Anjil, have you looked at the abstracts in the research section at NFA? The most recent listing was in 2008. The best way to use these listings is to find topics you are interested in and then use those topics to access PubMD and find more current research on those specific areas.
I am interested in the brain and its changes in fibromyalgia. We have many subtle differences from those who are normal and even from those who have osteoarthritic pain but no FM.
I truly believe that studying these changes can lead to correcting our chemical imbalances with medications that go right to the basis of fibro and do not give us any of the many side effects most of us cannot tolerate.
If we want to know what is happening in research NOW, we have to see what has been published in the past year, not the past decade.
Have you written to your state representatves about this horrible legal position you and your caring doctors have been placed in? If you want change in laws, you have to go to the lawmakers.
You are right that fewer and fewer doctors are comfortable prescribing opiates. They cannot afford to lose their licenses. And this is what happens to doctors who prescribe "too many" painkillers. Of course, there are specialties like pain management where hurting people congregate. There ought to be some leeway for doctors to use their own professional judgement and prescribe for those who should recieve meds.
You know, the description of your appointment and non-examination sounds like one of those quacks who used to write trade meds for percs--until they got caught. In the back of my head, it almost seems as if Doctor X was afraid you were a sham patient and part of an investigation of him. He certainly doesn't sound like he gives the type of care you need. You need someone who will make sure that you both know all the causes of your pain, will try to ellieviate those he can, and will medicate you for those he cannot treat or cure. Doctor X was the last person you need in charge of your well-being. (Quack, quack, quack!)
As others have mentioned, opioids don't always help. I went from 25 mcg/hr of Duragesic patch all the way up to 150 mcg/hr. I was switched back to OxyContin 25 mg and got better coverage. Another time the patches worked better. I'm now opioid-free and at a lower pain level than on any med. I get nerve blocks every 3 months.
My hubby got in trouble with the pain clinic for taking some of his previous med along with the current one when he had a bad flare on the weekend. Luckily our family doc was willing to prescribe for him and included a rescue medication.
I thought the official position is that "pain is what the patient says it is." I guess I was wrong. Docs have to realize we have bad days. We need a med to add to the mix on those days. Write it for only a week's worth. Make the patient come in for a refill. Reassess pain levels. But don't leave a patient home alone with increased pain and nothing to do about it. Show some compassion--and some sense.
If you aren't on first name basis with your doc's receptionist, get there. Then some day when you are in the worst flare of your life you can call the office, explain that the doc really should see you at least once in this shape, and get seen as quickly as your friendly receptionist can find a spot--not in 6 weeks.
If your doc doesn't know just how bad it can get, how can she possibly prescribe for those horrible days that we all know will come? Make a point of not getting all dolled up. Men, don't shave unless you really feel you have to. Ladies, skip the makeup. Dress for comfort, not for fashion. Emphasize the difference between you at a regularly scheduled visit and you on a very bad day. Your doc has to see the difference in you to understand it.