I sure hope you got that pool up and running. If your weather was anything like ours, you needed that pool today and will need it all week.
About the stickers. My DH (no, he does not rate having those words spelled out on this one) is an avid hunter, NRA member, and Republican. I am none of these. He gets stickers and threatens to put them on my car. Every now and then, he just plasters them on.
Warming them with a hair dryer makes it easy to remove any outdated or obnoxious stickers. Believe me, I know.
I once had a wrist ganglion that sounds a lot like your "bump."
Back in the old days, you'd find a large, heavy book and slam it down on the ganglion. It got rid of the ganglion. According to the surgeon who removed mine, the book "treatment" was very effective at breaking wrists and minimally effective at curing wrist ganglions.
Mine was a nuisance on my left wrist. It was always being irritated by my watch. I use the leather-banded type because the stretchy ones hurt. The watchband was always rubbing and catching on the ganglion.
So, now I have a small scar on the left wrist. It matches all the others elsewhere and most people think it was from carpal tunnel.
I am not looking for health insurance now because we were able to continue my husband's when he retired. If I survive him, I will have to find my own insurance because his dies with him.
Many of us have left our jobs early because of the disability of fibromyalgia. This leaves us with drasticly reduced incomes and precious little to spend on insurance.
At the same time, we desperately need this insurance. This is especially true because the fibromyalgia and it's attendant syndromes cause us to be frequent users of medical assistance.
We take multiple prescriptions. With fibromyalgia being one of the more recent contitions to come to the attention of the big PHARMS, most of the fibro-specific medications are still under patent and unavailable in generic form.
Then there are all the wierd things that pop up in those of us with fibromyalgia. We get severe headaches. Sooner or later this leads to CAT scans and then to MRI's. We have irritable bowels. There are many other diagnoses that must be ruled out. We have X-Rays, colonoscopies, barium swallows, and upper G.I. scopes. We get chest pains. We spend the night in the cardiac unit and go home with holter monitors. It's the intercostal muscles in our chest, thank goodness.
While this is going on, we are probably averaging 2 hours of real sleep a night. We have sleep studies. Of course, we don't actually sleep during the studies, so they have to be repeated with a little Ambien (which will probably take effect about the time the study is over).
In short, we NEED medical insurance. We probably cannot afford it.
Leaving a job you love and never wanted to stop is just one more toll fibro grants us.
I loved teaching my handicapped adults. It was teacher heaven. But I could no longer cover 2 counties with 12 grades of books in 5 subject areas in my car.
You were forced to make that same decision. In a way it was like losing a loved one with grief, anger, and all those other emotions added to the pain and stress of your fibromyalgia.
Some days, it seems as if you have all you can do just to get up and visit the bathroom. Other days you can do a little light (make that very light) housework and even cook a meal. But you never know from one day to the next how you will feel. You cannot make plans. You cannot commit to even fun things like meeting a friend for lunch.
No wonder you are depressed. If you weren't depressed the shrinks would diagnose you as being apathetic.
Now use that agile brain of yours to find some ways to MAKE each day meaningful. Keep a diary. Re-read all your favorite books. On good days, take a short walk. Cook enough food to freeze another meal or two on those days when you feel well enough to make a big meal. It doesn't take any more of your energy to cook a 6 lb. roast than a 3 lb roast. And get some of those Reynolds bags for your crock pot. No clean up.
Get your doctor to give you a handicapped parking permit. It may seem silly, but it does make a difference. If you know you won't have to lug those books ALL THE WAY to that parking place 6 slots over, you may visit the library on a day you wouldn't without the permit. And think of all the times you are having a day out when the fatigue just descends on you. With your car nearby, you are not caught with no energy and a long walk to your escape.
We have limited resources. We have to use them wisely. Do not waste them on maintaining a spotless house or doing activities you hate--unless they HAVE to be done and you are the only one who can do them.
Boop, try to make each day a little better. These little bits add up.
It does not matter where our FM begins, although this news about the hands is very interesting.
No matter where it begins, FM screws up our neurological connections. We feel pain from things that would not really bother others. We transmit pain signals from nerve endings that used to feel things like a light touch or the temperature of the air on our skin. These nerve cells have been transformed into pain sensors.
Once the pain signals reach the dorsal root ganglia--the branches on either side of the spinal cord--they are amped up by substance P and other neurochemicals that make our brain think the pain is even worse.
At the same time, our brain is not sending other neurochemicals back down the spinal column. These substances would have (if they had been released by our FM affected brains) toned down these pain signals.
Perhaps this whole cascade of missent signals and having the wrong chemicals working in our bodies began in the many, many sensory cells in our hands. (After all our hands do explore all sorts of sensations for us--hot, warm, cold, soft, hard, furry, bald, sharp, dull, and countless others.) This means tht we start out with many different types of nerve cells in our hands and lots and lots of them. If different types of sensors in our hands started to change into cells that could only sense pain, they could overload the whole system and cause it to go into a panic like state of "Pain, pain. Where is the pain? Send out more pain sensors! Search the whole body." Sort of like an attack in Star Wars. And if lots and lots of pain sensors are sent throughout the body to look for pain--sensors that can only detect pain--they will find pain. Dr. I. Jon Russell likens it to dropping a ping pong ball on your foot and the sensors telling you it was a bowling ball.
