MiMi, you are so right. Let's hope that there is enough research that has already been done on Vitamin D so that it is only a matter of coalating existing studies as opposed to having to start from scratch and take another 10 or more years.
Speaking of the news, CBS covered another breaking story about one more gunman wrecking havoc. This time it was in Ft. Hood (Texas) again with no real facts known. Let us all pray for a swift and peaceful end to yet another episode of senseless violence.
Unlike you, my eyes have been bad all my life. I got my first glasses when I was 7. I had astigmatism in both eyes AND my uncorrected vision was 20/400 in both eyes. All I saw on the chart was the big "E." Since the surgeries, I see 20/30 in both eyes. I can drive without glasses. What a blessing! (I had previously had LASEK surgery done on both eyes--to remove the weight of glasses from my fibro face-- but the cataracts undid all that good work. Believe me, after LASEK, the cataract surgeries were nothing!)
Some people have a little irritation for a week or two after the surgery. I had none. For me, it was like a miracle with no drawbacks. I hope you will do as well.
You know, there are plenty of people with fibro for whom the condition is an inconvenience but no more. Those people don't seek answers here. We are the ones whose lives are effected and affected by our fibro. As you may have noticed, we are all different in where we hurt and what helps. Some of us have problems with even the most minor surgery. But many of us do not.
(Don't you think that with things like orthopedic surgery--knees, hips, etc.--the success of the surgery depends a lot on the aftercare--physical therapy, wound care, etc? In this vein, if you use your eye drops as directed, if you take any antibiotics prescribed, if you come back for your follow-up visits, don't you think you'll have the best chance of a great outcome.)
Now spend the time before your surgery getting in the best physical shape you can be in. Healthy bodies heal best. Eat more good stuff and less junk. Walk as your body lets you. Practice relaxation techniques. All this will help you and your fibro to have a nice, quiet, uneventful surgical experience.
Nola, honey, you have a rough road ahead. I am so sorry that this is the way it is for you, but we cannot change what IS. All of your symptoms are typical for fibro. Your reactions to the various meds are typical, too. That's the bad part.
Now here's the good part. As you get to understand your own body and its personal limits, you will be much better to control your fibromyalgia. You will recognize the doctors that really want to help--and those that are just patronizing you. You will be able to tell much better which side effects you can live with and which you cannot.
You will always have to weigh your expenditure of time and energy. (Is this activity worth the pain I'll have tomorrow if I do it?) Again, you will be much better able to judge what you can or cannot do without paying a price.
I was in my 20's and late in my second pregnancy when my fibro began. That was 42 years ago! Life has not been super easy. On the other hand, in the last 42 years I have nurtured my marriage of 46 years; I have raised two wonderful young men; I have earned an associate's degree in Chemical Technology, a bachelor's degree in Biology, a master's degree in Reading, and permanent NY teacher's certification; I have taught Adult Basic Education and High School Equivalency classes for 11 years (meeting some wonderful teachers and students in the process); and I have learned to adapt to life with fibromyalgia.
Please start to think of your life as a challenge instead of a curse. Some days you need a walker or a cane. Use them. Some nights, you are too exhausted or too achy for lovemaking. Tell your dear husband how much you love him and how much you value his love and understanding. (Try to laugh with him on those occasions when you have the energy to begin lovemaking but become "too pooped to pop" much too soon. It happens.)
Would you love your husband less if he were disabled? Would you look down on him because he couldn't live the life he enjoyed when you first met? Of course not. Neither would your husband feel that way about you. (There WILL be days when he mourns the way things used to be, but he is only human. The solid core of HIM will always be with you.)
You are young. You are adjusting to a life you could not have imagined in your wildest dreams would happen to you. Be kind to yourself. Let your husband have some quality parenting time with your little one. He may b**ch now, but he will thank you in the future.
And about the future. You have learned that your life at McDonalds is difficult. Start planning for something that you can do--and enjoy doing--for the rest of your life. (Or as long as you and your fibro can work. Many of us have to go on disability before we expected. I did. But I thank God every day that I prepared myself for a better work experience that ultimately provided me with a better financial situation when I did go on disability.)
