Two weeks ago, I was worried because we hadn't had any rain while everyone around us had been getting showers and more showers.
Well, it's been raining at least some for the past week and a half with rain forcasted for every day this week too. Be careful what you pray for.
It would be great if some of this would go to the far west and douse those fires. I think the whole eastern seaboard could do with a break for a few days.
But the darn humidity is killing us. It's overcast and muggy all the time. It was cooler on Sunday, but the humidity made it feel like it was oppressively hot anyway.
Hope you are all in your own personal comfort zones. We're trying to enjoy our time with our younger son home, but the weather has been so enervating that I'm sure he's disappointed in the few things we've done together so far.
Hopefully, the next few days will work out better for all of us.
Sounds like fun. I would wind up with a loose greyhound. Imagine trying to catch the fastest dog on earth. Our beagle thinks he's Houdini. There's nothing to do but wait for him to come back--usually at dinner time--so we can hook him back on his chain.
He'll never make a house dog. He marks the furniture in the time-honored doggie way.
You read my mind. Between the crock pot (and have you tried the Reynolds crock pot liners--no cleanup!) and the freezer there is no way you should ever have to worry about "what's for dinner?" on a bad day.
My husband and his "girlfriends" (neighbors who appreciate him buying the seeds, plowing, and rototilling our garden and do all the weeding and picking) supply us with lettuce and other salad greens in the summer along with beans, beets, broccoli, and sweet corn for the freezer. They can tomatoes and pickles and applesauce and peaches supplying all ingredients. We get 1 jar from each batch. The girls take turns and everyone gets some of everything (including the work). When we add this to our farm-grown beef and pork and the potatoes and onions stocked in the cellar, we are really ready to do almost anything all year long.
All hubby has to do is bring me the fixings to throw in the crock pot. If he forgets something, I can always open a can or two of soup.
I'm not sure whether the pain is any less intense or whether we just get overwhelmed with the fibrofog (is it early onset dementia?) or the fatigue (when is the last good night's sleep?) and the irritable bowel (where's the bathroom?) and the consequent feeling as if EVERYTHING were out of control.
Yes, the pain is always there. But you're right, it doesn't SEEM as important. Theses hot, muggy days seem to be designed to make the fatigue and fog more and more all encompassing.
Mayville, OF COURSE colds are worse for those of us with fibro. Our periods are more painful. Our sunburns hurt more. Our bodies have a heightened response to pain. And we also have chronic fatigue (with or without chronic fatigue syndrome) and no relief from what sleep we actually get.
That is just the way it is.
But, we can take all the normal cold "baby the patient" measures. We can rest and take our vitamin C and zinc. We can take that sick day or two off work.
What we can't do is tough it out and think that will work.
Sounds like you've got just about all the little add-ons FM can bring. Fun it's not.
Try to hang in there while the pain doctor is tinkering with your meds. You may find that there is a regimen that allows you to function--not at your pre-fibro level--but better than you are doing now.
Stick to your job for as long as you can. You need it for money, companionship, money, the pride of doing a job well, money, and more money. Every day you continue to work is another day of credit towards your benefits when the time comes--whether it is when you reach your 60's or much sooner.
Give this doctor a chance to get to know you and understand that you are not looking for a get-out-of-work-free card. You are a complete stranger to him. He has to be convinced that you are willing to work with him towards getting your conditions in check. He has to understand just how bad your bad days are (If, that is, he CANNOT help you get a lot better). He has to know just how many bad days you are having.
My pain doc was the one who suggested, first, a 6 week medical leave (I was lucky enough to have a PAID leave.) and then that I apply for SSDI. Unfortunately, she moved to be close to her family, and I had to find another doctor and again build up a relationship of trust before I could count on my new doctor's cooperation in this.
If I had not waited those 2 years (yes, 2 whole years!), I would have eventually gotten my SSDI--at a much lower amount. But, I would NOT have gotten my NY STATE Teachers' Retirement System until I reached 65. The NYSTRS monthly check is higher than my SSDI check. Those 2 years were far from easy, but they have made life a lot better for my husband and I now.
Work every day you can. Keep working with your doctor to make those work days more tolerable. Then, if you must go on disability, you will do so knowing you did everything possible to continue working. You will have solid documentaion that you can NOT work, and you will still have a good, reliable pain specialist working with you to help make your non-working days as pain free as possible.
After all, your pain will not magically stop just because you no longer work.
Bette (the lady who drove home on her last working day with her hand covering her left eye to stop the double vision and then crawled into the house)View Thread
Oh, MiMi, you are so right about doctors not knowing everything. During the tail end of my first pregnancy, when the clinic visits were every week, the ob/gyn told me the baby would be coming any day, to make an appointment for next week, but that the baby would probably be here before that. Of course, he wasn't. On that next visit, the same doctor said he thought it would be a few weeks. I didn't make it the 4 miles home from that visit before labor began.
But, of course, you, DH, son, D-in-Law, and most importantly baby are already in my prayers. Our church group has a prayer chain, and your family has been anonymously on it ever since I first read your posts. We pray for "M" and her family.
I took your advice and am trying the P5P. It's too soon to notice any change, but it was certainly worth trying.
Here in the US most of us with burning type pain are treated with Neurontin (gabapentin) a medication used to treat neuropathic pain. Many diabetics use this for their neuropathies.
What does your doctor say about this burning pain? It sounds like neuropathy to me, but what do I know.
Do cool compresses help with your pain? They might help with the burning.
That just gave me an idea. Is there any chance you have a bad sunburn? Most of the Irish-Americans I know have very fair skin. It burns so easily that one friend wears long sleeves all summer. She has a wonderful collection of really broad-brimmed sun hats too! First aid for sunburn is vinegar or a spent tea bag after it has cooled down.
Hope you achieve relief soon. When you do, please let us know what worked for you. This way we can all help each other.
We live 10 miles south of the Villiage of Wellsville in the Shongo valley. The next valley south is Genesee, PA. It is very rural. I welcome our visits 100 miles north to visit our son. Mostly to see him, but partly to shop and do other city-type things.
Canandaigua is a beautiful small city in the Finger Lakes. It is a lovely place to visit at the northern end of the wine country.
The spine has improved from Saturday's standing in line at the restaurant. I can sit reasonably comfortably. Standing is still a pain.
Son is already chomping at the bit to go into town and see his friend in the music store. That will have to wait at least another day for my back to tolerate car time.
It's hot and muggy here too! Chance of showers all week, but no relief from them. Bummer!
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