FranView Thread
Posted byFranR
I was wondring is anyone experiencing hair loss. I am not sure if the medications have side effects that cause hair loss. Since this last flare this winter I have notice my hair is more thinner and I am at wits end what to do,Seeing dermatologist in a few weeks. Any answers.I have been on Gralise for 3 months with suceess but the hair loss is getting to me.(medication is in the neurotin family.)
FranView Thread
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Hair loss
Good Morning I was wondring is anyone experiencing hair loss. I am not sure if the...
Posted by FranR
Good Morning
I was wondring is anyone experiencing hair loss. I am not sure if the medications have side effects that cause hair loss. Since this last flare this winter I have notice my hair is more thinner and I am at wits end what to do,Seeing dermatologist in a few weeks. Any answers.I have been on Gralise for 3 months with suceess but the hair loss is getting to me.(medication is in the neurotin family.)
FranView Thread
Posted byFranR
I was wondring is anyone experiencing hair loss. I am not sure if the medications have side effects that cause hair loss. Since this last flare this winter I have notice my hair is more thinner and I am at wits end what to do,Seeing dermatologist in a few weeks. Any answers.I have been on Gralise for 3 months with suceess but the hair loss is getting to me.(medication is in the neurotin family.)
FranView Thread
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Quick Update
Hi All It has been a while since I posted because I was unable to get on Web MD. Maybe...
Posted by FranR
Hi All
It has been a while since I posted because I was unable to get on Web MD. Maybe because I am away on vacation and on another server I was able to get on today.I have been keeping up with all your emails. As for me I am feeling better,. My attitude is so much better,the meds that the new doctors placed me on seem to be working and I am able to sleep better.It was a miracle after 4 days of sleep the pain started to subside.I still have pain of and on but I am back working my charities and working pier diem at the schools.I think of you all often and know your advice got me through a difficult winter and terrible flare. Hugs to all of you.
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Posted byFranR
It has been a while since I posted because I was unable to get on Web MD. Maybe because I am away on vacation and on another server I was able to get on today.I have been keeping up with all your emails. As for me I am feeling better,. My attitude is so much better,the meds that the new doctors placed me on seem to be working and I am able to sleep better.It was a miracle after 4 days of sleep the pain started to subside.I still have pain of and on but I am back working my charities and working pier diem at the schools.I think of you all often and know your advice got me through a difficult winter and terrible flare. Hugs to all of you.
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Reply: coping
Hello Mommateresa Its a miracle I was able to get on this site tonite. To everyone I have...
Posted by FranR
Hello Mommateresa
Its a miracle I was able to get on this site tonite. To everyone I have been reading but unable to email this site.Yes it is better today,more information,medications, support groups,pain clinics are available to fibro sufferers today. When I diagnosed in 1993 there was very little. They handed me a pamplet to read and I had to suffer alone.If not for support groups I would of never understand this illness.It is hard being in Education and dealing with children on a daily basis when you feel terrible.I know because I was a school nurse for many years.Actually after a terrible major flare this winter I have returned to work pier diem.Please donot despair if you talk to your collegues I am sure their are a few teachers with fibro and you can have a support group at work.As far as meds go it is a trial and error.And sometimes medications stops working. So if your not happy with your current MD find a new one who has experience with fibro. Rember we are are pulling for you here in this support group. Keep us posted.
Gentle Hugs
Fran
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Posted byFranR
Its a miracle I was able to get on this site tonite. To everyone I have been reading but unable to email this site.Yes it is better today,more information,medications, support groups,pain clinics are available to fibro sufferers today. When I diagnosed in 1993 there was very little. They handed me a pamplet to read and I had to suffer alone.If not for support groups I would of never understand this illness.It is hard being in Education and dealing with children on a daily basis when you feel terrible.I know because I was a school nurse for many years.Actually after a terrible major flare this winter I have returned to work pier diem.Please donot despair if you talk to your collegues I am sure their are a few teachers with fibro and you can have a support group at work.As far as meds go it is a trial and error.And sometimes medications stops working. So if your not happy with your current MD find a new one who has experience with fibro. Rember we are are pulling for you here in this support group. Keep us posted.
Gentle Hugs
Fran
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Reply: Fatigue and Focus
Hello Trciae Sorry you have been so tired I know not sleeping can be quite unsettling and...
