See All
Preferences
My Communities
My Discussions
My Email Digests

Our rain and damp won't be here for a few more days. In the meantime, it will be 70's and borderline sticky/humid.
I just made an appointment with the doc who implanted my electronic nerve stimulator. I want the leads moved or the thing removed. Either it works or it's out. Sensitive as we all are, I feel every bit of the thing from the electrodes (on spine level with upper shoulder blades) to the wires (snaking down to the right of the spine) to the power pack (imbedded 2 inches to the right of the spine on top of hip). If it worked the way it should, it would be a godsend blanking out the pain at waist height. Since it stimulates too low on my body, it's just another aggrivation.
Anyway, June 6 will see me shuffling off to Buffalo.
Son's getting a lot of O.T. this week with Alfred State having their graduation on Sunday. The grounds are supposed to be perfect. A difficult job with the dandelions in full bloom and students sunning on the lawns while the crew are trying to mow. Of course, those same students will leave plenty of pop cans, candy wrappers, and even condoms to be removed in a frantic last minute spruce-up Sunday morning--while the extra chairs are being set up for the outdoor ceremony. Would you believe, the guy loves that job? Lucky, lucky, son.
Hubby is plowing his fields in preparation for planting corn. I don't know why he bothers. Last year, the deer got it all. We are in a very beautiful area with the Genesee River, lots of hills, feeder streams, and very small fields. There is no way we can be competitive with the farms on the plains. But, we grow the feed for our 40-50 cattle, fatten them up, and sell the meat to customers we've had since the 70's and their children and grandchildren. It is not as tender as feedlot beef, but the TASTE is clean and good. Our meat is leaner. If you fry a burger, you have to add some oil to the pan. (I brush on some olive oil befor I grill our meat.)
Still no garden. It's been plowed, limed, top-dressed with good manure, but still needs rototilling. We've had tillers I could manage; the current model is not one of them. We're NEVER going to get lettuce for the table. My guess is the garden comes after the corn--even though the onions and lettuce and beets are much more able to withstand spring frosts. Try explaining that to a man who wants to climb up on his great big--man toy--tractor.
Have a great weekend everyone--no matter what Mother Nature brings you.
BetteKView Thread

The best doctor I ever went to was a neurologist. He always treated me as if I had a real disease. Once he saw me in a bad flare, he ordered every test known to man. He put me on meds for lupus, for neurological illness, for pain. From that day to this, if I say I am in pain, I have been believed by every doctor I have ever seen.
Of course, the worst doctor I ever saw was also a neurologist, but we won't talk about her!
Keep an open mind. Work with the doctor. Let him/her know how you are feeling at that moment. Don't hide or exaggerate.
Hope this is the beginning of new understanding for you on your discovery of what fibromyalgia means to you--and how you can live fully in spite of it.
BetteKView Thread

It is hard having fibro and knowing you have to go to work every day--no matter what. This is doubly bad if you are in a job where the work is not properly planned by a really great supervisor. There's a big differenced between loving every minute on the job and hating every second on the job.
Hopefully, things will smooth out for you. This will make a big difference in your fibromyalgia. Wait and see.
Our weather here in SW NY is just as crazy. It went down to the teens last night. The fruit trees were all in blossom, too. No local fruit this year. We drove through rain, snow, small hail, and grapple coming home from Rochester on Sunday.
Our farms grow short-season crops and don't depend on anything that can't stand a little frost in late June or early September. It would be nice to be able to depend on the vegetable garden, but nice doesn't always happen.
As to a comfortable ride, we got minivans because it is like sitting in a chair, but sometimes your leg gets crampy if you're short like me--especially when you're driving.
Wonder if there is a fibro-friendly vehicle?
BetteKView Thread

I just read my post. Gloom and Doom!
Don't let me or anyone detract from the victory you had in court today.
It is a wonderful testament to the fact that Justice does prevail sometimes in the end. It is long overdue. It is wonderful. You and your whole family must be so very happy.
And we here are happy for you too. You deserve some good news. You bring us all so much hope and help every day. We all appreciate you so much and don't say it enough. So be happy with your daughter and your whole family.
Just keep your eyes open.
BetteKView Thread