Fibromyalgia is no picnic. We all know that. Some days are just horrid. But, as you learn to know and respect your body and its limits, you will learn to treasure the good days. And there ARE good days. Do some little thing to make each day good. Look at the blue sky. Listen to your kind of music. Be silly with your daughter. Savor a favorite food. Become aware of all these wonderful things.
And feel free to gripe here in this community. We understand.
I have had cataracts removed from both eyes. The first time, I was wheeled back from surgery and had to wait 1/2 hour in the recovery room. The second time--just 1 year later--I walked out of the surgery into a room across the hall where they put some more drops in. Then I was immediately released. Progress. You will probably have all the usual pre-surgery stuff done--IV in, gown on, etc.
Cataract surgery is the safest surgery there is. The risks of complications is very small. Check out your doctor and your hospital. If they have good records, go for it.
(My doctor used two different types of implanted lenses. Now I see up close with my right eye and distance with my left. But they work well together.
Nasty day ahead for us. Rain turning to a mix this evening. We're still going to Olean (34 miles) to take our younger son to dinner at his favorite restaurant.
Have been feeling cruddy for the past week or so. Hopefully things will get better soon. Light headed along with the fibro pain in all the usual places and alternating sweats and chills--but no fever, no sore throat, no cough or other obvious cause.
None of the above affected my pre-surgery checkup. I'm good to go for the right side RF ablation. I won't miss those nerves while they are gone. They've been screaming "PAIN" too long.
Hope you all have a pain-free weekend and a great week.
The day I got my acceptance notification for SSDI, I went out mattress shopping. Believe me, I really tried them out. I'm a side sleeper, and there is a big difference between the depth at my shoulders and at my waist. I found an adjustable air-filled mattress (like the Sleep Number, but for half the price!)
I'm not going to tell you I suddenly started sleeping all through the night, because that just ain't gonna happen. What I did find was that I no longer got up in the morning with my back sorer than it was the night before--now it gets worse as the day goes on and I am tired out.
That was April of 2000. My bed LOOKS all saggy. But it FEELS great still. Anytime I want to make my bed LOOK like new, I just crank up the air. Then, that night, is just reset it to my much softer setting.
I don't think that there is one type of bed that is right for everyone. You just have to find the one that feels right for you--and hopefully for your partner, too!
About the migraines, if they are coming back often, it would make sense to figure out what is causing them rather than taking more and more medicines.
It took a while, but I found the cause of my migraines was the weight of my thick glasses. (My vision was 20/400 in both eyes. All I could see on the eye chart was the "E".) I had LASEK surgery on both eyes and haven't had a migraine since--almost 15 years!
There was a physical reason for my migraines. As long as those glasses were there, so would the migraines be. If you go about it logically, you should be able to find the reason for your headaches. One friend found she could not wear perfume. Another had been using those foam hair rollers and sleeping on them every night. She got a wash and go hairstyle and found that her migraines left with those rollers! A neighbor's teenager was walking around all winter without a hat. One bitter cold day he gave in and wore a hat. I bet you can guess what went away when his head was nice and warm!
So get out your deerstalker's cap and magnifying glass and detect what the real cause of your migraines is.
Fibromyalgia is just the most puzzling thing. Yes you can feel "sick." You can actually feel ANYTHING. Here's a list of the ways it has manifested itself over the years to me:
Migranes (daily until I got rid of the glasses), irritable bowel syndrome, irritable bladder, pain in the neck, chest, shoulders, midback, lowback, tarsal (foot) tunnel syndrome, hand and finger cramping, inability to empty bladder, fibrofog, double vision, vomiting, stomach ulcer, and some transient depression.
I have visited opthomalogists, opticians, optists (physical therapy for the eye) neurologists, neurosurgeons, rheumatologists, physiatrists, psychologists, psychiatrists, occupational therapists, physical therapists, chiropracters, family physicians, internists, dermatologists, accupunctureist and a massage therapist. Most have helped some. Many have not. (Especially those one-size-fits-all physical therapists.)
