Good to see you here.You always have interesting posts.The stumbling may be a side effect of neurotin .It never affected me but everyone is different. But the safe thing to do is see your primary he may want to have you evaluated by a neurologist. But do not delay.We cannot have you falling which causes more injuries .So stay safe . Keep us update. FranView Thread
First of all welcome.It appears you have a pretty supportive NP that is half the battle. You are in a very stressful but rewarding career. I worked with SPED children for years and it can be trying and exhausting .Good vitamins to take Vitamin B complex is good for the memory and Omega 3 is very good for the heart and major organs and tissues in the muscles .Calcium ,multiply vitamin and C are important. The new drugs like savella etc do help some people but they come with some terrible side effects .And anyone with health issues need to be careful and monitored.I am not sure you have a family but rest after work before dinner this may helpI hope this helps and this web site has very supportive members so come back often. Hugs to you Fran.View Thread
I have was a school nurse for years (retired) but still doing per diem and unfortunely I saw many children with fibro and some children undiagnosed. Some of these children had some type of trama.And it does run in families. .Puberty may be a trigger in some cases. The parents did take them to specialists as you did with the same outcome. We are lucky here in Boston to have the World renown Children's Hospital who deal with these problems .If a child was being treated by a primary MD I always referred them to Children's. We can only hope and pray for a cure for this terrible disease that is affecting so many innocent children and adults. Peace to you Fran..View Thread
Good Evening Lee The ladies are right the rheumatologist may diagnose you but they don't really like to treat fibro patients.if you can get an app with someone in pain management you will benefit from the treatment and knowledge theses MD's have. They see patients with many different forms of pain. Lipomas are benign fatty tumors that can be removed on an outpatient basis. They are not assicoted with fibro. A dermatologist or a general surgeon can remove them.Don't get too stress out with this.Hope this info helps and keep us posted,....Fran RView Thread
So sorry you are experiencing so many symptoms .Unfortunely we all have them and they vary from patient to patient .Please believe you are not alone and you have come to the right place for support and information .Many of us have had experiences with doctors who did not believe us. They cannot understand how we have so many different symptoms .But rest assure they are real and you are not crazy. Hopefully you can find a sympathetic MD you has experienced treated fibo patients. You can purchase a couple of books written by Dr Devin Stayland .She to has fibromyalgia .I have read and reread her books many times. She details all the symptoms ,problems and possible treatments we all experience. I Hope you are able to get a diagnosis as soon as possible. So you can start a course of treatment that is right for you. Keep us updated and good luck...Fran RView Thread
Hi So sorry you are experiencing these symptoms. Yes lack of sleep does increase fibro symptoms putting you in a fibro flare. The pain can be unbearable.Our muscles need rest to regenerate and heal .You need to experience rem sleep so the muscles can rest and repair .Please make sure the the physician for your unit knows of your diagnosis.I know you are on active duty but you also need your rest .Take good care of yourself and thank you for your service. Fran R...View Thread
Hi The winter is the worse time of the year for my fibromyalgia symptoms. The aches and pains increase. And when we are having a snowstorm or a northeaster rain storm I go into a mini flare.April cannot come too soon for me. ...Fran RView Thread
our letter caught my attention. About a year ago something similar happened to me. I was very sick my BP was elevated and I has having a cardiac arrhythmias.My labs were all off and the fibro was full blown. I could not swallow and I was chocking all the time. I was in and out of the ER every few weeks with low potassium. I lost 20 pds.This in turn set off the arrythmais. I was admitted to the hospital that I had formally worked. They did every test and came up with nothing saying I needed a psyh consult.Well my neighbor who is a surgeon who had me transfer all my records to Lahey Clinic Medical Center. With in one week they found the problem. I was having largeal spasms of the throat which caused an erosion.They put me on a diet and a med and in 6weeks I was better. I then saw a pain specialists who was very sympathetic and put me on a long acting neurotin to treat the fibro. My previous med stopped working after 20 years..I am 85=90 % in remission with the fibro. So advocate for your self. Find a new MD who can work for you.Drop the cardiologist and have your primary find you a new one.It maynot be cardiac but don't delay it could be anything . Medication, vertigo etc. Keep us posted. Good luck FranView Thread
You have come to the right place for friends and encouragement .I too wish we can meet our computer friends. But there are so many of us fibro friends that is next to impossible. We come from so many areas of the country and beyond. Winter is appears to be the worse time for pain to creep into our bodies .And the storms make it feel worse. It makes it hard for us to get out and exercise. Please continue to post. This helps us keep in touch. Hugs to You.....FranView Thread
Some people love Cymbalta and some people hate it. I do know it has many side effects and you have high blood pressure or a heart condition you should not take it. Neurotin is a good drug and it can be increased over time. I take the long acting pill grailse and it has been working well but it too is expensive.You do need to get into a good sleep patent. Sleeping helps rest the muscles.If you can tolerate a sleeping pill that is good I just started on melatonin with half of antidepressant.And it is working.Well hope this helps.......FranView Thread
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