Dear, dear Mimi, thank you for the continuing story of your GS and his progress. There's hope yet for us; the DS's latest GF is only 25 and probably plans on a family someday. Now that he's finally discovered dating, there's been quite a string of ladies at our Sunday table. I'll say this for him, he dates one at a time.
DH was haying over the weekend and Monday. He's trying to get every last blade of grass he can before our first frost. Here in W NY that can come as early as Sept. 1, but so far we've lucked out. Last year he had to buy some hay to get the cows through until Spring. That hurt. Added to the cost of all the mechanical breakdowns, farming is not a paying proposition.
For several months my Caravan has been squealing after I use the brakes. Nobody could find the cause. Yesterday I took it to the dealer and found that the axle boots were damaged. Hope this can be fixed before Monday when I pick up our younger son in Rochester (200 miles round trip) for his semi-monthly visit. He's getting anxious to get out of his group home and back into a supported apartment again, and has figured out that he can take 10 days from the end of one month and 10 from the beginning of the next month and still spend 21 days a month at his group home.
This is just one more reminder that there are still consequences of my going on SSDI back in 2000. Boy, do I miss being able to replace my vehicle when it goes off warranty. I can deal with an expected monthly car payment much better than unexpected repair costs and worry that I could be stranded on the road.
If you are working, please try to stay working as long as possible. Every year you tough it out makes your ultimate income from SS and any pension a little bit bigger.
If this is impossible for you, understand that the decision--no matter how necessary--will effect you and your family for the rest of your life. No one can predict how much it will really take to live in your home 20 years down the road.
I am so thankful that I did manage to tough it out long enough to be vested in the Teacher's Retirement System. This benefit is almost equal to my Social Security and makes a big difference. However, the combined amounts are still only about half of what my salary was and much less than they would have been if I had been able to stay working to 67.
Flares are the worst! By now, you should know enough to pare down your activities during a flare. Believe me, your family won't care that you did not vacuum the living room. They'd probably love to have a frozen pizza and bagged salad for dinner. (I tend to get dinner on the table and then go to bed, but my husband and grown sons don't need me to get them bathed and pajammaed.)
When this flare passes, it is time to prepare for the next one. Fix extra portions and freeze them when you do the Sunday roast. Dust off your crock pot and buy some of those liner bags. Don't laugh, but I line a crock and throw my second meal into the bag. My crock fits in the freezer. The next day, I twist tie the bag, remove the crock, and put the bag into a Zip-Lock. If the veggies are better separate, put a piece of foil over the meat and potatoes, then add the veggies. Always have something in the freezer that can go in the crock to make a complete meal. It's cheaper and better than the frozen pizza.
I often know when a flare is going to come on. I have found that the judicious use of Flexeril (benazepril) BEFORE the flare starts can sometimes prevent it from coming on. I carry Zicam in my purse and use it in the first hour of cold symptoms since a cold usually starts a flare for me.
Do what you can to weather this flare. If you don't own a heating pad, try putting uncooked rice into a zip-lock and warming it in the microwave a few seconds. (My hand therapist had me put the rice in a bowl to squish my aching hands in. Boy, does that feel good. If cold helps your aches, remember the bag of frozen peas in the freezer. Hot or cold, wrap the pack in a towel so you don't hurt your skin.
Please get as much rest as your schedule will allow. And when it's all over, remember to thank the Lord for your deliverance.
I think that this is a half and half question. Most of us have some kind(s) of regional pain that STARTED the neurological changes that are called fibromyalgia. For me, it was low back pain. And the opiates DO help with these types of pain. At the same time, they do not help with the sleeplessness, the brain fog, the general, bodywide aches of fibro.
For me, I am much more able to deal with fibromyalgia when my constant, unrelenting back pain is controlled.
And who wouldn't sleep just a little more soundly if her major pain was eased to a manageable level?
If you can, give your Lyrica a longer trial. Try to finish out your month's supply. Many of the symptoms you are experiencing may subside, and the Lyrica may be able to help with the many parts of fibromyalgia that aren't exactly "pain" but are "a pain."
Hi. I have been to two different pain clinics over the 40 years I've lived with fibromyalgia.
Clinic #1 was 100 miles away. On my first visit, the doctor recommended I try essence of royal bees and melatonin. Being the desperate person I was, I did both and came back for more. I spent 2 years travelling every other Friday to this woman who gave me trigger point injections from a 60 ml. srynge with a wide-bore needle. Then Clinic #2 opened.
Clinic #2 is about 10 miles from home. On the first visit, I had a one hour visit with the doctor. He asked me about my mood, my pain, my sleep. He prescribed flexeril and asked me to come back in 3 weeks. In the 10 years since that visit, there have been times like the one you are now going through, Grumpy. I always had extra painkillers available to use as needed. I've had plenty of trigger point injections. I've had nerve blocks. I've had a spinal stimulator inserted and subsequently removed. (I blame the surgeon for bad placement.) I have had Radio Frequency Ablation in the past year, and am now stepping down on my medication.
