Good Morning back at you, MiMi and all who follow. I'm sure you are counting the days until you get some answers to whatever is causing your knee to hurt so much.
I had to smile at your response to a "cool" 80 degrees. Western New York is quite a lot cooler than your area. We had our mandatory brushes with 90 and muggy for three weeks in July. We have some individual days that get above 80, too, but most summer days are mid 70's (although we were in the 60's over the weekend). Of course, we also get those -20 mornings most winters! Enjoy your beautiful day no matter the temp.
Hubby had his usual bunch of men over for Sunday dinner. I put the fresh ham in the oven. I started the vegetables a few hours later. Then I went back to bed. (Yes, I know. It's bad to spend too much time in bed. It's also bad manners to stay in bed when you have company for dinner. But, I did not invite anyone. I did not feel up to sitting. Bad days are bad days.)
When you are younger, you have family responsibilities. You have to care for your children. You have to maintain your home. You have to cook dinner. You probably have to work outside your home--just to have a home and food to cook for your family. And you fulfill those responsibilities lovingly despite your fibro.
I feel that I have the right at almost 70 to decide how to spend my precious energy resources. Call it women's lib. Call it being a crotchety old witch (spelled with a b). I call it reasonable and fair. I am retired from placing the needs of others first 24/7. On good days, I will consider it. On bad days, I am going to come first.
What a rant! Thank you for being patient (or not) with me.
I'm sure that the 20 and 30 somethings can work through bodywide pain and manage even to function the next day.
We elder stateswomen have found through decades of study that we can no longer do this. If your 70 year old body hurts everywhere, it needs to rest everywhere. Whatever you would have done today will have one of three outcomes.
No one will accomplish it today. It will be waiting for you tomorrow when your rested and refreshed body will be able to do a great job in plenty of time.
Somebody, younger and livelier will notice the chore and just love to take it on. The young person will learn new skills and experience new joys. She may even ask for your expert advice on the project.
The powers that be will decide that the job you never tackled on you bad day was really not worth all the time and effort it would have entailed. Instead, there will be a new, exciting project that you would love to work on--maybe with the young helper from case 2!
So, When your body says NO in no uncertain terms, listen to it. There will be other, better days, and other, better tasks--ones you can look forward to with joy.
You're actually our elder stateswoman. I thought I was, but I 'm a child, and will not be 70 until Aug, 13. Your present regemin seems to be working. Keep me posted. I really need something for these claws that used to be hands.
Sure it's progressive. Or at least it will be until we find a way to prevent full scale sensitation of the nervous system.
But there is hope. Docs like Sean Mackey and Jenniver Caudle have mapped the ways FM takes over the nervous system. They are trying to find the mechanisms that allow this wholesale reprograming of cells to only register pain with no damping down of signals. Somehow this takeover makes a small rubber ball that lands on your foot to feel like a 14 lb. bowling ball.
Once we know how these changes occur, we can try to turn them back to their normal working condition. You will no longer drop an olive on your big toe and feel like it was a watermellon--the 20 lb. version.
One of my earliest memories is of my mother trying to finagle me into taking a nap. Of course, Mom was tired, I was an active 3 1/2, and my baby sister would be there for my 3rd birthdayl Looking back, she must have been completely worn out with caring for me, Maintaining a pleasant home for my soldier father to come home to, and her ever expanding pregnancy.
Mommy needed an afternoon nap after my morning shenanagans. .But, as an active, not quite 3 year old, All I wanted to do was play. We compromised by laying peacefully in bed and telling lazy afternoon stories to each other. When the inevitable happened, and mommy drifted off to sleep, i would tell the stories to my dolls and stuffed toys whispering so I wouldn't wake mommy and ruin the stories of my not-quite 3 year old brain.
All my life, I've had trouble sleeping. So, I've always been tired.
BetteK That's 67 years of not napping when I should have!View Thread
MiMi, Gosh I hope the heating pad and meds helped. Losing sleep is the pits. It makes it so hard to actually LIVE the next day as opposed to going through the motions.
