You know... I think I misread your post-- you started having this pain in 1985? I got fibro in 1985. Even as badly understood as fibro was back then---I finally got diagnosed in 1988. 3 years--I thought was kind of long but it maybe about average.
You my dear, have been in pain for 30 years you are totally neglected by your doctor. I don't know what the reason is for not changing doctors by now--if they are the only one in 3 counties? or your insurance won't cover anyone else?
I mean--this is really awful. If its the insurance call them and ask to file a complaint every time the doctor refused to refer you. Call and get another appointment , ask again, and file a complaint again.
Get tough! I'm thinking by now those babies may have their own babies, Gramma needs some relief or she won't be around to play with them. maryView Thread
Hi.. If your dr will not dx you or refer you to someone who will-- you need to be proactive here and get a new dr.
you've suffered WAYYYYYYY tooo long with crappy dr-itis.
One thing fibro has taught me is to be really impatient with bad drs. I've had quite a few but some good ones.
Its very normal to gain weight with fibro due to the pain--but you will have to take that bull by the horns too-- if you cannot exercise you must reduce calories or change to calories that don't add more weight --like veggies, lean meat -cut the starch nearly out and super minimize the fat.
Also dump out the sugar and go with something like stevia.
YEs get the D checked but it really sounds to me like you should ask for that at the 1st apt with your NEW dr--at some other practice.
Tell whoever your new dr is that you have been trying to get your dr to refer you for possible fibromyalgia for what is it? 18 years??? My goodness.
tell him you are aware you are overweight and out of condition--but the reason this all began is pain and you have never had your dr listen to you and help you with it.
the disrespect you are getting from this practice tells me they've been paid enough now. Move on !
Hi-- just want to say the beginning of fibro is the worst for pain--but if you don't get the right combo of meds/sups/diet/exc. & rest/pacing--figured out for yourself--it can be very prolonged.
I got mine 30 years ago when nobody had heard about if--and did not get the right combo for many years so mine was prolonged for about 10 yrs.
I do not at all have the level of pain i did back then now--but something does still aways hurt. just not as bad. Fatigue for me is not improved as much as I could wish but I sleep a lot better.
I wish I could encourage you on running-- I've never been up to that point in my life--so can't say much on that I was in track back in highschool prob should have gone long dist. instead I was relays and hurt myself my first race. LOL So that was it for me.
I walk and I stretch in my hot tub and I do PT when I have a new area of problems.
Good Morning Folks! I have been off sick all week. Though it was flu but ended up in doctors office eventually and this is all looking like somethig else now so waiting on a ctscan and gastro apt.
I'm a bit better but def. not over it. have issues with lower abdomen, mouth and eyes--my mouth seems ok now I've been gargling with a lidocaine thing. My eyes are inflamed I guess? they are always red and sore but not pink eye so no junk.
My DIL had emergency surgery on the other side of the country. She had retained placenta and some odd artery due to old c-section scars so after little Lucy was born it got hung up there and she hemmorhaged lost a lot of blood and they say it will take 1-3 mos to build it back up. She is to rest and not even hold the the poor little babe who isn't even 6 pounds. Thankfully my son was able to get sweety used to a bottle while my Mommy was in hosp. She is home now. Her sister is coming to care for her. Wish I could. I'm hoping we can go there in June.
Weather here is amazing--well today its cool and gonna rain. I slept much of the week. Hubby came home to work so he could care for me. He left today. So quiet in the house. I did some work out on my deck garden when I was feeling better.
I have only begun to read all above! So will say quick--
MIMI--- I sure hope you can sleep soon--and try 'cetrizine' for allergy. I just take one at night and it works. Also fluticasone nasal spray (rx)
Nancy-- wow I love Aussies! Also--- in Wisconsin I could not put my garden all the way in til June 1st and it was just fine. Just Do it!!
Linda-- 'here here! Cheers to winter's end!' And azaleas.
We are in dogwood season-- there is NOTHING ON EARTH as eye catching as Dogwood's in bloom. We also have Crappie's biting off the dock-- my GD caught a few big ones yesterday she was so proud.
Cece-- hope things get straightened with your dad.View Thread
I've been all kinds of flared up the past several weeks-- I think from physical therapy and traction. I think it somehow touched it off.
I've even had ibs again which I havent had in 20 yrs.
One thing I'm noticing I have no energy and I'm so tired I get up and go back to sleep. But if I get up and try to do ANYTHING I get a slight fever.
Now normally my temp runs really low and I've been getting chills and heat alternating so I got a thermometer & started chcking to see if I have a virus or something.
The past week in particular has been this way.
so temp is a low grade fever but I am always about 98.1 like clockwork so its weird.
Any ideas? Thankfully I have physical coming up- which I'm going to ask for another ana, my last one was raised although a follow up at the time with a rheumy revealed nothing; and I'm wondering if something is going on autoimmune.
So interesting--Nancy B-- mine started with lifting a patient too. Isn't that a coincidence. I was not a nurse but an aide in a nursig home an a very heavy bad tempered man flipped over at the wrong time without warning anyone.
Anyhow--I have some friends who coincidentally have chronic illnesses. We have other common ground too- but that just turned out to be the case. One lives up near where I was raised and has Lupus pretty bad--I visit her when I am there. The other I see once a month now to shop at thrifts, plant nurseries that kind of place and have lunch and laugh and laugh. She has a seizure disorder as do I and a chronic pain problem and more.. we don't talk too much about that stuff but we have that common bond. Last time we visited we did talk some about depression as both of us have struggled with it.
I wonder if there is a hobby you enjoy like gardening or embroidering that you could find a local group? then go and maybe someone there will really click with you? I find ONE good friend is enough.
as for drugs for me: I use gabapentin and celebrex (for arthritis) I also am finding that some of my seizure meds are supposed to help with fibro-so when I get to a proper dose--maybe..