I also have fibromyalgia and read posts on this board from time to time. I am always looking to try different things to make me feel better. I tried massages years ago, but they got too expensive and never gave me long lasting results. I, like you, feel wiped out if I do too much during the day. Perhaps learning to pace and spreading out tasks throughout the week might help. It's difficult to pace when you have to get things done, right?
Medications don't help me much and I've tried so many. I walk most days for about 20-30 minutes (brisk pace) and then rest afterwards. The walking has given me energy and increases endorphins so it helps with pain. Stretching everyday is important and I take a hot bath every night and stretch afterwards. I purchased a restorative yoga dvd and that has been helpful also.
During the school year, I work part-time in an early childhood program so I know how exhausting it is to work with young children and I'm no youngster myself. I have noticed that my pain level stays about the same whether I am working or not. The pain levels go up if I am not walking or stretching.View Thread
I agree, Nancy, it is a tough fight. I'm glad Savella works for you. It never helped me with pain. It just made me feel less depressed about feeling so crappy and was hard on my stomach.
I don't want to give up either. I fight this everyday, but some days are just so HARD. We have to keep searching for ways to help us, but the sad thing is that things I would like to try are very expensive and then you never really know if it is going to help you or not.View Thread
For those that have facial pain, you may want to try Lyrica. I had facial pain for years. The Lyrica that I have been taking for a few months has really helped that type of pain. I still have other pain, but the facial pain is much better.View Thread
I think there is a lot of confusion between fibro and myofascial pain syndrome. I don't think medical schools are doing a very good job in teaching them this. Devin Starlanyl does a very good in her books in explaining the two separate conditions.
If you have MPS. you need manual therapy to rid yourself of the trigger points. Lyrica, Savella, and Cymbalta probably will not do anything for you. If you have fibro, these drugs only have a 30% of working for you. I follow expert, Daniel Clauw, and he claims the fibro drugs are good for some people but not for most.View Thread
Thanks, Nancy, for the trigger point info. You definitely know what you need to make you feel better. After all this time, I am still learning. I am more fibro rather than MPS.
I have applied to participate in a study for fibro here in SE Michigan. It is a double-blind randomized study and involves nerve stimulation. It is Phase III. I am excited and I hope it is a "go". The doctor involved in the study was waiting to hear if it would be in our area or it they would go national.View Thread
Same her- after cleaning on Wednesday and cooking on Thursday, I was exhausted. We had a wonderful Thanksgiving dinner at home, but I also got stuck with the cleaning up because my crew went shopping shortly after dinner.
I think next year I will make reservations out.View Thread
I have read Starlanyl's first book and understand the differences between CMP and FM. With the right treatment, you can rid yourself of CMP (trigger points).
Nancy, I am curious about your trigger point therapy. Why do you have to get trigger points every 2 weeks? If a trigger point is eliminated through a trigger point injection or some other means like spray and stretch, would this be sufficient to take care of the problem area? Do your trigger points keep surfacing due to the way you move your body in your nursing job?
A couple of months ago, I saw my physiatrist and she offered to give me a couple of trigger point injections (with lidocaine) in my trapezius muscles that felt like rocks. The shots hurt, but helped to loosen things up a little bit. My doctor told me that she usually injects only a couple of areas each time. I think next time I will ask to inject my neck muscles.
From Starlanyl's research, trigger points are hard nodules that when pressed refer pain to other areas. I don't have that. I have tender areas esp. in the neck, shoulder, and upper back that are tender and muscles can get very tight. I need to designate time each day for stretching otherwise my muscles remain tight. Pelligrino has some great stretching exercises in his book.View Thread
If you are concerned about your DHEA levels, ask your doctor to check your DHEA-S levels. I have read that DHEA level are affected by the sleep-wake cycle and its release occurs primarily during Stage 4 slow wave sleep. Lab levels of Dhea-Sulfate can be measured to determine if you need to supplement.
The normal range for a woman between 25-50 years of age is 150 to 250 mcg/100ml. DHEA is also responsible for initiating muscle tissue repair.
I have recently seen an endricrinologist and my levels were low. I plan to start supplementing. My doctor told me that if my levels go too high, I will start growing facial hair (lovely).
DHEA is available at any nutrition store, but I would not recommend supplementing unless you have a blood test that shows your levels are low.View Thread
After taking Lyrica for a few months, my experience has been promising. I am up to 300 mg.per day and it knocks the pain level down a little bit. My thinking is clearer because the pain level is down. This is my second trial with Lyrica. I have not had any major side effects. I may ask my doctor if I can go up to 450 mg. to determine if the higher dosage offers me even more pain relief. I still have tender spots, but the Lyrica just knocks the pain down a notch.
I am wondering what others have experienced with Lyrica and if has been worthwhile for you.View Thread