DH has been having dizzy spells. He went to doc on Monday and was asked to come back today (Fri.). I had every intention of going with him--two sets of ears being better than one. Of course, the fibro and it's cousins had other ideas. All night long my hands were throbbing. It felt like they'd been caught in a car door or something. No sleep whatever. And no meds either in preparation for the removal of that electronic nerve stimulator on the 16th. Heat didn't do a thing. I was so desperate I tried cold. Nothing but more pain.
Hope we both have better days and some sleep tonight!
KDlite, Mary is right about Dr. Starlanyl's books. She's one of US and one very savvy lady.
We're all different. I have a very narrow comfort zone. I'm comfortable between 69 and 71 degrees period. Any hotter and I start getting miserable. Earlier in the summer when the temps were in the 80's here in W NY I was a wreck. Everything hurt.But the worst was the fibrofog. It is as if my brain was baking in the heat. I was always light headed as if I would faint. I was nauseous and had several trips to the bathroom each hour. It's much better now with daytime temps in the mid 70's and nights between 50 and 60. The house stays perfect.
At one point (before heat was such an issue) I was in the pool with a 90 something woman for aquatic therapy sessions. She said.she still got hot flashes! Could be, but she could have been sensitized to all the heat therapy she'd had over the years for arthritis in hands, knees, back, neck, etc. Sound familiar? I wasn't going to plant the word fibromyalgia in her mind, but it was certainly in mine.
I think I am the oldest member here (I'll be 70 this month), but I was only 28 during my second pregnancy when the backaches began. They never left. Instead, they blossomed into body-wide aches and pains and of course fibrofog.
I raised my two boys. I moved to a farm in W NY and became a creditable farmwife selling milk and butter and homemade bread to earn grocery money. When the boys were in school, I started college, earned three degrees, and then taught for 15 years. I did this, of course, in constant pain.
When the FM became unbearable, I went for my Teacher's Disability (easy) and SSDI (hard).
You do not need a spotless house. (I think I have some cobwebs from back when I was still teaching.) You do not have to make every meal from scratch. You can USE your crock pot. (Carrots do not have to be peeled before you throw them in.) Clothes and small appliances are fine from catalogs or online. I have found a smaller grocery store where I can buy things without standing in line on bad days. On good days, I'll brave the supermarket. Sometimes, I'll fill my cart then hunt up a handicapped one to push my big one through the checkout line. (Standing in line is my biggest pain source.) Whenever possible, I bring a son. I shop, he stands in line, then I pay.
Oh my, Jan! It's great you are walking again, but horrible that you have to experience so much pain to do so.
One possible tip for you: Do you have some Ambien for sleep? When I went off oxycontin, I was fine until the very last when the only way to decrease the dosage was to eliminate it. My arms and legs flailed especially at night when I tried to sleep. Finally, I took an Ambien hoping it would override the restless limbs. It did! I actually slept. Just to be on the safe side, I took the Ambien the second night too. The third night, I was able to read myself to sleep with no medical help.
Anyone who goes on these powerful drugs cannot imagine that she will ever be pain free enough not to need them. We just cannot believe that withdrawal will be a problem in out lifetime. But it may be.
Again, it is just wonderful that you are finally able to walk and your "STRESS (*!#@!!!)" is under control to this extent.
Oh, MiMi what wonderful news for your daughter. Back in another age, my sister in law was being beaten by her then husband. She finally went home to her parents. When the very drunken husband came looking for her, he faced my hubby and his brother cocking their shotguns and aiming them at the creep. Just to make things more interesting, a state trooper parked at the foot of the driveway and got out HIS gun and aimed it at my former brother in law. We never saw him again. He didn't even show up at the divorce hearing. I wonder how that would play out in today's world!
Let's hope you and your DD never see or hear from YOUR creep again, too.
Bette K (Now that HughesNet finally fixed their satelite dish.)View Thread