Oh, Cory, those ear infections are bad news. My younger son got one every time he had the slightest cold. Then he became allergic (hives!) to the ampicillin. Poor kid, he would get a temp of 102 and just be miserable. He usually got diarhea at the same time--even without the antibiotics. He still gets one or two a year at 41.
So sorry about that incompetent boss of yours. The bad part is that YOU are the one who will be responsible for any work you do incorrectly simply because no one showed you how to do the job the right way. That's the way that major mistakes are made, the kind of mistakes that cost the company big bucks. You are in a bad place. The stress of it all is not helping your FM. Are your wrists at least behaving themselves a little better? Thank goodness you have great coworkers. That helps a lot.
MiMI, it will be interesting to see how the summer vacation plays out with your dear grandaughter. The custody judge should see how much happier she is with you and her father. There must be more to her love of time with you than the sheer novelty of things. If only the judge would sit down with her and just talk. Hope the nicer weather brought you a kinder, gentler dragon (fibro) today.
Cece, it's only fair that your sister help with the decisions that will have to be made for and with your folks. It is a big responsibility and should be a joint effort. Are the places you visited last year any help as a starting point? Have your parents come to understand that their present situation is not the safest and best one for them anymore? You certainly do not want to be in the position of pressuring them to do something they will reproach you for. I hope having your sister around is something that eases some of your stress and not just one more hassle. (As a visit from MY sister would be.[That size 8, Barbara Mandrell look-alike>).
Debbie, you have my condolences. I have trouble when the temp hits 75 or so here. And like I said, at 69 I still have to wear long PJ's to keep my legs apart--shaved or unshaved. I need those thin pants too. I cannot wear shorts or skirts, because I feel the air on my legs and just cringe. What a wierd feeling.
Linda, what a grandmother you are. Any kid would be lucky to have someone who takes him bowling AND introduces him to a few dozen fireflies. It sounds like fun. Tiring fun, but fun. You can rest later. Right now your're depositing memories in your grandkids' memory bank accounts--and in yours too. What a perfect summer experience. Hope the 12 year old (your helper) can spend time with his cousins having fun and getting to know each other as family. Growing up, my grandparents were quite old, but all 5 aunts would invite me to spend at least one week with the cousins. It was great doing things in another household. We went to 3 different vacation Bible schools, picked out patterns and fabric and sewed new school clothes, picked blackberries, and splashed in 2 brooks. What fun!
Mary, hope this is the start of a protracted spell of flare-free living. Whatever you're doing, bottle it up for the rest of us. Hope your weather is perfect for you and your fibro. Try to enjoy your good days gently, but thoroughly.
The books all talk about how fibro hits us at any age, but usually in the 20's and 30's. This means that most of us have to muddle on through fatigue, pain, fibrofog, and the disbelief of others during the years when we are expected to be at out best.
We complete our educations. We get jobs. We fall in love. We bear and raise children. We participate in church and community affairs. We support our extended families.
And we do all of this in spite of our fibromyalgia. We do what we have to do.
One day, perhaps years--or even decades--later we get a name for this thing that has been such a part of our lives: Fibromyalgia.
But, so far, this name is of little use to us. Does the naming of our malady mean that we now know its cause? Does it bring a definitive treatment? Does it bring universal understanding that we have a condition as debilitating as MS or diabetes--two other invisible illnesses what were once so misunderstood?
No. It does not.
Please take the poll below. Let's see how much of our lives FM is impacting.
Sometimes, in our effort to go low fat or lose some weight we just go to far. Is it possible that you are not getting enough of the fats your body needs?
The skin is the first place you will see this deficiency. All the creams and lotions in the world won't help if your body needs you to add good fats to your diet.
Good fats include fatty fish like salmon, nuts, seeds, flaxseed. You can also add fish oil or flaxseed oil supplements for a little insurance.
Another thing that may be a problem is that your skin (that giant protective organ with lots and lots of pain sensors on it) may have been sensitized. A friend I met in aquatic therapy had to wear silk long underwear all year long because of this. She got some relief by seeing a skin desensitization therapist. (No, I have NO idea how you'd find one of those.) But you might try the silk long johns. (I can no longer wear nightgowns, but need long legged PJs all year long. I'm ok with silky nylon or polyester, though.)
Sometimes I liken believing in fibromyalgia as believing in God or whatever higher power you worship. No one can see it. No one else can feel it or smell it or taste it or hear it.
Unless we have some additional malady like rheumatoid arthritis, we are not swollen, we don't have red, inflamed looking joints. (Although we may have inflamation.)
No one can feel our migranes. No one understands how one day our irritable bowels have us camped out on the bowl while another time we may go 4 or 5 days with no BM.
And then there's fibrofog. Most of us cannot even describe how that effects us. On a bad day, we cannot think of the right words. On a good day, we're still at a loss because our nervous systems are still being bombarded so many other ways.
I hope that it helps to know that HERE, IN THIS PLACE WE UNDERSTAND. WE KNOW THAT YOUR PAIN IS REAL. WE UNDERSTAND THE OVERWHELMING FATIGUE YOU LIVE WITH EVERY DAY. HERE, IN THIS PLACE YOU CAN SAY ANYTHING YOU WANT TO OR HAVE TO, AND WE WILL UNDERSTAND.