Hi-- I never tried lyrica cuz of the price. My mom and her sister both had problems with it. Mom ended up on neurontin--I take gabapentin generic neurontin.
I have no problems with it and I take extra at night so I sleep better. I do not take a high dose at all.
I think it handles fibro fine. It does not handle my arthritis and I've been taking celebrex for that but am hoping to dump it in the near future for an herb--turmeric. I've been researching it and am just waiting til I know what's going on with my gutt so I can make a switch with OK from gastro if need be.
Celebrex works on my OA pain for the most part-- not 'quite enough' anymore.. but better than anything else.View Thread
Tell your guests you want to do this but need help. Mine were very understanding last year --first time I was honest abot it. I was able to rest and get a lot of help and easy meals etc.. with a houseful of guests who stayed several days.
Also--I don't know how big your house is--
I got a fake tree that is pre-lit but knowing my family would not like that idea--I got a HUGE one and it impressed the heck out of them all. 12 feet tall and pre-lit.
I bought it 2nd hand on Craigslist for $200.
Listen if you need to take short cuts you can still do it really cool.
Also had my daughter and her hubby put up my lights for me outside and I got some really cute snowflake lights for my sunroom. The house was cuter than eve an I did not wear myself out. I told all my guests I only wanted ornaments--in blues or nature colors --birds preferably. They all helped me decorate the beast.
Its a new family tradition and did not wear me out.
For the fist time in 30 years almost I did not have a major flare from a holiday.
why I never thought of this before is beyond me.
Just in time too as I now have even more chronic issues and I'm guessing I'll be finding out I have another one after a test I'm having the 22nd. Sometimes I think fibro is just a precurser to other disorders but no way I can prove it. just my experience.
nothing wrong with a pre-lit tree--it looks better than you'd think.View Thread
My PT didn't think I had it either. I think neither a nurse or a PT is qualified to make that call. You can have fibro AND diet issues or AND arthritis which is what PT is treating.
I just feel like for me-- if I can get it under control calling it fibro-- then why not?
I was dx'd by a rheumy back in 88 or early 89 after a 3 year quest to find out what the heck was wrong. I'm not messing with that anymore.. I keep getting new problems as the years go by and I'm sure diet is in the mix too--but at this point?
Good Morning Mimi and all to follow! Spring is Glorious in South Carolina. Wish it were much longer... I know Heat comes in about a month probably--sometimes sooner.
I am doing almost all of my gardening just on my little side deck--it is like a balcony garden. Much easier for me. I cannot dig in my clay dirt--can't even get the shovel in. But I have a solution for that too--I am landscaping just around my driveway this year. I have my hubby or my son in law dig holes for shrubs so I can take care of planting them then and watering.
My kids are taking out my old garden back at our rental--they want grass there--fine. They are slowly bringing my plants here. Yesterday my SIL brought over a rose bush and another shrub--I am not sure what it is--can't remember but it will come to me. Today I babysit so he is going to come early and dig me holes for those.
I have the kids at the garden center load my jeep for me and my sil or hubby unload it. So I have learned to get help finally.
You can sit on it, or flip it over and kneel on it--and use the 'legs' as 'railings' to help you stand up again.
I've used it in my house many times already when I need to be on the floor. I will also use it for planting perennials around my driveway and in the little bed near my porch downstairs.
I can't dig so I am just putting more soil ON TOP OF my clay. I will garden on top of it. That's my plan. not with the shrubs or trees--just the smaller things. I have 3 areas picked up that need that. And my kids will be bringing me all my plants so that will help.
The house here needs total landscape makeover as we bought it with old overgrown things that were in bad places etc. It came with the most beauitiful cameillias but they are huge and sadly they planted them right in front of the house!! I mean you don't want the growing up and hiding the whole house. LOL> I tried cutting them back but it just is not the solution--we had to finally cut them down cuz digging them up will require a trip to China via shovel.
the ones we cut down last year came back! LOL. I'm sure this years batch will too--but at least they are little now--I suppose we wil have to keep doing that.
Anyhow I love spring!! (obviously) I have a month do what I'm going to this year. So I do need lots of help. After that I will water and fertilize and that will about it as it will be hot enough to melt a Mary.
When I can do no more in the dirt I will give away plants to a friend.
I am a little flared up today about the neck and shoulders. not as bad as yesterday. Plan to babysit this afternoon only so they will nap. So it should be a slow day and I hopefully can get this in control before the weekend.
Have a glorious Spring Day if you have spring--if not--it will come. MaryView Thread
Seaweedbits--- correction--meant to say "pushing through caused painful AREA, not painful are.
