I was kind of amazed my last PT therapist claimed to have a great deal of knowledge about fibro then prescribed 30 reps of a particular exercise. It put me in a great deal of pain. I had to eventually just give up on her.
I did keep the exercise sheet she gave me--but I do 5 or 6 reps of each exercise every morning.
There is some use in PT--but like everything else we need to take it in hand and apply it in a way that makes sense for us.
I went from using a cane to being able to do all my daily activities without one. and I maintain it using my low reps daily as well as all my other tricks/meds etc. MaryView Thread
I've been using a roll on product called Arth Arrest. I got mine at Walgreens for about $20.
It contains Lidocaine as well as methyl nicotinate and capsaicin. Personally I wish it would skip the capsaicin as I don't like the burn sensation and my skin is sensitive (typical for fm to have sensitivity)
It also has several herbs: arnica, rue, chamomile, boswellia (frankincense)
for me it is a little irritating at first when I apply it--but after awhile it is not and then I start to notice that I have less pain areas. I put it on as many 9 or 10 spots that are painful and it apparently sinks into the skin and gets at the muscle and bone issues below.
Seems to work on breakthrough pain that my other meds don't get.
I also use gabapentin currently at 1800mg daily and 2-4 aleeve daily Also 2000 iu vitamin D vitamin b stress mix 2x daily.View Thread
Hi to both of you newly diagnosed FM'rs... As for which doc to use--
Rheumatologists are the traditional ones--but things are quickly moving more toward Neurologist and Primary care docs. I think I have had the WORST help from Rheumys. I get most of my help from neurologist now & PC dr.
Is it Auto Immune? The jury is still out on that--there is at least one study that I have heard of that does point to an auto immune issue--but most studies so far seem to point to a brain/spine & nervous system disorder-- of course it can be both. MS is something that I think is both am I right?
Smoke or eat pot for relief? I have not met anyone who has tried that so I don't know. I suppose it could help depress the nervous system and that might help with pain.. seems possible in theory I guess--but for most folks it is also ilegal. If you live where it is not illegal and you want to do that-- make sure you don't have kids in the house!
Anyhow God bless to all of you--this is tough. From my experience you won't literally get back to your old self but you can sure improve.
Hi.. I know lots of folks have already chimed in.. I was just thinking of something--many people with fibro have it begin with something stressful or painful. I notice you are 16, an honors student an going to college? For me that would have been a stress kicker-- it is possible that may have kicked off what may have been a potential issue to begin with. Does anyone in your family history-- near to you-- cousins, sibling, aunt/uncle/ gramma/ parent-- have any serious chronic pain issue?
Mine began during a super stressful year--I was pregnant with my 2nd child in a stressed out marriage with hubby in school, working at a physical job and then got a hard to whip sinus infection and topped it off with a work injury. I was one of those people who drove myself to do really well in my job and as a parent and was also very 'should be' about my marriage. So kind of perfectionist/type A ish. Seems like a lot of us who have had to learn to Pace pace pace ourselves with this disorder began with that kind of work ethic and an inablilty to keep it up.
Just mention this because your situation sounds like someone who is 'driven' toward excellance--nothing wrong with that--but you may need to slow down a notch there to continue on with this disorder as if it is fibro its not going away. You can work with it --learn ways to carry on and cope but Type A is not going to fly.
HOpe that is useful to you. will pray for you, God Bless, MaryView Thread
Very interesting discussion. I tried gluten free for a short time--about a month. I did feel just a little better at the start but it didn't seem to last. Maybe I should have kept it up--but it didn't occur to me to just do it partially--and at least get some benefit. Good idea.
I don't know if sugar bothers me, but I do think flour might.. I've been slowly reading a little book on cultured foods and it has sourdough recipes in it. I wonder if that might be better. Udi bread is good though-but its spendy and we do not have a health food store near here. There's one I go to in nearby city but its not a place I'd go very often.
I've had dry skin issues lately too--but I thought maybe it is from the hot tub. But then I thought maybe detergent--then realized I'd been using a new soap that has a scent in it--and I stopped that--and I think I got the culprit. Turns out as I get older I'm having more and more sensitivities too. I've begun to make more homemade cleaners and stuff. And looking for home remedies for things. Maybe our bodies just overload on the fibro and other issues and issues to do with RX meds?
Perhaps adding in white flour and sugar just is too much? MaryView Thread
Sounds like a nerve/muscle issue--which could still be fibro-- or not. I know that isn't terribly helpful. sometimes you just wait and see I guess. I was having some weird stuff for a while and eventually it morphed into more and more frequent things so I saw neuro & found out I had a new diagnosis on my plate..but sometimes it is just fibro. What it is right now--sounds like a 'wait and see' thing. MaryView Thread
I get widespread all over itching, have also had unexplained hives and get hives on my face from cold exposure.
If I take cetrizine (zyrtec) at night, I have no side effects from it but it zaps the itch. I discovered this accidentally as I was taking it anyhow for allergies. Unfortunately though this seems to be something I have to keep taking as all the itch and rash returns along with a vertigo type thing I get--'car sickness' from my ears filling with fluid due to the allergies I have. If I don't take my cetrizine within a few week or a month I will begin to have those issues again. mary Cetrizine is generic now--and you can get it OTC w/o an RX, I've been taking it since it was RX only, it is a bit spendy for OTC but the generic is cheaper pretty much always, even if you have coupon/sale for the zyrtec brand.View Thread
I really appreciate this info as I am looking for better topicals to use for fibro and carpal tunnel and deg. disc. Thank you, I've contacted them for more info and hope this is something I can use. MaryView Thread