In other words, any symptom could be fibro. Any new symptom that COULD be dangerous should be seen by your medical doctor. Any "fibro" symptom that gets worse instead of better, despite good fibro-care, should be seen by your doctor.
Just use your common sense. And start to feel better, now.
Sorry, Cece, neither Bill nor I have ever known any Vaklyes. We know lots of Vosslers and Eckleys, but no Vaklyes.
Although we moved to the farm in 1972 and are not natives, we know a lot of people. Bill especially. He knows people from his general/masonry contracting, from teaching masonry at the college, and from farming all these years. I met a lot of people teaching in the Allegany ARC workshop and the continuing day treatment center. But I forget names.
Bill and I spent the day working on filling out forms for the state and federal government. (It would help if we knew what we were doing.) Then we got our son's taxes done. I know that there are too many people who don't pay their fair share, but it seems like we're drowning in paperwork. We have to keep track of every mile our farm trucks drive and every gallon of gas they use. We are 3 miles from the PA line, so the powers that be want to be sure that the gas purchased in NY is used in NY and vice versa. Last October we wrote a check for 43 cents that NY would be sending to PA. There was a whole lot of paperwork involved in finding that 43 cent figure.
Maybe that's why my rt. hip is acting up. All this frustrating paperwork and all this sitting-on-my-butt time.
Whatever, the trigger points on the gluteus minimus yesterday seemed to help yesterday. Today it's back to ache, ache, pain, pain. I took an Ambien last night and was able to sleep, but there's so much more to be done. I just hope that this darn right hip does not have to follow its mate into replacement land.
I guess it's time to get out my fibro notebook and see some of the notes I made on this type of pain back in the 80's and 90's. Gosh, I'm glad I started and kept that notebook. It has a much better memory than its author has.
Now, go check YOUR fibronotebook. Don't have one? Start one today. Use any paper that's floating around the house for now. You can transcribe it when you get your real notebook.
Today was another day in the 40's. Tomorrow will be, too--until early evening when it starts to snow. Well it isn't officially Spring yet. When it is, of course, every single day will be perfect--or not.
Today I got reminded how lucky we are here in Wellsville, NY. Not only does our very little town (before cell phones, there were less than 9999 phones with Wellsville numbers) have a pain clinic with a highly skilled and superbly qualified O.D. and some great nurse practicioners, we also have a caring, supportive office staff too. On Friday, my right hip started to hurt. By Monday, it hurt to sit, to stand, to lie down. So I called the clinic that morning. I got in this afternoon. Evidently, something woke up a whole bunch of trigger points on the right glutemus minimus. When I get my routine trigger point injections, they use 25 mg. of medicine for the whole length of my spine from neck to tailbone. Today, I got 50 mg. all in the glutemus minimus. Wow. I'm still going back on Friday to have my normal--non emergency--visit, when I'll get routine spine care and any follow up needed on the glut. min., too.
All of which leads me--finally--to my point:
MANY OF US ARE SETTLING FOR MEDIOCRE MEDICAL CARE. IF YOU ARE UNHAPPY WITH YOUR CARE, IT IS BOTH POSSIBLE AND APPROPRIATE TO FIRE YOUR DOCTOR AND FIND A NEW ONE.
Yes, I know how hard it is to find a doctor who "gets" fibro. It took me 25 years! But, it was worth it. My doctor accepts my insurance. He understands both fibromyalgia and myofascial pain. He is constantly expanding his "bag of tricks" to combat pain. He prescribes any drug he is legally permitted to prescribe in NY. He is not too closed-minded to refer patients for chiropractic care, physical therapy, accupuncture, or any other treatment--even to other pain clinics. And he makes sure his office staff provides a supportive atmosphere for his patients. He even LISTENS.
My hope is that every single one of you will find someone as perfect for you as Dr. Bill Carstens is for me. You deserve this level of care. Don't settle for less.