First off..........what is the difference between FM and Chronic Fatigue Syndrome? Is there a test for CFS and would I discuss that with my rheumotologist? I've learned how to push through the FM pain when I have to, but I have not found a way to push through or deal with the fatigue. It completely disrupts my life. I always make sure I get extra rest during flares and I've been pretty good about keeping stress to a minimum. I have never had my Vitamin D levels checked so I am definitely getting that done next week when I go back to the Dr. Are there any other suggestions or things I should investigate? I've also noticed that quite a few people on the discussion boards have been to a neurologist. Is that something I should and investigate and if so, what types of questions should I ask or tests should I have? I've had FM for years and I have a Rheumatologist, General Practioner, and an Internist. I was tired of being poked and prodded and feeling like a guinea pig so I haven't really tried anything new in years. This last relapse made me realize that I should probably do some more research and explore some more options.View Thread
I am so right there with you! My mom still doesn't quite get Fibromyalgia and seems to think if I would just take my vitamins (I already do!) and be more positive I'd be all better! It can be soooo frustrating. I usually stay pretty positive, but every now and again I have a flare that just gets me so depressed and then so angry for what I have to deal with and so frustrated that most people around me just don't get it. I often say....I am so sick and tired of being sick and tired. I hate not knowing from one day to the next whether I'm going to wake up in tremendous pain and so exhausted that I can barely funciton or if I'm gonna feel great. I've dealt with a few doctors who treated me like I was just lazy or whiny. I switched doctors. In time Fibromyalgia will get more awareness and acceptance.View Thread
Thanks for the tips. It's such a relief to have other people to talk about this stuff with. I have a great support system, but I know my friends and family can't understand what I'm going through and after a while it's gotta just sound like whining and complaining.........especially cause on the outside I look healthy even though I'm not.View Thread
Thanks for the response and the suggestions! It took me a long time to realize that I really do need the support of other Fibromyalgia sufferers. It's so great to have people to talk about this stuff with that actually understand.View Thread
Hi! I'm new to the discussion group. I started working at a Physical Therapy office in September. I work at the front desk. I have never worked in the medical field before so it has been a very educational experience for me. I am shocked at how little our Physical Therapists know about Fibromyalgia. We are seeing an increasing number of Fibromyalgia patients and my boss asked me to give a brief Fibromyalgia (from a patient's perspective) talk at our next staff meeting. My biggest advice would be to ask the therapist how familiar they are with Fibromyalgia and have they treated other Fibromyalgia patients before. I think the most important thing is to find a therapist that you are comfortable with and that listens to you. Take this opportunity to discuss your symptoms, pain, and what seems to aggrivate it. Speak up when something is too painful or stressful and let them know what exercises seem to be helping and they can build a better plan from there. You may also want to try some Aquatic Physical Therapy.View Thread
Hi! I'm 36 years old and have been living with Fibromyalgia and an array of other conditions for YEARS. I was doing great and had not had a significant......knock down...kick my butt........kind of a flare for a good while............until two weeks ago when I fractured my ankle. The thing I hate most about this condition is how unpredictable it can be. I was doing so well and then BOOM the flares are back and I have been so miserable for two weeks now. I head back to my rheumotologist in aweek for a check in. I've been pretty passive this last year about my conditon ........since I was doing pretty well. I now realize that I need a better plan for when I have flares. I moved almost a year ago and have only seen this rheumatologist a few times and this is the first significant flare I've had since I moved here. I want to develop a more aggressive strategy to help me deal with flares. What suggestions do you guys have? I'd like to get my vitamin levels checked. I'd also like to switch from Prozac to Cymbalta to see if that helps. I'd also like suggestions on how to help my co-workers understand what I'm going through when I have a flare. FYI.......I work at a Physical Therapy office and I'm shocked at how clueless they all are about Fibromyalgia!