Also-- Tell your doctor-- The research and science on fibro is not final yet--there is no way they know that pushing through pain is good for fibro patients. They have not tested a big enough sample thoroughly enough. They do not even know the cause or exact mechanism of this disorder yet so ANYthing that is supposedly 'known' is BS and you want her to know that every person with fibro knows more about how it is in daily life than any researcher or doctor does.View Thread
Seaweedbits.. hi, boy I empathize so much! I no longer work--although I have been nudged to ever since I finally got my hubby to say ok to me just quitting 3 yrs ago. I was in so much pain! Really helped to stop. But I know not everyone can do that. I'm a Gramma now and closer to retirement age anyhow and I had no benefits coming up that would be damaged as I spent most of my younger years raising kids and homeschooling and didn't have that many years of work outside the home until they grew up. These days I babysit 3 days a week for my daughter. Her hubby is a student. Those 3 days wear me out! I was flared up Tu. night it came on and yesterday I had a full day of kids. I did push through but I took a nap when they did. and went to bed early.
I am sick of my doctor too--AGAIN. I just found a clinic in town that has an MD and chiros, accupuncture and a massage therapist. My ins will only cover MDs but I will see if ther's is in my network.
I am a HUGE fan of voting with your feet when you have made reasonable attempts to get through to a doctor and they just won't budge off whatever it is they are so sure of.
Pushing through fibro pain--for me ALWAYS ends ups in some kind of ugly situation. However it has been less the case as I get older---pacing always has worked better. Sometimes I realize I do need to push a little bit more--but even then I do it in such a way that I sit or walk around etc too-- so as not to push too hard.
I've had things happen that caused a painful are that lasted as long as 2 years after over doing it.
You need to start looking for two things---a more flexible job and a doctor with ears. Tell your doctor you are frustrated and feel like this is YOUR body that YOU have a better idea of what is happening than He/she does. I had a stupid young woman doctor who just could not allow me to tell her anything without giving her pat Medical/PC response.
She told me how her 90 Grandfather walked longer on treadmill than I do. (gee thanks)
I got "I can't believe its not butter" so I could cut cholesterol cuz it actually tastes kind of like the butter I'm so addicted to--she wanted me to get smart balance cuz its HealthFood/PC and supposedly better for you-- BS-- if it does'nt taste like butter--I'm not going to use it--so who cares?
I mean-- there are people you described as "in control" here's the thing
it is YOUR life and YOUR body.
YOU should be in control. I can see maybe having issues with a boss that might not be fixable-- if you can't find another job and MUST work--but so far I think we still have enough doctors that we can Switch.
At my age I've really had enough of it with these doctors. They are 'mindless' to my way of thinking. They read or hear what they are told by some convention or drug rep and don't stray from the text. Look for someone willing to question the Politically Correct Medical Dictocrats and help you.
Good Morning Melpomene. I am sorry for your frustration. It does sometimes seem like a full time job do deal with this--I agree. And sometimes very frustrating. Of course there are other times when it is not so bad, you go along in your day and don't feel it as much.
One thing I think-- maybe your health regimen is a little intense for you personally? Maybe rather than exercise and meditation as 'set appointments' you could just relax and take a walk in a pretty park or with a good friend sometimes? I used to go to the YMCA--there was one near us that had a sauna and whirpool and a warm tub--but that was in a different time and place--nothing like that here where I live. I think the Saunas for me were something I needed early on--when I was in just a great amount of pain. These days If I am faithful to take my gabapentin and my celebrex (which is really for arthritis --but many of us have Osteo arthritis I think--especially in neck area) I do not have that level of pain any more--so I am freed up from some of those things. I do have a hot tub that my Hubby built for me from a used insert. Its wonderful--but I find I don't need it daily as I did when I got it.
Key is de-stress. Get lots of hydration and make sure you sleep well and perhaps there is a med that might just up your game and give you a tool that does some of the work for you?
thanks Mimi- I agree. Funny thing is my sister who doesn't believe in it --had an episode that her dr told her was fibro-- but it ended. She talked to me about it and I said --i think your dr was mistaken. It doesn't go away like that.
She may have it--and just be in denial. I know she didnt believe it when I had it or my mom--she 'poo-poo'd my mom's RA as if it were nothing. LOL egads.View Thread
Hi I use gabapentin. I have been using a higher dose at bedtime than in the morning. I'm not so stiff as I used to be in the morning. Now I also take celebrex--so that could be part of it. Its not for fibro but for arthrits. Sometimes we have more than one thing.
Gabapentin can probably use some help. Have you had Vitamin D checked yet? cuz that also helps some.
an antidepressant before bed too can help you sleep better and feel better.
maybe too take a look at the bed. Is it comfortable? you might want to add a foam pad to it-- the kind with the diamonds or points on the top is great. When I worked in nursing home we used to call them 'egg crate mattress' you just put it on top of the mattress, under the sheets.
makes it more cushioning.
make sure you get to bed early and that you are sleeping well--if you aren't tell the dr-- you need to.