The work will still be there long after you are gone. Do what you can, when you can. Please don't wory about the rest.
We all know what stress does to the fibro. Setting yourself goals that you may not be able to meet is an invitation to stress.
Yes, it would be nice to have a clean house, a tidy yard, a weeded garden. It would also be nice not to have fibromyalgia. In the real world we have to be kinder to ourselves and allow ourselves to live in this new fibro-friendly world where we do what we can (or what we absolutely have to do) and stop sweating the rest.
My mother secumbed to colon cancer and multiple mylanoma after 2 years of blood transfusions for which I drove 300 miles each way to be with her. It meant rearranging my GED students to have every other Thursday and Friday off. Now I was paying the price with nonstop back pain, migranes,
allover aches, and fatigue.
A good friend came to see how I was doing. I was ashamed about the shape of out house after 2 years of neglect. She asked me what would happen if I spent all my energy--what there was of it--getting the house spotless. Would my husband and sons even notice? Would they help me KEEP it clean? Didn't I know I was doing housekeeping IN SPITE OF my family, not FOR my family?
Of course she was right. No dust bunnies are worth the chance of amping up a flare. The stove really isn't going to burst into flames if you don't clean the oven every week. No one cares whether you chopped up the salad or poured it out of a bag.
Lower your expectations. Do what you really want to do on those precious good days. Forget about the rest. It's not worth it.
BetteKView Thread

We have hard water with a lot of iron in it. This makes them wear out quicker than they should. Same with washers, but we are only on our third of them in 45 years, luckily.
Now, have a wonderful, wonderful week.
BetteView Thread

MiMi, I'm fairly new here and obviously don't know everything that is going on, but if this were my daughter, I would be afraid for her.
Does she live alone? Can she move in with you for a while? Is there some way to have someone with her all the time? Does she have a job? Has he threatened her there? Wow, is this complicated!
You have him on the defensive now. This is good. Very good.
The only thing is that this man is an animal. Cornered animals are dangerous. You and your dear daughter must be extra vigilant until or unless he does leave the area or become neutralized by the law. Do not get a false sense of security. Not yet.
Maybe you'll be able to take a deep breath in June. Let's hope so.
BetteKView Thread

We visited the younger son in Rochester Sunday. As usual, I drove there 2 hours, drove around the city another 1 1/2 hrs., and drove home for 2 hours. Yes, we had a wonderful meal all together and a little big-city type shopping in there, but that is still 5 1/2 hours behind the wheel.
Usually, my back would be just horrible for this next week, but when we got home I rubbed that Voltaren Gel along the length of my spine. I'm not exactly pain free--miracles seldom happen--but I'm like a normal day, not like the day after a trip.
If you can try it, the Voltaren is worth going to your doctor and getting the Rx. I actually was able to sleep last night, AND to do a couple loads of laundry today, AND to cook dinner tonight. Not bad for a day I would have spent in bed propped up with pillows and more pillows.
BetteKView Thread

It's been over 10 years since I had an attack, but I would call my doctor's office and have the Rx faxed to my nearest pharmacy if it ever happened again. It was awful. Dizziness, nausea, vomiting, not being able to stand without holding onto a wall or furniture. Antivert works.
BetteKView Thread

Go to your doctor. If she suggests a colonoscopy, get it. Honestly, the worst thing about getting one is the prep. (You take different kinds of laxatives and get really empty! This is so the scope can see every inch of bowel with no poop blocking the view.) The neat thing is that if they find a polyp or something, they'll nip it off right then. Some people say it's a little uncomfortable, but I don't feel a thing and don't even remember anything from when they wheel me into the room until I'm in recovery.
Find out what the problem is. Right now, you're miserable. You're probably scared, too. If you know what's wrong, you can fix it. (Maybe you're lactose or gluten intolerant and can tweak your diet. Wouldn't that be a relief!) Call your doctor on Monday.
BetteKView Thread
See Related Pain Management Communities
Women's Health Newsletter
Find out what women really need.
Other Fibromyalgia Information
More Related Communities
The opinions expressed in WebMD User-generated content areas like communities, reviews, ratings, or blogs are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. User-generated content areas are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions. Some of these opinions may contain information about treatments or uses of drug products that have not been approved by the U.S. Food and Drug Administration. WebMD does not endorse any specific product, service, or treatment.
Do not consider WebMD User-generated content as medical advice. Never delay or disregard seeking professional medical advice from your doctor or other qualified healthcare provider because of something you have read on WebMD. You should always speak with your doctor before you start, stop, or change any prescribed part of your care plan or treatment. WebMD understands that reading individual, real-life experiences can be a helpful resource, but it is never a substitute for professional medical advice, diagnosis, or treatment from a qualified health care provider. If you think you may have a medical emergency, call your doctor or dial 911 immediately.
Health Solutions From Our Sponsors
©2005-2013 WebMD, LLC. All rights reserved.
WebMD does not provide medical advice, diagnosis or treatment. See additional information.
