
Reply: When your doctor won't prescribe narcotics: Tips f...
The shooting pains in my back are better. I still have the pains but not as severe. I saw my...
Posted by mybdy
The shooting pains in my back are better. I still have the pains but not as severe. I saw my doc and she wants me to have an MRI of my brain done because I started having weakness in my arms and right leg. I was trying to feed my son fruit and I couldnt get my fingers on my right hand to grasp the fruit. My right leg feels like a weight is on my thigh when I go to lift it up from the bed or couch. I am waiting for blood work to come back, which I am sure will be normal anyway since it always is. I fell about 1 week ago and even though I didnt hit my head, my doc thinks I could have a concussion just from the force of impact. I havent been able to work and now I am on brain rest which means nothing but sleep. And that is boring!!! My MRI is saturday, which I am sure will also be normal. So frustrating!!!View Thread
Posted bymybdy
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Reply: I want myself BACK!
BetteK, your response was encouraging to me too! It really is helpful to hear about how...
Posted by mybdy
BetteK,
your response was encouraging to me too! It really is helpful to hear about how others deal with their FM symptoms. I know that everyone is different, but just your advice on keeping easy meals available and having the kids help out. I hate having to take pain meds. I feel like right now I am always popping a pill to feel better, but it just makes sense to do it if that is what really helps you.View Thread
Posted bymybdy
your response was encouraging to me too! It really is helpful to hear about how others deal with their FM symptoms. I know that everyone is different, but just your advice on keeping easy meals available and having the kids help out. I hate having to take pain meds. I feel like right now I am always popping a pill to feel better, but it just makes sense to do it if that is what really helps you.View Thread
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Reply: I want myself BACK!
Hi ready, I can honestly say that I know how you feel. I was diagnosed with fibro. about 10...
Posted by mybdy
Hi ready,
I can honestly say that I know how you feel. I was diagnosed with fibro. about 10 years ago and it is still very frustrating to deal with. I can tell you that if you know the Lyrica worked for you then tell that pain management Dr. that the Lyrica and vicodin combo. is what worked before and you want to try that first before anything else. If your insurance co. denies to pay for the Lyrica, the office just needs to keep resubmitting it until they agree to cover it. I am an RN and I deal with insurance companies on a daily basis. Lyrica is still "new" and the insurance companies want your Dr. to try an older, less expensive med. first and if that fails they will cover the Lyrica. Sometimes it even helps if you call them for authorization yourself. You will find something that works for you, and once you find it DO NOT let anyone talk you into changing it. I also know this from first hand experience. I have had many ups and downs with this weird, crazy, unpredictable illness and when I go to bed at night, it is anyone's guess how I will feel when I wake up in the morning. I am currently experiencing a flare up that is going on its 3rd week. In my ten years of having this, I have never, ever been this miserable, or in this much pain from a flare up before and I am having a very hard time dealing with it. This is just how unpredictable fibro. can be and it is different for everyone. I am sorry that your husband does not understand yet. It is very important that he becomes familiar with your illness, or at least tries to become familiar with it. My husband at first didnt understand and I took him with me to some of my Dr. appointments so she could explain it to him. He is very supportive when I cant get out of bed for days at a time. It is hard for them to think of you as sick when you look healthy on the outside though. He may just need time. I am new to this community as well and so far I have learned many useful tips to help me during this flare up of mine. It is very depressing to be in pain all the time, but dont give up.View Thread
Posted bymybdy
I can honestly say that I know how you feel. I was diagnosed with fibro. about 10 years ago and it is still very frustrating to deal with. I can tell you that if you know the Lyrica worked for you then tell that pain management Dr. that the Lyrica and vicodin combo. is what worked before and you want to try that first before anything else. If your insurance co. denies to pay for the Lyrica, the office just needs to keep resubmitting it until they agree to cover it. I am an RN and I deal with insurance companies on a daily basis. Lyrica is still "new" and the insurance companies want your Dr. to try an older, less expensive med. first and if that fails they will cover the Lyrica. Sometimes it even helps if you call them for authorization yourself. You will find something that works for you, and once you find it DO NOT let anyone talk you into changing it. I also know this from first hand experience. I have had many ups and downs with this weird, crazy, unpredictable illness and when I go to bed at night, it is anyone's guess how I will feel when I wake up in the morning. I am currently experiencing a flare up that is going on its 3rd week. In my ten years of having this, I have never, ever been this miserable, or in this much pain from a flare up before and I am having a very hard time dealing with it. This is just how unpredictable fibro. can be and it is different for everyone. I am sorry that your husband does not understand yet. It is very important that he becomes familiar with your illness, or at least tries to become familiar with it. My husband at first didnt understand and I took him with me to some of my Dr. appointments so she could explain it to him. He is very supportive when I cant get out of bed for days at a time. It is hard for them to think of you as sick when you look healthy on the outside though. He may just need time. I am new to this community as well and so far I have learned many useful tips to help me during this flare up of mine. It is very depressing to be in pain all the time, but dont give up.View Thread
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Reply: Trigger point injections
BetteK, thank you so much. Both of you ladies are very encouraging and helpful. My Dr. is...