Posted by FranR
Hello Trciae
Sorry you have been so tired I know not sleeping can be quite unsettling and muscles ache more.Speak with your fibro MD;s there are sleep aides that can help. It took me 8 weeks to find the answer after being on the same med for 18 years and it stopped working.As Bette said try to pray ,mediateand talk to friends.Trying to focus goes along with lack of sleep,Concerta is not the answer it has a lot of side effects.Hopefully you have a good MD that will listen and help. Will kep you in thoughts..FranView Thread
Posted byFranR
Sorry you have been so tired I know not sleeping can be quite unsettling and muscles ache more.Speak with your fibro MD;s there are sleep aides that can help. It took me 8 weeks to find the answer after being on the same med for 18 years and it stopped working.As Bette said try to pray ,mediateand talk to friends.Trying to focus goes along with lack of sleep,Concerta is not the answer it has a lot of side effects.Hopefully you have a good MD that will listen and help. Will kep you in thoughts..FranView Thread
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Happy Monday
Good Morning Everyone I havenot posted since last Monday as with most of the country it has...
Posted by FranR
Good Morning Everyone
I havenot posted since last Monday as with most of the country it has been a very sad week here in Boston. I have ben sick with with a bronchial infection and this has brought on symptoms of the fibromylgia.As i get older now it seems every little cold affects me. But this infection had me down with a fever for a week.This brought on more anixety and some depression On top of all the saddness here we recieved news that my dear friends daughter was diagnosed with stage 4 colon cancer.She is only 40 with two young children.What a week. I nam going to look forward pray that we can all overcome our problems. Please keep all of the Boston area in your prayers. Hugs FranView Thread
Posted byFranR
I havenot posted since last Monday as with most of the country it has been a very sad week here in Boston. I have ben sick with with a bronchial infection and this has brought on symptoms of the fibromylgia.As i get older now it seems every little cold affects me. But this infection had me down with a fever for a week.This brought on more anixety and some depression On top of all the saddness here we recieved news that my dear friends daughter was diagnosed with stage 4 colon cancer.She is only 40 with two young children.What a week. I nam going to look forward pray that we can all overcome our problems. Please keep all of the Boston area in your prayers. Hugs FranView Thread
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Reply: Tuesday, April 16, 2013 ****
Hello All We are very saddered here in Boston after the terrible boming at Boston...
Posted by FranR
Hello All
We are very saddered here in Boston after the terrible boming at Boston marathon.The whole world shares in our grief over this sensless acts.Please remember the victims in your prayers.The person's responsible for these crimes have changed many lives for ever.But the people of Boston will remain strong and will continue to help one another.Gentle Hugs. FranView Thread
Posted byFranR
We are very saddered here in Boston after the terrible boming at Boston marathon.The whole world shares in our grief over this sensless acts.Please remember the victims in your prayers.The person's responsible for these crimes have changed many lives for ever.But the people of Boston will remain strong and will continue to help one another.Gentle Hugs. FranView Thread
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Reply: My husband
Dear Tschmo I was diagnosed 20 years ago and back then there was little known about fibro. I...
Posted by FranR
Dear Tschmo
I was diagnosed 20 years ago and back then there was little known about fibro. I took my husband back then to fibromylgia support group meetings. This really opened his eyes and gave him a better understanding of the disease.Some of the stories were so much worse than my own. So if he would agree maybe he will go to a meeting. Good luck and keep us informed. FranView Thread
Posted byFranR
I was diagnosed 20 years ago and back then there was little known about fibro. I took my husband back then to fibromylgia support group meetings. This really opened his eyes and gave him a better understanding of the disease.Some of the stories were so much worse than my own. So if he would agree maybe he will go to a meeting. Good luck and keep us informed. FranView Thread
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Reply: nausea
Hi Vicki Sorry you feel so poorly. I went throught the same thing a for 8 weeks. Had a...
Posted by FranR
Hi Vicki
Sorry you feel so poorly. I went throught the same thing a for 8 weeks. Had a complete work up. Something is causing the nausea make sure you MD does a complete blood count. Electrolytes sometimes are off. Please try to drink liquids h20,gingerale,soups.Try to drink at least 1500 cc to keep hydrated.If you get muscle cramps or lightheadness call the MD sometimes potassiun drops.Let us know how you are doing. God luck. FranView Thread
Posted byFranR
Sorry you feel so poorly. I went throught the same thing a for 8 weeks. Had a complete work up. Something is causing the nausea make sure you MD does a complete blood count. Electrolytes sometimes are off. Please try to drink liquids h20,gingerale,soups.Try to drink at least 1500 cc to keep hydrated.If you get muscle cramps or lightheadness call the MD sometimes potassiun drops.Let us know how you are doing. God luck. FranView Thread
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