I haven't been on in awhile, I broke my wrist so typing is super slow! I was taking Colby (black lab/bloodhound, 1yr old) down the back steps and she saw a rabbit need I say more, lol. anyway I have been having lower back and hip pain, but since we have fibromyalgia it is difficult to know what exactly causing the pain. so my doc at the va hospital (I broke my pelvic bone in usmc in 1996) took some xrays and I have 2 bone islands and osteophytes on my hip bones. some websites say bone islands are ok and just a normal part of bone changes, others say get them checked bc they could actually be something else. I told my hand surgeon about the xrays and he said they are nothing to worry about, but my hips and lower back ache terribly. anyone had any experiences/advice for me? thank ya'll so much for being there and all the support and help!!View Thread
you are not alone!! I was dx with fibro 4/29/2013 but I have been hurting for years and all this time my docs were telling me it was depression. it is clearly a horrible mix of fibromyalgia, depression, anxiety and arthritis. I think I have vitamin d issue too, mimi (on here) said that I should check both vitamin d and B, so I will be doing that for sure. I think my thyroid level is a little high too, have you had yours checked? the new levels are 0.5 to 3.0 versus 0.5 to 5.0 (mine is 3.11).
I have a rheumy but he said "here is some tramadol and take your time with things and go to work". wow really, sounds great right lol. my pcp has me on Cymbalta, meloxicam and trazadone along with the tramadol from the rheumy.
I am going to see a pain doc because the pain/stiffness in my neck,back and shoulders is ridiculous. I want an MRI to see if there is some arthritis in my spine or something.
you might want to have the small bumps checked out, I don't know if rashes come with fibro, but I have had the craziest rashes myself over the past 2 years that I have never had before and it seems that is when my symptoms of pain got much worse, over the past 2 years (docs blamed on dermatitis or meds reaction)
try to keep your head up and know you are definitely not alone, I do understand and you will definitely be in my prayers. focus on little things and slow and steady wins the race!!
first i want to say to all of you that you are amazing and thank you for sharing your fibro peeves! i am only 37 but was dx with fibro on 4/29/13. i have been feeling the worst i have in my life since 11/2012 and they tested me for everything (ie: MS, lyme, lupus ect) anyway i hate fibro but at least we know what is making us ill, it was scary for a few months not knowing what was going on. today, right now, my pet peeve with fibro is the pain and fatigue. tomorrow will be different depending on which piece of this disease flares up. i haven't found my recipe yet that helps the most. i still have lots of work and research and dr. appts to go to on this journey since i am new to this....please keep posting, giving advice, being supportive I GREATLY APPRECIATE IT!!
you are amazing, no i have never met you, but in these words you are amazing, i will reread this post for sure. i needed to find this post and hear these things WOW, thank you so much for you grace, motivation and intelligence!!
right mimi "normal" ha ha :0) I am going to see an endo shortly and be retested since my moms thyroid did not work for years, so I have been trying to keep an eye on mine. chronic fatigue makes FM more fun I am sure, but yes I hear that vitamin B1 might help some with the fatigue. now that I am able to rest when I need to since I am not working, that has helped and I actually have some motivation to be able to keep my house fairly in order, thank god for my 2 girls (10 and 14) they truly are amazing and help me soooooo much! my husband is the BEST, he really does support me and checks on me everyday during his lunch hour to see how I am feeling, it makes me feel validated and respected. I am very blessed to have my family.
thank you for responding to me and take lots of naps mimi and thank you too for responding DebraBrooks! thank you so much for the advice and recommendations, i definitely need them!!
hi deansmimi, thank you for replying, I will be going to an endo here shortly so they can retest and let me know. my mom was on synthroid for years since her thyroid did not work at all so I have been trying to watch mine in the past few yearsView Thread
hi Mimi, thank you for replying! sorry about the weather for yall in NC, I am in VA and it is just horribly hot here, but the sun is out so it is better than rain, especially all the rain you all are getting. I will definitely tell my doc to check the B and D vitamin levels. I also need to check with you or any other members to see if yall get extremely tender finger tips, I don't get it, but I do usually get the usual soreness everywhere, but extra sensitive finger tips is different for me. this typing is painful, but I really want to reach out about this. also I have a small lump on the left lower side of my back, got any ideas what it could be? I am going to request an MRI for my whole body because I think I have some bad arthritis along with the FM. I broke my pelvic bone in 1997 in Marine Corps bootcamp and have had 2 daughters and of course have gained quite a bit of weight since then. my doc will probably have my back but I don't feel that my rheumatologist will when it comes to disability. I will be applying for disability within the next month or two, and I wam going back to the Veterans Hospital as well for some appts with them because I am going to try to get a higher rating since my doc thinks that I was probably supposed to get FM but because of the trauma the Marines put my body through he believes it has pushed me to get it a little earlier. anyway, I will keep you all posted and please let me know your experiences, opinions or advice. thank you!View Thread
hi ya'll I am new here but have been "cruising" the discussion boards for awhile now. I have been in horrible pain and completely and utterly exhausted irregardless of activity since November 2012. went through all the testing--lupus, lyme, ect and my rheumatologist diagnosed me april 29, 2013., anyway the fibro SUCKS!!!! I just lost my job in June due to missing so much time, it went like this april 29 fibro diagnosis, may 25 my mom passed away, june 10 emergency surgery for perianal abscess....fun fun....you look fine but inside your body is losing it, I am only 37, but i was in the marine corps and broke my pelvic bone in 1997, had 2 daughters (my oldest born in 1999 was 8 lbs 6 1/2 oz and broke her collar bone during delivery and my youngest born in 2002 was C-section because she was 10 lb 6 1/2 ozI think I need an endocrinologist too because my doc says my thyroid level is 3.11 and I guess the new normal levels are 0.5 to 3.0, what pain meds seem to work for ya'll? I have taken tramadol which does not work, vicodin which works but I am afraid to take it for too long because of addiction, I take Cymbalta which helps and keeps my appetite down so I don't gain weight which I know will make my pain worse, I am super depressed and my anxiety is through the roof, out of a 0-10 scale I stay at a 4.5/5 but can get as bad as 8.5/9, cant concentrate, surely can work anyway ( I have been in accounting for 12 years) because I drive 45 min one way and with fibro sitting that long is a joke, and I have to concentrate because this is someone elses money, I cant take any type of pain meds and think or drive. I have to take breaks doing laundry, dishes all the simple things to take care of my house, you know like a normal mom would. I HATE THIS! what now????????View Thread