Posted by mybdy
BetteK, thank you so much. Both of you ladies are very encouraging and helpful. My Dr. is really good at listening and talking with me about my symptoms and she will pretty much order whatever we think will help. I am however, really bad about calling my dr. when I need to. This is the worst flare I have ever had in 10 years and it has been almost for 3 weeks now and I have not called her about it. I feel like with the other flares I had, this will eventually run its course and end but this time is different. My husband just actually lectured me this morning about that! LOL He is very supportive and is worried about me since this is the most down he has ever seen me. I just dont want my dr. to think I am trying to get pain meds. or think I am overreacting. Even though deep down I know she really wont think that. I guess I am just hoping it will soon be over.View Thread
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Reply: Trigger point injections
Hi MiMi, I haven't had my Vitamin D level checked in maybe over a year now. I had it checked...
Posted by mybdy
Hi MiMi,
I haven't had my Vitamin D level checked in maybe over a year now. I had it checked when I was pregnant with my son and it was low. I was taking the 50,000 once a week. I do still take vitamin D supplements, maybe not enough. My heating pad is currently my best friend. I have not heard of the Stopain Spray, I will have to try it. I have to admit that even with being diagnosed for 10 years, I havent done a whole lot of research about it. When I first started to notice my symptoms, my Dr. at the time actually told me to my face that "it was all in my head, and caused from too much stress" My Dr. now is awesome though! She is the one who diagnosed me. Thank you for those tips and resources. I need to try out different things and see what works.View Thread
Posted bymybdy
I haven't had my Vitamin D level checked in maybe over a year now. I had it checked when I was pregnant with my son and it was low. I was taking the 50,000 once a week. I do still take vitamin D supplements, maybe not enough. My heating pad is currently my best friend. I have not heard of the Stopain Spray, I will have to try it. I have to admit that even with being diagnosed for 10 years, I havent done a whole lot of research about it. When I first started to notice my symptoms, my Dr. at the time actually told me to my face that "it was all in my head, and caused from too much stress" My Dr. now is awesome though! She is the one who diagnosed me. Thank you for those tips and resources. I need to try out different things and see what works.View Thread
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Reply: At a loss
I was diagnosed with FM about 10 yrs. ago and am still trying to figure out how to deal with...
Posted by mybdy
I was diagnosed with FM about 10 yrs. ago and am still trying to figure out how to deal with the fatigue. Just this week I slept for 3 days straight. I did not leave my bed except to eat dinner. Thank goodness my hubby was home to care for the kids, but I just felt my body needed it. I am also having a bad flare up right now so my fatigue gets worse during that. I think you just have to rest when you are able to. Try to get some exercise in, since that helps you sleep at night and just pace yourself during the day. That is just my advice. What works for others may be different.View Thread
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Reply: Trigger point injections
I have also realized just recently that sleeping in the recliner or even on the couch is...
Posted by mybdy
I have also realized just recently that sleeping in the recliner or even on the couch is better than my bed. I have been having a horrible flare up for about 3 weeks now and am miserable. I dont know what to do anymore to try and make it better. The pain is making me depressed and I actually stayed in my bed for 3 days sleeping. I was diagnosed with fibro. about 10 years ago and I have had flare ups before, but not ever this severe. On my good days I keep active. I have a 4 year old and a 14 month old along with a 13 year old child. I work full time also. I feel like my pain is getting worse. Any advice would be greatly appreciated.View Thread
Posted bymybdy
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Reply: When your doctor won't prescribe narcotics: Tips f...
Who are you to judge who should be taking narcotics everyday? You are entitled to your...
Posted by mybdy
Who are you to judge who should be taking narcotics everyday? You are entitled to your opinion of course, however, you should also be open minded to the fact that some people, even though they may look healthy on the outside, are struggling every day just to get out of bed in the mornings because of their debilitating pain. Have you ever in your life have to deal with feeling like a horrible parent because you were in too much pain to pick up your baby? Imagine feeling like a knife is stuck in your back...every single day, all day, for over 1 month? Have you ever cried yourself to sleep at night because of the guilt you felt for not being able to sit down and play with your children because of this pain? When that happens, you can judge.View Thread
Posted bymybdy
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