I hope and pray that you find a pain clinic like #2. Please do not be surprised if a new doctor who does not know you well does not prescribe painkillers right away. Doctors take a big risk when they do prescribe opiates. They must know that you will use them responsibly.
But that wait can be worth it. And, think about it, do you want some quack pillpusher (think about Michael Jackson), or do you want a reliable, capable doctor who has lots of ways to help you find a less painful life?
No one will ever forget that day. Here in W NY we could have felt safe and unaffected, but we didn't. Those horrible acts were meant to bring fear into our hearts. What they really did was remind us all that we are all Americans. It doesn't matter whether our families have been here from before the Revolutionary War or if we have just recently immigrated. We are a nation of many different colors, many different religions, and many different cultures. But, when push comes to shove, we are all Americans.
Pearl Harbor brought millions of Americans to the military induction centers on Monday, December 9, 1941. (My father was one of them, although he wasn't a citizen yet and spoke with a strong German accent.) That horrible attack brought our country together in ways no one could have imagined. In or out of uniform, all Americans contributed to the war effort.
Those of us who are old enough will never forget the day that President Kennedy was shot. Republican or Democrat, it made no difference. Our nation was in mourning. No one who lived through that terrible time will forget the image of Mrs. Kennedy standing there with little John-John on her left and Caroline on her right, veiled in the grief we all shared.
Horrible things do happen. They effect us all. They live in our memories. But Americans are tough. We are strong. We are capable of forgetting the many things that divide us in our day-to-day lives and pulling together. Then we become The American People. And The American People are one indivisible force for good in a world that can sometimes be horribly evil.
Please be sure to always take it easy after your nerve blocks.
Talking to others who have them I have found that those whose blocks worked are the ones who went home and rested the rest of the day.
Some people go home feeling pretty good from the TEMPORARY blockage of pain by the anesthetic that was in the shots. They do all the things they couldn't normally do, because they feel good. Then they feel bad the next day and complain that the nerve blocks don't work.
Be gentle with yourself. Then you'll see if the block worked for you.
I've always said that this was a neurological problem, not a rheumatic one. We feel real pain from things that are not physically there in the areas where we feel the pain. (Your arm is sore, but there is no obvious reason for it. This means that our brain is sending that arm a message saying, "You hurt!")
Yes, many of us have weird hormonal changes. Yes, our capillaries are not working correctly. But all the crazy things that go together and add up to be fibro HAVE to be centrally controlled--or mis-controlled.
As more f-MRI and other diagnostics show the changes in our bodies, I hope that we will find out exactly what is going wrong. Then there will be hope of fixing it--and us.
Mel honey, had you been using those feet a lot right before they started bothering you? Had you been sitting on them while you curled up on the couch or leaned on them while you planted your garden?
Carpal tunnel syndrome is the result of overuse of specific muscles in your hands. Tarsal tunnel syndrome effects your feet. I had that, and my podiatrist did surgery that corrected it. This was 24 years ago, and I've had no trouble since.
Hope your problem is diagnosed and solved just as well.
It has always amazed me how active most of us can be despite our fibro. Today I was one of you.
My sister-in-law will be visiting us this weekend. It's her first visit in at least 5 years. We've gone down to see her, but she had other obligations.
Our guest room is upstairs! Today, I walked up those stairs for the first time in those 5 years. My DS had dragged the canister vac and all its attachments up for me, but I'm the one who stripped the bed, carried the sheets, blankets, curtains, comforters, and pillows down to throw all those loads in the washer and dryer. I'm also the one who climbed back up those stairs between loads and vacuumed the ceilings, the walls, the floors, the mattress, and every surface I could find. (Me who hasn't vacuumed in years!) That room is now the cleanest one in our house!
Folks, I've had fibromyalgia since 1972. If I can feel better at 71, it is possible for you too! Never give up. Explore the latest in pain research. Get that pesky body part that always bothers you seen to. Work with your doctor to get your sleep back on track. LIVING WITH LESS PAIN IS WORTH EVERY EFFORT.
You are worth it. Be good to yourself.
P.S. I know there will be bad days in the future. I just can't believe that today is not one of them.View Thread
My hip was operated on July 29. I just finished my physical therapy. The right hip is now my good one. (After all, the other one is 9 years old.) It seems to have helped my spine--once I figured out that I now need a lift in my left shoe, instead of the right.
If anyone in SW NY or Northern PA needs a place to have orthopedic work done, try Cole Memorial in Coudersport, PA. The surgeons are top-ranked, the nurses on the floor are great, and the physical therapists are the kind who understand if your fibro is giving you a hard time today.
Remember to think of all those who went before us and fought for the 40 hour week, overtime pay, sick days, and paid vacations. It's easy to forget about them while we are enjoying this last summer weekend!